Blood Cancers & Disorders Support Group

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Comments (525)

@katgob Hooray for your great 2 year appointment!!! Wonderful news. I am happy for you. Your...

https://connect.mayoclinic.org/comment/1559042/

Discussion: Waiting for Donor confirmation, for BMT

Support Group: Blood Cancers & Disorders

Posted: Apr 25 8:05am

Thanks so much for putting some common sense to our diagnosis. Sometimes when I read other...

https://connect.mayoclinic.org/comment/838615/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2023

Re itchy bumps: ET jacks up histamine levels. I have more skin irritation, asthma, and rosacea...

https://connect.mayoclinic.org/comment/928129/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

I have had extreme itching for quite awhile, my doctor recommended applying coconut oil once or...

https://connect.mayoclinic.org/comment/1253703/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Mar 9, 2025

@nancyra I have had ET x 17 yrs. My dad also had it, so I knew...

https://connect.mayoclinic.org/comment/1429862/

Discussion: Hydroxyurea vs Agrilyn: Anyone switched from HU to Agrilyn?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

Could it be related to anything you might be eating which could be interacting with your...

https://connect.mayoclinic.org/comment/906136/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

Dear Lori, It was mistakenly mentioned by me as CML .In fact my sister has CMML....

https://connect.mayoclinic.org/comment/1367376/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2025

I just did a bone marrow biopsy. They sent my results to two of the top...

https://connect.mayoclinic.org/comment/1336532/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2025

My HES affected my heart. Nucala has been approved by the FDA to treat HES and...

https://connect.mayoclinic.org/comment/939455/

Discussion: Any experience with hypereosinophilic syndrome (HES)?

Support Group: About Kids & Teens

Posted: Sep 30, 2023

@loribmt Thank you so much for your response. At the onset, the itching was treated with...

https://connect.mayoclinic.org/comment/1582301/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: May 24 4:52pm

@mdramsey48 Oh you've been through the wringer, mdramsey. I am so sorry. Do you know, with...

https://connect.mayoclinic.org/comment/1567284/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 5 12:16pm

@loribmt Hi Lori, thank you for your message. I am sorry to hear about your hematology...

https://connect.mayoclinic.org/comment/1524022/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 1:20pm

About 6 months ago I was diagnosed with Sezary Syndrome, a rare form of T-Cell Lymphoma....

https://connect.mayoclinic.org/comment/871156/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

I take Desloratadine, an antihistamine for the itching and it works great. For dry skin on...

https://connect.mayoclinic.org/comment/1205154/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2025

I started a little over a year ago w/500 mg/day 6 days/week. I have hot flashes...

https://connect.mayoclinic.org/comment/1105077/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2024

@joaniech2004 Good to hear you are much better and itching is under control. Again, like you...

https://connect.mayoclinic.org/comment/1538879/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 30 1:45pm

I’m sorry to hear about your mom’s problems with itching. I’ve had some issues with itching...

https://connect.mayoclinic.org/comment/744293/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Sep 1, 2022

Really glad to hear you were diagnosed before having a stroke or heart attack I, too,...

https://connect.mayoclinic.org/comment/1374970/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2025

Can I ask what level of dosage y’all that are posting here are on? I’ve been...

https://connect.mayoclinic.org/comment/1356957/

Discussion: Can I take Hydroxyurea in a dab of applesauce?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2025

My platelets bounce between 57 to 600 then back down to 80. I was on hydroxyurea...

https://connect.mayoclinic.org/comment/1083471/

Discussion: Which specific kind of doctor looks into thrombocytopenia?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

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