Blood Cancers & Disorders Support Group

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Comments (229)

Hi Jacklyn, Oh, I understand now! I think you’re getting Venectoclax and Vidaza! They weren’t options...

https://connect.mayoclinic.org/comment/1346755/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2025

Thank you for the wonderful introduction and explanation for the End Game. As best I understand...

https://connect.mayoclinic.org/comment/1085092/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2024

Hello @encb27, My heart goes out to you and your mom as she goes through these...

https://connect.mayoclinic.org/comment/853713/

Discussion: Side effects of Vidaza injections

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

Hi Lori, Today we met with my father's doctor to go over his treatment plan. We...

https://connect.mayoclinic.org/comment/1065681/

Discussion: 75 year old father just diagnosed with AML

Support Group: Blood Cancers & Disorders

Posted: May 10, 2024

My husband was diagnosed with MDS 5q deletion in 2018. He is age 83 now and...

https://connect.mayoclinic.org/comment/1227456/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2025

Hello @beewoman70 and welcome to Mayo Connect. Your @name is intriguing…are you a beekeeper by any...

https://connect.mayoclinic.org/comment/932532/

Discussion: CMML vs CMUS

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2023

Good to see you are reaching out...this is a frustrating disease. The old axiom of there...

https://connect.mayoclinic.org/comment/1254878/

Discussion: AML: Let's connect and share what helps stay positive

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2025

@johnwhitley how come your GP hasn’t referred you to a hematologist/ Oncologist. You should. Be seeing...

https://connect.mayoclinic.org/comment/1436364/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2025

@loribmt After the hearing loss and the Vidaza injections stopped on day 3, we were sent...

https://connect.mayoclinic.org/comment/1433048/

Discussion: Has anyone had hearing loss after Azacitidine injections?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2025

Oh my goodness, your mom is 106 years young?? That’s amazing. I hope she’s still doing...

https://connect.mayoclinic.org/comment/1328243/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

Hi @statmatics, If Rachel’s CBC numbers have been consistently false for 18 months, one would expect...

https://connect.mayoclinic.org/comment/1350684/

Discussion: Can Blood Counting Machines Be Wrong?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2025

Hi @nylechojnacki. Welcome to Connect! Goodness, a hemoglobin of 3.1. You were running on empty! I’m...

https://connect.mayoclinic.org/comment/1172526/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

Good morning, Ryan. I’d been wondering how your dad’s treatment plan was developing. I think the...

https://connect.mayoclinic.org/comment/1065868/

Discussion: 75 year old father just diagnosed with AML

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

I’m not really able to give you much guidance as to your type of MDS and...

https://connect.mayoclinic.org/comment/1085200/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2024

@loribmt Hi Lori. I was diagnosed with AML recently. It progressed from MDS which I had...

https://connect.mayoclinic.org/comment/1484798/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 17 12:42pm

Hi @oliviamitza Welcome to Mayo Connect. I’m so sorry to hear that your mom’s blood condition...

https://connect.mayoclinic.org/comment/1505453/

Discussion: Polycythemia Vera: What is next when treatment stops working?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 9:32am

Hi Maverick, Welcome to Connect. Here’s the beauty of this amazing forum. There are many of...

https://connect.mayoclinic.org/comment/1258078/

Discussion: Newly diagnosed with AML (FTL3 TKD)

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2025

Not sure if this is the place to write a follow up note. I have written...

https://connect.mayoclinic.org/comment/194314/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2019

Welcome to Connect, @oldestmisstee. I know this is a challenging time for your mom, you and...

https://connect.mayoclinic.org/comment/1250973/

Discussion: Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

Hi, Lori: My story began one year ago on Jan. 25th, a year to the day...

https://connect.mayoclinic.org/comment/335080/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Feb 15, 2021

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