Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

854 total results

Comments (771)

No wonder you’re concerned about the return of PG on your face. You’ve been through a...

https://connect.mayoclinic.org/comment/1077042/

Discussion: What is the prognosis of living with CLL beyond 20 years?

Support Group: Blood Cancers & Disorders

Posted: May 29, 2024

@virb I started having bone pain in arms and legs two days ago. Is anyone else...

https://connect.mayoclinic.org/comment/1007130/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2024

Have you been tested for leukemia ? Are your white blood cells high? Just curious. I...

https://connect.mayoclinic.org/comment/895453/

Discussion: Overwhelmed- diagnosed with Thrombocytosis & Leukocytosis

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

The study used EGCG and Vitamin D3. That's what I've been taking for 8 years and...

https://connect.mayoclinic.org/comment/335869/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2021

Dear Adriano, I'm newly diagnosed with CLL in March. How have you been managing the fatigue...

https://connect.mayoclinic.org/comment/165752/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2018

One post gave me perspective on CLL and I hope the poster pops up again in...

https://connect.mayoclinic.org/comment/1269854/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 30 8:10am

Hello @pokeyspride2002 (Mary). This is a great question that I think it is relevant for many...

https://connect.mayoclinic.org/comment/198804/

Discussion: CLL: Chemotherapy and its affect on my immune system

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2018

Is there a list of CLL side effects that I can access? I have had CLL...

https://connect.mayoclinic.org/comment/695423/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2022

Hi @mygirl, Welcome to Connect. If you were just recently diagnosed with CLL I would guess...

https://connect.mayoclinic.org/comment/1312061/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 24 3:48pm

@mumzie, your post inspired me to do some quick searching about green tea extract for CLL...

https://connect.mayoclinic.org/comment/165762/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2018

I realize you were recently diagnosed with CLL just a few months ago. Even though your...

https://connect.mayoclinic.org/comment/1318398/

Discussion: Newly Diagonised CLL in March

Support Group: Blood Cancers & Disorders

Posted: Jun 2 8:27am

Is the swollen nodes a part of cll? So far I have not notice any with...

https://connect.mayoclinic.org/comment/848427/

Discussion: CLL with lambda monoclonal gammopathy

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

hi @normahorn. I’m not seeing any reference to a dermatologist in this discussion on CLL and...

https://connect.mayoclinic.org/comment/853679/

Discussion: New to CLL-no treatment-what to eat?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

Hello I have just been diagnosed with CLL and would like to see posy on that...

https://connect.mayoclinic.org/comment/1269543/

Discussion: Up to date info

Support Group: Blood Cancers & Disorders

Posted: Mar 29 4:07pm

Better to follow up and know what's actually going on than to sit and worry. As...

https://connect.mayoclinic.org/comment/1190402/

Discussion: Chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2024

Eight years with CLL and it has not impacted my life style. I get simi annual...

https://connect.mayoclinic.org/comment/735618/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2022

@mysticfish5252, I add my belated welcome. Does your oncologist/hematologist recommend which vitamins to take? Were you...

https://connect.mayoclinic.org/comment/1322541/

Discussion: Anyone else experiencing these symptoms with CLL diagnosis....?

Support Group: Blood Cancers & Disorders

Posted: Jun 7 8:01pm

Smudge cells are exactly that—cells that were destroyed during the collection or preparing of the blood...

https://connect.mayoclinic.org/comment/736587/

Discussion: What are Smudge Cells? Do they indicate CLL?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2022

So beautifully written, thank you, it reached me today! Just came back from Moffit yesterday and...

https://connect.mayoclinic.org/comment/1050063/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2024

Hi Lori, I am taking a pill for my CLL now. It is CALQUENCE so far...

https://connect.mayoclinic.org/comment/594277/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2021