Blood Cancers & Disorders Support Group

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Comments (634)

I am still intrigued with when all my symptoms started because a few days after my...

https://connect.mayoclinic.org/comment/1094497/

Discussion: Is possible to know how long ago I got CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

Hi @gg17, I assume you were prescribed cyclosporine to help manage chronic lymphocytic leukaemia and AIHA...

https://connect.mayoclinic.org/comment/326817/

Discussion: Cyclosporine and kidney issues

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2020

Rest assured your doctor will interpret everything so you can understand it. Just know that it’s...

https://connect.mayoclinic.org/comment/1011616/

Discussion: CLL - Blood work Completed IGVA Mutation Analysis

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

@loribmt - I have CLL /SLL diagnosis - will CT scan results give me a definitive...

https://connect.mayoclinic.org/comment/815277/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

Hello, my dad is newly diagnosed with cll with low grade too He has no symptoms...

https://connect.mayoclinic.org/comment/787079/

Discussion: Diagnosis of low grade lymphoma leukemia

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2022

I do not have CLL, but had a rash for 9 months that sounded identical to...

https://connect.mayoclinic.org/comment/865819/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

2 years ago I went to my PCP for a yearly physical (I was 53 at...

https://connect.mayoclinic.org/comment/1101774/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2024

Hi @Dani359, I hope I can offer you some information and reassurance about your diagnosis of...

https://connect.mayoclinic.org/comment/1042622/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

Hi @sue58. Welcome to Connect and thank for sharing your husband’s experience with CLL. It’s positive...

https://connect.mayoclinic.org/comment/1014920/

Discussion: CLL - Symptoms at Stage 0

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2024

Hi @tinagibson, it’s been quite a long time since we’ve chatted. I wanted to do a...

https://connect.mayoclinic.org/comment/942964/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

I was diagnosed with CLL 7 years ago at age 64 and have had semi annual...

https://connect.mayoclinic.org/comment/623087/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2021

Hi Colleen< br>Thank you for your response. Please note that my illness is CMML. The leukemias...

https://connect.mayoclinic.org/comment/101837/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 22, 2016

Yes, I have a chronic fatigue--which is what prompted me to see my doctor 3 years...

https://connect.mayoclinic.org/comment/806066/

Discussion: Newly Diagnosed CLL Patients: Do you struggle with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023

Yes. I started treatment this past March. It a targeted and immunotherapy combination treatment of daily...

https://connect.mayoclinic.org/comment/1086305/

Discussion: Anybody on Treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Welcome to the wonderful l world of CLL where we patiently engage in watchful waiting. I...

https://connect.mayoclinic.org/comment/1019871/

Discussion: CLL - Blood work Completed IGVA Mutation Analysis

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

I have CLL, diagnosed in 2015. This August in 2023 I developed a rash that covers...

https://connect.mayoclinic.org/comment/991067/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Jan 3, 2024

I’m actually CLL lymphoma not leukemia but 4 quadrants is both armpits both sides groin and...

https://connect.mayoclinic.org/comment/847324/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

So sorry @Nickyh38. I didn’t realize you were asking @bdhuel2001 the question. I responded to you...

https://connect.mayoclinic.org/comment/998103/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2024

I am 54 and have never smoked or used any drugs. I have worked in an...

https://connect.mayoclinic.org/comment/656671/

Discussion: CPAP (Phillips recall) and Cancer

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2021

hi stu. my name is al and i live in atlanta. i was diagnosed with cll...

https://connect.mayoclinic.org/comment/789436/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2022