Blood Cancers & Disorders Support Group

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Comments (284)

Good morning, Wendy! I’m sitting here in front of the fireplace this morning snuggled in a...

https://connect.mayoclinic.org/comment/919632/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Not sure I understand that question. About a yr and 1/2 ago. My Hgb/HCT was found...

https://connect.mayoclinic.org/comment/662436/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Hello Lori. Thank you for your response and congratulations in apparently overcoming leukemia. My Wife has...

https://connect.mayoclinic.org/comment/912090/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Ive just been diagnosed with the JK2 gene mutation a few months ago. I'm 75 ....

https://connect.mayoclinic.org/comment/836250/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Hi Wendy, it’s my pleasure to help any way I can. Going through my leukemia and...

https://connect.mayoclinic.org/comment/876086/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

Thank you Lori. I think there is a misunderstanding here, you appear to have misunderstood me...

https://connect.mayoclinic.org/comment/936285/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Hi there/ this is my second time posting for fatigue with a more clear idea of...

https://connect.mayoclinic.org/comment/601674/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2021

hmm, 20 tablets a week? I wonder if there was a disconnect in the conversation. Have...

https://connect.mayoclinic.org/comment/1094130/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2024

I’m also thankful for this group! My very supportive husband found this for me. I was...

https://connect.mayoclinic.org/comment/975461/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2023

Hi, A friend has been diagnosed with polycythaemia vera very recently and is in a bit...

https://connect.mayoclinic.org/comment/811484/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

I went to my GP with other issues & checked with him re Sleep Apnea. He...

https://connect.mayoclinic.org/comment/1036484/

Discussion: Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2024

I was diagnosed with polysythema Vera a little over 10 years ago. My weight has went...

https://connect.mayoclinic.org/comment/1010259/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Thank you so much for all your encouragement, you are super positive & determined to keep...

https://connect.mayoclinic.org/comment/966802/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2023

My husband was diagnosed with Polycythemia rubra vera about 12 years ago. He has done extremely...

https://connect.mayoclinic.org/comment/837851/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2023

I have polycythmia Vera, and 9 different rare diagnosis. Told my doctor I only collected rare...

https://connect.mayoclinic.org/comment/798518/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

Hello, I too have Polycythaemia Vera. I was diagnosed just over one year ago when I...

https://connect.mayoclinic.org/comment/787794/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

It does appear that PV can be affected by altitude. Though one study I found has...

https://connect.mayoclinic.org/comment/737086/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2022

Is JAK 2 the same as policythemia vera. My dr. said only that the test was...

https://connect.mayoclinic.org/comment/194307/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

They can tell from your red and white cells, platelets and hematocrit . The name of...

https://connect.mayoclinic.org/comment/986546/

Discussion: Polycythemia diagnosis

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2023