Blood Cancers & Disorders Support Group

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Comments (1,465)

I was diagnosed with IgA Kappa Free Light Chain MGUS 8 years ago (70 yo woman)....

https://connect.mayoclinic.org/comment/1144510/

Discussion: Free light chain ratio in MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 20 10:18am

I am 70 and my MGUS started 8 years ago. There is a lot of research...

https://connect.mayoclinic.org/comment/1156236/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 13 8:12am

Because I am IgM, the doctors think it is most likely that my PN is due...

https://connect.mayoclinic.org/comment/836474/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Colleen, Thank you very much for your information and request from other MGUS members. 😊

https://connect.mayoclinic.org/comment/770469/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

I was diagnosed with MGUS almost 3 years ago. I had shingles May of 2023 despite...

https://connect.mayoclinic.org/comment/1036339/

Discussion: MGUS and Shingles

Support Group: Blood Cancers & Disorders

Posted: Mar 19 8:33am

I was recently diagnosed with MGUS (IgG lambda) while being tested for other things. After having...

https://connect.mayoclinic.org/comment/865575/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

Hi @kitkat1070 Welcome to Mayo Clinic Connect where you’ll find you’re not alone in this new...

https://connect.mayoclinic.org/comment/812844/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2023

@dianegrant I don't believe you should donate blood with MGUS or any blood related condition. Have...

https://connect.mayoclinic.org/comment/849463/

Discussion: Blood Donor: Is it safe to donate blood if you have a blood condition?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2023

I have neuropathy in both feet now after 19 years of very slowly progressing (grateful) IgGkappa...

https://connect.mayoclinic.org/comment/1051015/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 15 8:14am

@beckyjochilson I responded to your other post, under MGUS with Bone Pain https://connect.mayoclinic.org/discussion/mgus-with-bone-pain/?pg=4#comment-1012611. Can you keep...

https://connect.mayoclinic.org/comment/1012615/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 9 1:31pm

I have a new diagnosis of MGUS. I do not have neuropathy just pain at my...

https://connect.mayoclinic.org/comment/898143/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

Welcome to this MGUS group, @award. I was first diagnosed with IgM kappa MGUS eight years...

https://connect.mayoclinic.org/comment/959023/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

I’m so sorry that happened but it got you an early diagnosis-somewhat similarly, I fractured 2...

https://connect.mayoclinic.org/comment/898146/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

I am struggling to cope with the fact that we both now have MGUS. I did...

https://connect.mayoclinic.org/comment/958950/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

I was dx with MGUS in 11/22 It was discovered wheh recovering from extensive back surgery....

https://connect.mayoclinic.org/comment/828720/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2023

Hi All. I am learning so much about MGUS/SMM/MM through this discussion group. Many thanks to...

https://connect.mayoclinic.org/comment/836309/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

I was told by my doctor that the disease WILL progress in everyone at some point,...

https://connect.mayoclinic.org/comment/930707/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

Thank you so much Lori. Obviously I’m scared to have the biopsy so wanted to see...

https://connect.mayoclinic.org/comment/889956/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Thanks for your comments. I was diagnosed with MGUS in 2014 ,then CLL and APL had...

https://connect.mayoclinic.org/comment/794602/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2023

@cctoo, it would be interesting to ask your doctor about the possible relationship between Monoclonal gammopathy...

https://connect.mayoclinic.org/comment/74612/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2020