Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

291 total results

Comments (257)

Hi there/ this is my second time posting for fatigue with a more clear idea of...

https://connect.mayoclinic.org/comment/601674/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2021

Thank you Lori. I think there is a misunderstanding here, you appear to have misunderstood me...

https://connect.mayoclinic.org/comment/936285/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Hi, A friend has been diagnosed with polycythaemia vera very recently and is in a bit...

https://connect.mayoclinic.org/comment/811484/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

I’m also thankful for this group! My very supportive husband found this for me. I was...

https://connect.mayoclinic.org/comment/975461/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2023

hmm, 20 tablets a week? I wonder if there was a disconnect in the conversation. Have...

https://connect.mayoclinic.org/comment/1094130/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jun 25 5:01pm

Hello, I too have Polycythaemia Vera. I was diagnosed just over one year ago when I...

https://connect.mayoclinic.org/comment/787794/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

I have polycythmia Vera, and 9 different rare diagnosis. Told my doctor I only collected rare...

https://connect.mayoclinic.org/comment/798518/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

My husband was diagnosed with Polycythemia rubra vera about 12 years ago. He has done extremely...

https://connect.mayoclinic.org/comment/837851/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2023

Is JAK 2 the same as policythemia vera. My dr. said only that the test was...

https://connect.mayoclinic.org/comment/194307/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

It does appear that PV can be affected by altitude. Though one study I found has...

https://connect.mayoclinic.org/comment/737086/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2022

I was diagnosed with polysythema Vera a little over 10 years ago. My weight has went...

https://connect.mayoclinic.org/comment/1010259/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 5 4:16pm

Thank you so much for all your encouragement, you are super positive & determined to keep...

https://connect.mayoclinic.org/comment/966802/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2023

I went to my GP with other issues & checked with him re Sleep Apnea. He...

https://connect.mayoclinic.org/comment/1036484/

Discussion: Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea

Support Group: Blood Cancers & Disorders

Posted: Mar 19 11:33am

@simple27 -- Agree that my anemic hematocrit points AWAY from PV. I wish I could convince...

https://connect.mayoclinic.org/comment/231792/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2019

They can tell from your red and white cells, platelets and hematocrit . The name of...

https://connect.mayoclinic.org/comment/986546/

Discussion: Polycythemia diagnosis

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2023

I have had Pilycthemia Vera for almost 20 years. It’s now has changed to Myelofbrosis. Just...

https://connect.mayoclinic.org/comment/1098999/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Jul 4 8:07am

What does ET stand for? I was diagnosed 2 years ago with Polycythaemia Ruba Vera with...

https://connect.mayoclinic.org/comment/918920/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2023