Blood Cancers & Disorders Support Group

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Comments (259)

I have been on Besrimi for a few months now and am having no side effects....

https://connect.mayoclinic.org/comment/1228582/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025

I had a change of my vision while on Hydrea. I went to my eye dr...

https://connect.mayoclinic.org/comment/1168473/

Discussion: Are visual disturbances related to ET or hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

Well…the first thought that ran through my mind was, “You do know that blood clots can...

https://connect.mayoclinic.org/comment/866166/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

I remember the panic amongst my loved ones when I was diagnosed in 2022 with PV....

https://connect.mayoclinic.org/comment/1187348/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2024

Thank you so very much. This is helpful. Best to you on your Besrimi journey. I've...

https://connect.mayoclinic.org/comment/1161041/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024

My hematologist was the one that the Besrimi had to come from a specialty pharmacy and...

https://connect.mayoclinic.org/comment/1158212/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2024

Was on it For 26months No side Affects i’m a Roofing Contractor didn’t notice anything with...

https://connect.mayoclinic.org/comment/1566472/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: May 4 1:05pm

@lehall125 You and others might find my experience informative. I was diagnosed with essential thrombocythemia about...

https://connect.mayoclinic.org/comment/1471947/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 1 8:39am

I could not take the Hydroxyurea either. I am now getting injections of Besrimi every other...

https://connect.mayoclinic.org/comment/1159379/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2024

@nohrt4me I am on Besrimi and I definitely cannot afford it. I got a grant through...

https://connect.mayoclinic.org/comment/1534334/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 24 11:23am

@wlm7615 I read that Besrimi is very expensive. Is that true?

https://connect.mayoclinic.org/comment/1474868/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 5 7:57am

Are you that are on Besrimi experiencing any hair loss. I am getting pretty thin on...

https://connect.mayoclinic.org/comment/1332950/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2025

@garyintlv, you may also be interested in the experiences shared in these related posts about Besrimi:...

https://connect.mayoclinic.org/comment/1233220/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2025

I was on HU for about nine years, with good control of platelets, until a painful...

https://connect.mayoclinic.org/comment/1474086/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 4 8:28am

@ann7449 I took HU for 8 1/2 years without any side effects at all and it...

https://connect.mayoclinic.org/comment/1472604/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 2 6:41am

I could not take HU either but I did not have GI problems. I had really...

https://connect.mayoclinic.org/comment/1234750/

Discussion: GI issues after 7 months on Hydroxyurea - What’s next?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

I started taking Hydrea and had no side effects for 6 months. In 6 months I...

https://connect.mayoclinic.org/comment/1161007/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024

I was never on Pegasys. I have only been on Hydra, Angralide, Eliquis and now Besrimi

https://connect.mayoclinic.org/comment/1158681/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 17, 2024

I am on Besrimi. I have had 4 injections. I get them every other week. When...

https://connect.mayoclinic.org/comment/1153069/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2024