Blood Cancers & Disorders Support Group

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Comments (413)

@auntieoakley I see that you are also a volunteer mentor and that is an awesome thing...

https://connect.mayoclinic.org/comment/1458481/

Discussion: What to think when only free light chain ratio is abnormally high?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2025

I find every three months pretty reassuring. Have my next batch in July so we’ll see....

https://connect.mayoclinic.org/comment/721418/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2022

I’m interested in this topic I know little about. I do have smoldering multiple myeloma and...

https://connect.mayoclinic.org/comment/1468048/

Discussion: Anyone have idiopathic pancytopenia?

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2025

Hi @flightdeckjohnn, first I have to ask about your name, FlightDeckJohnn! Did you serve on a...

https://connect.mayoclinic.org/comment/663124/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

@amyboylan1 I've been trying to get motivated to drop 30 pounds and I banked this study...

https://connect.mayoclinic.org/comment/1303850/

Discussion: Can weight gain cause progression from MGUS to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2025

@amyboylan1 It's natural to be apprehensive when we get a diagnosis like this. There are a...

https://connect.mayoclinic.org/comment/1112772/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

I’m so terribly sorry to hear that your wife passed away. Blood cancers can be so...

https://connect.mayoclinic.org/comment/839483/

Discussion: MGUS to myeloma: How can it be detected sooner?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2023

I've had IgA kappa light chain MGUS for 8 years (I'm 70). My current kappa is...

https://connect.mayoclinic.org/comment/1168428/

Discussion: Kappa light chains: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

Greetings. It’s a lot to take in, isn’t it? The hematologist surely would refer you to...

https://connect.mayoclinic.org/comment/829705/

Discussion: Kappa light ratio and beta 2 microglobin

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

I have multiple myeloma and have had it for about a year. When my doctor caught...

https://connect.mayoclinic.org/comment/1302783/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 12, 2025

You're incorrect, some of us do have it spontaneously regress. I'm one of the 2%. I...

https://connect.mayoclinic.org/comment/1026763/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

I think it’s important to note that a very small percentage of patients with MGUS progress...

https://connect.mayoclinic.org/comment/732361/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

@mjlandin Welcome to Mayo Clinic Connect. There are several discussions here in the Blood Cancer &...

https://connect.mayoclinic.org/comment/714381/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2022

I have multiple myeloma and underwent 16 weeks of chemo. To say it wiped me out...

https://connect.mayoclinic.org/comment/1288414/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2025

My first biopsy was over a year ago and my affected marrow was 5-7%. We were...

https://connect.mayoclinic.org/comment/868846/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: May 29, 2023

Hello new members @steffiney and @milo3986 Lori is very experienced and has a depth of information...

https://connect.mayoclinic.org/comment/890559/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

@mikxtr How frustrating! Not sure which specialists these people are, but if not a hematologist oncologist,...

https://connect.mayoclinic.org/comment/1076706/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

It is great that your husband knows how to do research. I don't , but that...

https://connect.mayoclinic.org/comment/965818/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

@teedlum Some people with MGUS do indeed have a bone marrow biopsy, but not everyone. Much...

https://connect.mayoclinic.org/comment/770450/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

@rimord Interesting you ask this question. The thing about the progression from MGUS to Smoldering MM...

https://connect.mayoclinic.org/comment/1455996/

Discussion: Smoldering Multiple Myeloma (SMM). Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2025