Blood Cancers & Disorders Support Group

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Comments (916)

Good morning @spoolly. I see you’ve been a member for a while but this is your...

https://connect.mayoclinic.org/comment/966300/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2023

The short answers are "diagnosed about two years ago and active surveillance until last month". But...

https://connect.mayoclinic.org/comment/1442191/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2025

Hi @bettersleep68 To my knowledge there isn’t anyone in the forum who has had AML with...

https://connect.mayoclinic.org/comment/1393691/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 15, 2025

I really appreciate all of the information above, especially all of the links from Lori. I...

https://connect.mayoclinic.org/comment/1278439/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2025

@siagolfer Thank you for your response. Is it half dose for Brukinsa or Allopurinol? Did you...

https://connect.mayoclinic.org/comment/1515940/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Feb 27 2:32pm

I have cll and pv. my bc has gone up to normal from anemia and my...

https://connect.mayoclinic.org/comment/737911/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2022

Just started D3 and Turmeric, diagnosed with Cll and Sll in January, stage 0. Giving this...

https://connect.mayoclinic.org/comment/1286792/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2025

Hi @navygirl, how are you doing? Have you learned more about a possible CLL diagnosis yet?...

https://connect.mayoclinic.org/comment/948867/

Discussion: Possible upcoming lymphoma or leukemia diagnosis. What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2023

@whoey, wow, writing to us from your hospital bed. Are you being treated for both CLL...

https://connect.mayoclinic.org/comment/304669/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: May 6, 2020

I would really like to hear from people living with CLL for a long time now...

https://connect.mayoclinic.org/comment/963159/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

My blood tests showed that I have a deletion in chromosome 13 and allowed for staging...

https://connect.mayoclinic.org/comment/947797/

Discussion: Possible upcoming lymphoma or leukemia diagnosis. What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2023

Good question, @stimme. Allow me to tag fellow members who have experience with an enlarged spleen...

https://connect.mayoclinic.org/comment/591613/

Discussion: Chemo tablet or splenomegaly to reduce spleen enlargement?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2021

Hello @prayerful4ever. Sounds like you’ve had a little change in your diagnosis with CLL. (Chronic lymphatic...

https://connect.mayoclinic.org/comment/1317742/

Discussion: Latest blood draw

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2025

Welcome to Connect, @sweetsuzy. Whether you’re just at the beginning of your diagnosis as a newbie...

https://connect.mayoclinic.org/comment/1314687/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2025

You’re mentioning PCP throughout your diagnosis with CLL and now PLL. Have you been examined by...

https://connect.mayoclinic.org/comment/1318007/

Discussion: Latest blood draw

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2025

Happy for you! Your post is very encouraging as I have just been diagnosed with CLL....

https://connect.mayoclinic.org/comment/1312018/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 24, 2025

go to the website https://bloodcancerunited.org/ went there go to section on CLL & download pamphlet on...

https://connect.mayoclinic.org/comment/1465388/

Discussion: CLL Treatment side effects are wearing me down: Anything I can do?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2025

try getting treated with targeted therapy, not chemo. With the advent of targeted therapies tailored for...

https://connect.mayoclinic.org/comment/1388739/

Discussion: Fatigue management.

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2025

Hi @mylilbit, you mentioned that you are not on treatment. Are you doing watch and wait...

https://connect.mayoclinic.org/comment/853440/

Discussion: New to CLL-no treatment-what to eat?

Support Group: Blood Cancers & Disorders

Posted: May 2, 2023

I am getting night sweats on and off, have a few mouth sores, including an emerging...

https://connect.mayoclinic.org/comment/113597/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2017