Blood Cancers & Disorders Support Group

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Comments (895)

I realize you were recently diagnosed with CLL just a few months ago. Even though your...

https://connect.mayoclinic.org/comment/1318398/

Discussion: Newly diagnosed with chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2025

@mysticfish5252, I add my belated welcome. Does your oncologist/hematologist recommend which vitamins to take? Were you...

https://connect.mayoclinic.org/comment/1322541/

Discussion: Anyone else experiencing these symptoms with CLL diagnosis....?

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2025

Eight years with CLL and it has not impacted my life style. I get simi annual...

https://connect.mayoclinic.org/comment/735618/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2022

Dear Adriano, I'm newly diagnosed with CLL in March. How have you been managing the fatigue...

https://connect.mayoclinic.org/comment/165752/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2018

hi @normahorn. I’m not seeing any reference to a dermatologist in this discussion on CLL and...

https://connect.mayoclinic.org/comment/853679/

Discussion: New to CLL-no treatment-what to eat?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

@johnwhitley the “CLL SOCIETY” has a program for expert second opinions. If you haven’t already seen...

https://connect.mayoclinic.org/comment/1435896/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2025

Hello I have just been diagnosed with CLL and would like to see posy on that...

https://connect.mayoclinic.org/comment/1269543/

Discussion: Up to date info

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

One post gave me perspective on CLL and I hope the poster pops up again in...

https://connect.mayoclinic.org/comment/1269854/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2025

@whatshallido59 With your recent diagnosis of CLL, you must have a lot of questions. As I...

https://connect.mayoclinic.org/comment/1407307/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2025

Is the swollen nodes a part of cll? So far I have not notice any with...

https://connect.mayoclinic.org/comment/848427/

Discussion: CLL with lambda monoclonal gammopathy

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Better to follow up and know what's actually going on than to sit and worry. As...

https://connect.mayoclinic.org/comment/1190402/

Discussion: Chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2024

Me too! I had my LN this summer and also no treatment I had it done...

https://connect.mayoclinic.org/comment/765020/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2022

they say cll is a slow moving blood cancer and usually it is a watch and...

https://connect.mayoclinic.org/comment/737471/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2022

@dpfohl1, how was your diagnosis of CLL discovered? I assume that since you are asymptomatic, your...

https://connect.mayoclinic.org/comment/1096407/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2024

So beautifully written, thank you, it reached me today! Just came back from Moffit yesterday and...

https://connect.mayoclinic.org/comment/1050063/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2024

Hi Lori, I am taking a pill for my CLL now. It is CALQUENCE so far...

https://connect.mayoclinic.org/comment/594277/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2021

Yes I went to the emergency room for severe back pain which woke me in the...

https://connect.mayoclinic.org/comment/335866/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2021

Smudge cells are exactly that—cells that were destroyed during the collection or preparing of the blood...

https://connect.mayoclinic.org/comment/736587/

Discussion: What are Smudge Cells? Do they indicate CLL?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2022

I also treat at Mayo in Rochester. Following many sinus infections. I arranged an appointment with...

https://connect.mayoclinic.org/comment/1534887/

Discussion: To Stop Getting Sick Consider Adding Immunology to your CLL Team

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Good morning, @joeeduffy and welcome to Connect. I think you’ve found the support group for your...

https://connect.mayoclinic.org/comment/1007740/

Discussion: I just discovered I have leukemia

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024