Blood Cancers & Disorders Support Group

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Comments (328)

I had a TIA at the end of 2014. After seeing many Doctors one Doctor referred...

https://connect.mayoclinic.org/comment/803429/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2023

Welcome, Lisa! Everyone’s story will be slightly different with a few similarities. We all have a...

https://connect.mayoclinic.org/comment/1162559/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Hi Jean, hope you had a fabulous christmas. Saw my Thyroid specialist, who has recommended that...

https://connect.mayoclinic.org/comment/1467731/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Dec 25, 2025

Hi @cmercer50 So glad you jumped into the ET discussion. Being able to connect with other...

https://connect.mayoclinic.org/comment/1448719/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2025

I am not a farmer but I have ET (essential thrombocythemia). I have had it for...

https://connect.mayoclinic.org/comment/913030/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....

https://connect.mayoclinic.org/comment/719785/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Hi Wiggins32, I have had slightly low iron and now take iron supplements...Many of the symptoms...

https://connect.mayoclinic.org/comment/826011/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Over the last few years, studies have shown that reducing the allele burden for PV and...

https://connect.mayoclinic.org/comment/1222127/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

Yes, and Yes I am doing the 500 mg twice daily (one in AM one in...

https://connect.mayoclinic.org/comment/792898/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Hello @ettap and welcome to Connect. It is good to see that you have confirmed your...

https://connect.mayoclinic.org/comment/194256/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2018

It is a big decision to start on hydroxyurea and all of us have a different...

https://connect.mayoclinic.org/comment/780799/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2022

Hi @amyb52. Welcome to Connect. This is a great forum for meeting other members who share...

https://connect.mayoclinic.org/comment/882031/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

I've had essential thrombocythemia symptoms for 15 years now. I'm 70. To the best of my...

https://connect.mayoclinic.org/comment/929592/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Hi everyone. I am a 68 year old woman, physically active with controlled asthma. I just...

https://connect.mayoclinic.org/comment/887042/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

"At 82 yes I would like to keep other parts of me as healthy as possible....

https://connect.mayoclinic.org/comment/783143/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

@loribmt thank you so much for your kind words! Made me tear up....because you are so...

https://connect.mayoclinic.org/comment/757007/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2022

Hi @marthajones. Having Essential Thrombocythemia and being on on Hydroxyurea, your immune system won’t be as...

https://connect.mayoclinic.org/comment/782048/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

@exon9 I don't claim to be a huge expert on this, but here goes. CALR is...

https://connect.mayoclinic.org/comment/1481931/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 14 8:18am

Found this on Medlineplus: In general, LDH levels that are higher than normal usually mean you...

https://connect.mayoclinic.org/comment/1235011/

Discussion: High LDH with ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2025

Just so we're all on the same page, here's what yr referencing: Cytoreductive treatment with hydroxyurea...

https://connect.mayoclinic.org/comment/1297950/

Discussion: What’s the cost of Pegasys with good commercial insurance?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2025

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