Blood Cancers & Disorders Support Group | Page 13

Yes, age or ET is one of my constant questions. I'm 70 now. Just based on...

https://connect.mayoclinic.org/comment/1052910/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024

Toe pain: People with ET may be more likely to develop gout. It's thought that the...

https://connect.mayoclinic.org/comment/1310098/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 22, 2025

Was the rheumatoid factor testing part of the testing your doctor automatically did? I am waiting...

https://connect.mayoclinic.org/comment/1209712/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2025

I too just got diagnosed with a sense ET/primary myeloid fibrosis with CALR mutation. Did bone...

https://connect.mayoclinic.org/comment/1551437/

Discussion: Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?

Support Group: Blood Cancers & Disorders

Posted: Apr 15 5:29pm

@ina2022 "Hematologist is convinced it has nothing to do with ET." Fiddlesticks. Shame on your hematologist....

https://connect.mayoclinic.org/comment/1519157/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 4 7:06am

@hudson2019 Just a nosy question, so feel free to ignore: If you are in the States,...

https://connect.mayoclinic.org/comment/1532714/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 22 9:47am

I take 2 caps HU 500/daily since April 2021....and first year I had gut issues, some...

https://connect.mayoclinic.org/comment/1002460/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2024

My age is 32 and I have ET with jak2. For how long I can take...

https://connect.mayoclinic.org/comment/965613/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

Welcome @emcobb76. To help you connect with others who have essential thrombocythemia (ET), I moved your...

https://connect.mayoclinic.org/comment/776741/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2022

I owe you all a feedback about the outcome of my last appointment with a well...

https://connect.mayoclinic.org/comment/1548448/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 12 7:47am

Hi Sarah, Welcome to Connect. You’ve gotten some great feedback from fellow members who also have...

https://connect.mayoclinic.org/comment/1556654/

Discussion: Essential Thrombocythemia JAK2 symptoms of dizziness/vision distortion

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

With ET you may experience few symptoms or lots of them. It is very individual I...

https://connect.mayoclinic.org/comment/1465952/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2025

Thank you for your reply! 70yo with ET. High risk, 3 siblings had a blood cancer.

https://connect.mayoclinic.org/comment/1289487/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2025

As another long-timer (17 yrs ET CALR), I agree that this is a really good source...

https://connect.mayoclinic.org/comment/1280648/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

Thank you for your sharing your story. You're proof we can live strong with ET.

https://connect.mayoclinic.org/comment/1116825/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

I am truly sorry if my comment causes you distress, I have found much good information...

https://connect.mayoclinic.org/comment/991705/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2024

Welcome, Gary -- we're glad you're here. My amateur guess is that it's our platelet-heavy ET...

https://connect.mayoclinic.org/comment/1117938/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2024

Diagnosis first; a million questions second! We've all been there. There is tons of information available,...

https://connect.mayoclinic.org/comment/1538428/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30 5:10am

@janemc I was diagnosed in 1993 with ET. At the time it was designated a “disorder”....

https://connect.mayoclinic.org/comment/1547823/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 11 9:43am

I have ET with jak2 and experience fatigue and occasional headaches, but haven't noticed any changes...

https://connect.mayoclinic.org/comment/1209498/

Discussion: Does ET or HU affect liver functions?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2025