Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

706 total results

Comments (634)

You might be interested in this older discussion with members who have CLL and were curious...

https://connect.mayoclinic.org/comment/1176707/

Discussion: CLL Watch and Wait: Can supplements and diet help?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

Hello @pebbles, I'd like to invite some members who have been diagnosed with CLL for some...

https://connect.mayoclinic.org/comment/238059/

Discussion: CLL - Referral to CLL Specialist

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2019

Hi guys - I'm Bob, an over 4 year carrier of CLL. Yesterday I gave up...

https://connect.mayoclinic.org/comment/603866/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2021

Hello @coralbells1 As I'm not familiar with this disorder, I looked it up on Mayo Clinic's...

https://connect.mayoclinic.org/comment/324274/

Discussion: What causes Neutropenia?

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2020

I'm 58 and was diagnosed with CLL about 6 months ago. The WBC and HGC counts...

https://connect.mayoclinic.org/comment/1112465/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2024

I’ve had a CLL for greater than 14 years without symptoms, but increasing WBC and decreasing...

https://connect.mayoclinic.org/comment/304662/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2020

A friend of mine has CLL and has had it for a few years. He is...

https://connect.mayoclinic.org/comment/1201704/

Discussion: Chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: Jan 1 10:49am

As a 78 year old woman, I would not want this type of information kept from...

https://connect.mayoclinic.org/comment/1178641/

Discussion: Chronic Phase CML in 72 years elderly

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

Chronic lymphocytic leukemia (also called CLL) is a cancer of the blood and bone marrow. Read...

https://connect.mayoclinic.org/comment/866629/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: May 25, 2023

What made the doctor invesitgate? I have been diagnosed with CLL and SLL not really understanding...

https://connect.mayoclinic.org/comment/813968/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2023

I don’t know what to think my blood came back with CLL Now my doc is...

https://connect.mayoclinic.org/comment/957315/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2023

@normahorn Thats good! I have no nightsweats; im feeling well ; i would have never known...

https://connect.mayoclinic.org/comment/843747/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2023

I have been on Hydroxyurea for 5.5 years with virtually no side effects (other than my...

https://connect.mayoclinic.org/comment/947310/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2023

Hi @tina, It’s been quite a while since we’ve chatted. I hope ‘no news is good...

https://connect.mayoclinic.org/comment/1056387/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

@kellim, the article was very helpful. Were you able to determine whether the itching you're experiencing...

https://connect.mayoclinic.org/comment/962491/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

@ssid, you mentioned quite some time ago that you were going to begin treatment for your...

https://connect.mayoclinic.org/comment/165740/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2018

Hello Kellim. My understanding is that Mayo suggests 2 cups green tea per day based on...

https://connect.mayoclinic.org/comment/789997/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

I have CLL I am taking ACYCLOVIR 400mg. Q12 H and CALQUENCE. 100mg. Q12 H. Should...

https://connect.mayoclinic.org/comment/1011541/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

I was on a 2007 Mayo study of green tea (high dose EGCG) for CLL. Results...

https://connect.mayoclinic.org/comment/772606/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2022

Have you been tested for Allergic Contact Dermatitis, ACD? Google the 5 Day Extended Patch Test....

https://connect.mayoclinic.org/comment/959339/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023