Blood Cancers & Disorders Support Group

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Comments (284)

Hi, Vicky, I am 70, CALR+, have had ET for about 15 years. Doing OK, no...

https://connect.mayoclinic.org/comment/1103555/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2024

Hi @sharonm2023. Welcome to Connect. I promise you won’t be alone here! There are quite a...

https://connect.mayoclinic.org/comment/1209751/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 12 9:44am

Hi @kittycatgirl, From personal experience with bone marrow biopsies at Mayo, they do indeed use a...

https://connect.mayoclinic.org/comment/946113/

Discussion: Propofol for bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

by 262mpeaches @262mpeaches My sister age 40 passed away 2 hours after she saw the doctor...

https://connect.mayoclinic.org/comment/816010/

Discussion: Blood clots leading from lungs to heart

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

Good morning, @onthejoedock. When there is a mutation with the JAK2 gene, it can interfere with...

https://connect.mayoclinic.org/comment/1009921/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Hi @rjohn3702, Polycythemia Vera is a very slowly developing blood cancer where your body produces too...

https://connect.mayoclinic.org/comment/840257/

Discussion: Hematocrit Continues to Drop After Stopping Hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

@ettap you have a lot of reasonable questions. I'm not a doctor. I just have Jak2...

https://connect.mayoclinic.org/comment/919110/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023

Greetings, @papa6275 I have Polycythemia vera. After a couple of years, I no longer tolerated Hydroxyurea....

https://connect.mayoclinic.org/comment/914653/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2023

@misty45, Thank you for replying and telling me your story. Having a positive JAK2 result, I'm...

https://connect.mayoclinic.org/comment/194261/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

Hi @bohobruja Welcome to Mayo Connect. The National Institute of Health defines chronic myeloproliferative disorders as...

https://connect.mayoclinic.org/comment/786594/

Discussion: Does anyone else have more than one myeloproliferative disorder?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

Good morning, @irishgoff82. It’s always so jarring when we get news about our health that we...

https://connect.mayoclinic.org/comment/1195805/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2024

Welcome to Connect @rhollis I think a good place to begin this morning is with a...

https://connect.mayoclinic.org/comment/1201587/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 1 8:46am

My hematologist submitted blood at a lab for 5 genetic tests after I suffered my 2nd...

https://connect.mayoclinic.org/comment/194258/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2018

Hi Sammy, Well, there are two types of polycythemia: polycythemia vera and just plain old polycythemia....

https://connect.mayoclinic.org/comment/837835/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2023

Hello, I am currently looking for research for my mother and our family. She was diagnosed...

https://connect.mayoclinic.org/comment/231803/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2020

I was diagnosed w Polycythemia Vera in 2020 when routine lab work showed HCT of 61.3....

https://connect.mayoclinic.org/comment/737723/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2022

Hello I was recently diagnosed with Polycycemia Vera?I will be transparent I'm a health care professional...

https://connect.mayoclinic.org/comment/843734/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2023

After three Phlebotomies, I went from 720 down to 410 on platelets and 50 down to...

https://connect.mayoclinic.org/comment/1171914/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2024

Hi, I hopefully have some answers for you...and many of you! I also have been trying...

https://connect.mayoclinic.org/comment/198912/

Discussion: High Levels of Vitamin B12 and Ferritin: Any pointers?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2019

Hi @nyjean. Hopefully I can answer your question about PV and ET. Those two conditions, along...

https://connect.mayoclinic.org/comment/1066510/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024