Blood Cancers & Disorders Support Group

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Comments (486)

@donnamae90 Ultimately the choice for transfusions will be your choice. I am trying to avoid transfusions...

https://connect.mayoclinic.org/comment/1190250/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2024

@nbadry - my side effects are relatively mild: occasional joint pain, initially some itching, and fatigue....

https://connect.mayoclinic.org/comment/1089046/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

@norseman44 Checking in to see how your itchies are doing? Did stopping the dexamethasone help your...

https://connect.mayoclinic.org/comment/1007882/

Discussion: Dexamethasone, anyone prescribed this drug for itchiness?

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024

My ithing seems to be a bit a quandry from my PCP to my hematologist-oncologist. I'm...

https://connect.mayoclinic.org/comment/916141/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2023

Welcome, @yrag. I moved your post about ITP to this active discussion: - Immune Thrombocytopenia Purpura...

https://connect.mayoclinic.org/comment/908362/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

Yes, I was diagnosed in May of 2022 but have had symptoms since 2019. I had...

https://connect.mayoclinic.org/comment/738411/

Discussion: When is hydroxurea usually added to treat polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

I was diagnosed with Cutaneous T Cell Lymphoma back in 2010. It took quiet awhile to...

https://connect.mayoclinic.org/comment/1109989/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2024

@lindakay55 Great narrative of your experience with this condition. My experience with it was very similar...

https://connect.mayoclinic.org/comment/1464901/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

I didn’t have any problems with side effects the entire time I was on it except...

https://connect.mayoclinic.org/comment/1407750/

Discussion: Anyone have experience with daratumumab (Darzalex) to treat Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2025

I have PCV with Jack 2. I struggle with itching and slight headaches and ear aches....

https://connect.mayoclinic.org/comment/1086049/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Great question. My first sign was itching after a soaking bath. I love to soak in...

https://connect.mayoclinic.org/comment/886546/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

Hi I am 75 also and diagnosed maybe in 2019. Anyhow I have only done baby...

https://connect.mayoclinic.org/comment/1368778/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

Hi @mrducks. Welcome to Connect. Let’s get you over to the right support group where you’ll...

https://connect.mayoclinic.org/comment/1252153/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

So sorry you are dealing with this. It is overwhelming. I can relate. In January, was...

https://connect.mayoclinic.org/comment/1520149/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 5 9:18am

Out of sheer dumb luck, I have never had any blood numbers that have been "off"...

https://connect.mayoclinic.org/comment/774637/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2022

Hello. I asked my hematologist when HU was first prescribed when I should take it and...

https://connect.mayoclinic.org/comment/1302128/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025

I have not taken retuximab. I do have Castleman's Disease which use to be treated with...

https://connect.mayoclinic.org/comment/252975/

Discussion: Reaction from Rituximab

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2019

I was diagnosed with Polycythemia Vera (PV) a year ago. The pruritus was a symptom before...

https://connect.mayoclinic.org/comment/1236497/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2025

Ginger, thx for the return. After only a few days I have stopped the Dexamethasone because...

https://connect.mayoclinic.org/comment/1005060/

Discussion: Dexamethasone, anyone prescribed this drug for itchiness?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2024

Thank you Lori for your helpful information. I've done a lot of research and reading about...

https://connect.mayoclinic.org/comment/743376/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2022