Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,176 total results

Comments (1,102)

I have been on Pegasys for about 2 years. I have ET Jak2. It brought my...

https://connect.mayoclinic.org/comment/1295459/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 3 6:31am

Hello @lindaw123 I appreciate this thoughtful question. I did some research online and found the results...

https://connect.mayoclinic.org/comment/662346/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

"JAK 2 positive result only attributes to a 7% chance that it is the cause of...

https://connect.mayoclinic.org/comment/1281109/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 13 4:14pm

Hi group, I had a Jak2 that came back positive. From what I understand anything over...

https://connect.mayoclinic.org/comment/1140546/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2024

Hi @dale1k I am amazed at your high dose of HU since you say your RBC...

https://connect.mayoclinic.org/comment/1078783/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2024

With higher platelet numbers you are putting yourself at a higher risk of pulmonary embolisms. From...

https://connect.mayoclinic.org/comment/869593/

Discussion: JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

Hello Tresman10.......my name is Claire and I have jak2, ET and MPN. I have been on...

https://connect.mayoclinic.org/comment/310848/

Discussion: Husband has Essential Thrombocythemia (ET) & MCI

Support Group: Caregivers: Dementia

Posted: May 15, 2020

I have Polycythemia Vera Jak2. I all of a sudden have my platelets go up and...

https://connect.mayoclinic.org/comment/1087185/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

Wendy, physicians consider a number of factors when diagnosing PV because most diagnostic tests are not...

https://connect.mayoclinic.org/comment/890629/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

My brother and I have the JAK2 gene sibling mutation, and he could not handle the...

https://connect.mayoclinic.org/comment/1004869/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2024

Welcome to Connect, @mcvorbs. Blood conditions such as Polycythemia Vera can develop so slowly, with few...

https://connect.mayoclinic.org/comment/985895/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Those of us with the JAK2 mutation, who have also been diagnosed with a blood disorder...

https://connect.mayoclinic.org/comment/836188/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

There seems to be a correlation with chromosome mutation(s) one of which is referred to as...

https://connect.mayoclinic.org/comment/766919/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2022

This is where it gets confusing. The low end of our lab reference range for EPO...

https://connect.mayoclinic.org/comment/745889/

Discussion: Polycythemia: Primary or Secondary?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2022

I was diagnosed 3 years ago with secondary (non cancerous) PV. I do not have the...

https://connect.mayoclinic.org/comment/870096/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

I joined the JAK2 club in 2018. I have Polycythemia Vera which is a MPN sister...

https://connect.mayoclinic.org/comment/1184707/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024

I believe that no two peoples cases are the same and as the JAK2 mutation is...

https://connect.mayoclinic.org/comment/812512/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2023

Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...

https://connect.mayoclinic.org/comment/194373/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2021

Wondering why Xarelto? I'm in 70s diagnosed in 2019, on HU plus baby aspirin. My platelets...

https://connect.mayoclinic.org/comment/796538/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023