Blood Cancers & Disorders Support Group

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Comments (1,399)

That’s great news for you. We’re all different, and so are of course each of our...

https://connect.mayoclinic.org/comment/840938/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

I have ET with JAK2. Please see my post: https://connect.mayoclinic.org/discussion/essential-thrombocythemia-treatment-with-besremi/?pg=3#comment-1321409 I am happy to answer any...

https://connect.mayoclinic.org/comment/1321411/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

I was diagnosed with ET Jak2 over a year ago my PLTS range from 450 -...

https://connect.mayoclinic.org/comment/1146979/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

I am amazed at the amount of HU some people are taking. I take 500 mg...

https://connect.mayoclinic.org/comment/877802/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

I was newly diagnosed with ET with the JAK2 mutation. I do have the red feet....

https://connect.mayoclinic.org/comment/785397/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2022

I have Jak2 diagnosed in 2019. Was stationed at New River for three years. VA doctor...

https://connect.mayoclinic.org/comment/732843/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2022

I checked with my hemo/oncologist and taking B12 as advised by my PCP is ok with...

https://connect.mayoclinic.org/comment/1091499/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

I have not heard about a link between JAK2 and the COVID-19 vaccinations. When my doctor...

https://connect.mayoclinic.org/comment/1032105/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2024

My husband was diagnosed with primary Myelofibrosis with JAK2 mutation last June. Has anyone looked into...

https://connect.mayoclinic.org/comment/1493287/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 29 10:25am

I was diagnosed with Essential Thrombocythemia, JAK2 mutation, earlier this year. My hematologist (who was also...

https://connect.mayoclinic.org/comment/877333/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

I am a 69 years old was recently diagnosed with ET JAK2 mutation. I just started...

https://connect.mayoclinic.org/comment/787555/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

I have also been diagnosed with MPN/ET/JAK2. It’s been recommended that I start taking HU. I’m...

https://connect.mayoclinic.org/comment/787262/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

Hi I am living with Jak2 mutation. Would love to talk I was just diagnosed in...

https://connect.mayoclinic.org/comment/1293529/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

@mdterp76 Hi Karla, I have never had a bone density issue. My last one said to...

https://connect.mayoclinic.org/comment/1558014/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 23 7:32pm

I woud like to reply to the 26 year old who believes she/he has pylocythemia Jak2...

https://connect.mayoclinic.org/comment/1471523/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2025

I’m waiting on my results for Jak2, CalR and MPL gene, curious do you take B12...

https://connect.mayoclinic.org/comment/696699/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2022

I just learned that my JAK2 is positive. I spoke with my oncologist before the test...

https://connect.mayoclinic.org/comment/1319637/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2025

Ok, if you have the JAK2 mutation and taking HU, the links I provided above should...

https://connect.mayoclinic.org/comment/1269599/

Discussion: Up to date info

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

Hi everyone, hope all is well. My name is Claire and I also have essential thrombocythemia...

https://connect.mayoclinic.org/comment/194319/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

Personally, I was more scared of stroke or heart attack than the words cancer/chemo when I...

https://connect.mayoclinic.org/comment/1096751/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2024

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