Blood Cancers & Disorders Support Group

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Comments (771)

@normahorn Thats good! I have no nightsweats; im feeling well ; i would have never known...

https://connect.mayoclinic.org/comment/843747/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2023

I am still intrigued with when all my symptoms started because a few days after my...

https://connect.mayoclinic.org/comment/1094497/

Discussion: Is possible to know how long ago I got CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

Hi @gg17, I assume you were prescribed cyclosporine to help manage chronic lymphocytic leukaemia and AIHA...

https://connect.mayoclinic.org/comment/326817/

Discussion: Cyclosporine and kidney issues

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2020

Have you been tested for Allergic Contact Dermatitis, ACD? Google the 5 Day Extended Patch Test....

https://connect.mayoclinic.org/comment/959339/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

@kellim, the article was very helpful. Were you able to determine whether the itching you're experiencing...

https://connect.mayoclinic.org/comment/962491/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

@ssid, you mentioned quite some time ago that you were going to begin treatment for your...

https://connect.mayoclinic.org/comment/165740/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2018

2 years ago I went to my PCP for a yearly physical (I was 53 at...

https://connect.mayoclinic.org/comment/1101774/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2024

I have CLL I am taking ACYCLOVIR 400mg. Q12 H and CALQUENCE. 100mg. Q12 H. Should...

https://connect.mayoclinic.org/comment/1011541/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

I was on a 2007 Mayo study of green tea (high dose EGCG) for CLL. Results...

https://connect.mayoclinic.org/comment/772606/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2022

Hi @tinagibson, it’s been quite a long time since we’ve chatted. I wanted to do a...

https://connect.mayoclinic.org/comment/942964/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

I was diagnosed with CLL 7 years ago at age 64 and have had semi annual...

https://connect.mayoclinic.org/comment/623087/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2021

Hi Colleen< br>Thank you for your response. Please note that my illness is CMML. The leukemias...

https://connect.mayoclinic.org/comment/101837/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 22, 2016

I was recently diagnosed with cLL and a Mass on my Uterus… It is slow growing...

https://connect.mayoclinic.org/comment/1258295/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 15 6:53am

Hi @johnwhitley, I want to officially welcome you to Connect. It looks like you’ve been a...

https://connect.mayoclinic.org/comment/1320733/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 5 9:15am

Hi @sue58. Welcome to Connect and thank for sharing your husband’s experience with CLL. It’s positive...

https://connect.mayoclinic.org/comment/1014920/

Discussion: CLL - Symptoms at Stage 0

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2024

I do not have CLL, but had a rash for 9 months that sounded identical to...

https://connect.mayoclinic.org/comment/865819/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

I have CLL, diagnosed in 2015. This August in 2023 I developed a rash that covers...

https://connect.mayoclinic.org/comment/991067/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Jan 3, 2024

Welcome to the wonderful l world of CLL where we patiently engage in watchful waiting. I...

https://connect.mayoclinic.org/comment/1019871/

Discussion: CLL - Blood work Completed IGVA Mutation Analysis

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

Yes. I started treatment this past March. It a targeted and immunotherapy combination treatment of daily...

https://connect.mayoclinic.org/comment/1086305/

Discussion: Anybody on Treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Have CLL can weaken the immune system. So having those immunoglobulin fusions help to keep your...

https://connect.mayoclinic.org/comment/1343688/

Discussion: Chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: Jul 8 11:30am