Blood Cancers & Disorders: Discussions | Page 12

I believe that no two peoples cases are the same and as the JAK2 mutation is...

https://connect.mayoclinic.org/comment/812512/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2023

Wondering why Xarelto? I'm in 70s diagnosed in 2019, on HU plus baby aspirin. My platelets...

https://connect.mayoclinic.org/comment/796538/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023

PV allele burden (VAF) from quantitative test I have had 2 JAK2 tests, one qualitative, that...

https://connect.mayoclinic.org/comment/1147354/

Discussion: How much of a risk factor is high white blood cell count with pv?

Support Group: Blood Cancers & Disorders

Posted: Sep 25 7:26pm

@jsslmt53, welcome. We have many members who are living with Essential Thrombocythemia and talk about JAK2...

https://connect.mayoclinic.org/comment/782514/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

My brother and I have the JAK2 gene sibling mutation, and he could not handle the...

https://connect.mayoclinic.org/comment/1004869/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 27 3:52pm

I have Polycythemia Vera Jak2. I all of a sudden have my platelets go up and...

https://connect.mayoclinic.org/comment/1087185/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 15 7:47am

Welcome to Connect, @mcvorbs. Blood conditions such as Polycythemia Vera can develop so slowly, with few...

https://connect.mayoclinic.org/comment/985895/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

I was diagnosed 3 years ago with secondary (non cancerous) PV. I do not have the...

https://connect.mayoclinic.org/comment/870096/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Is a bone marrow test necessary? I was diagnosed with ET through blood tests. I'm JAK2...

https://connect.mayoclinic.org/comment/827322/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

I have MDS/MPN with Thrombocytosis. Also JAK2 and SRSF2 positive. I take Hydroxyurea to reduce my...

https://connect.mayoclinic.org/comment/256907/

Discussion: Medication for JAK2

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2019

Just following up. My Jak2 was negative and my EPO was 5. I don't know what...

https://connect.mayoclinic.org/comment/852226/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

I'm so sorry your mom is dealing with MF. Guessing she has the CALR or MPL...

https://connect.mayoclinic.org/comment/1069688/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: May 17 1:54pm

I am sorry you are going through so many issues. Since you are positive for JAK2...

https://connect.mayoclinic.org/comment/836053/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

I’ve seen many who get there numbers down in the 500’s and are ok with that....

https://connect.mayoclinic.org/comment/764541/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

When I first started with ET JAK2 in 2022 I was given 500 mg HU daily....

https://connect.mayoclinic.org/comment/1180620/

Discussion: Lightheadedness, Brain fog, Itchy: Side effects of HU or ET itself?

Support Group: Blood Cancers & Disorders

Posted: Nov 27 7:20am

My son is almost 47 and has been dealing with high platelet count 750,000 for about...

https://connect.mayoclinic.org/comment/194300/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2019

Are you by chance taking testosterone, either by injection or a topical preparation? Polycythemia (but not...

https://connect.mayoclinic.org/comment/784089/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2022

I’m wondering who tried the keto diet and how it worked. I started keto a year...

https://connect.mayoclinic.org/comment/775370/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2022

Just because you have the JAK2 mutation it doesn't mean you cannot have other gene mutations....

https://connect.mayoclinic.org/comment/194366/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2020

Blood Cancers & Disorders Support Group