Blood Cancers & Disorders Support Group

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Comments (2,234)

Thank you all for the responses and experiences. I have not found a surgeon who is...

https://connect.mayoclinic.org/comment/1517908/

Discussion: Any concerns if you have MGUS and need joint replacement surgery?

Support Group: Blood Cancers & Disorders

Posted: Mar 2 12:49pm

I'm 69 and was diagnosed with IgA light chain kappa MGUS 8 years ago. My kappa/lambda...

https://connect.mayoclinic.org/comment/1038722/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2024

Angie, I'm 66, diagnosed with IgA Kappa MGUS 2/15/23, husband died of Multiple Myeloma 7/24/22. Mine...

https://connect.mayoclinic.org/comment/1053450/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

how do I get on the MGUS support group board???

https://connect.mayoclinic.org/comment/73352/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2016

Recently diagnosed with MGUS and need advice.....physicians, nutrition, etc.

https://connect.mayoclinic.org/comment/74533/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2012

Hello Harley, I’m glad you joined the discussion. I’m learning a lot about MGUS from our...

https://connect.mayoclinic.org/comment/912845/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Mayo Clinic currently lists 10 clinical trials related to MGUS. Some are no longer recruiting participants....

https://connect.mayoclinic.org/comment/1197563/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2024

Yes, I am past that half century mark as well, and try to stay active, but...

https://connect.mayoclinic.org/comment/991022/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

Reading other posts reminded me that MGUS has also given me peripheral neuropathy in more recent...

https://connect.mayoclinic.org/comment/960817/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2023

I am newly diagnosed with SMM('26) (was IGG Kappa MGUS '20)and wanted to get an idea...

https://connect.mayoclinic.org/comment/1550416/

Discussion: Smoldering Multiple Myeloma SMM Bloodwork numbers

Support Group: Blood Cancers & Disorders

Posted: Apr 14 12:03pm

I was diagnosed with Sjogren’s over 15 years ago. Two and a half years ago I...

https://connect.mayoclinic.org/comment/1337283/

Discussion: Sjogren’s and MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2025

I had read somewhere here that it is wise for those with MGUS to consult with...

https://connect.mayoclinic.org/comment/950746/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2023

Or even a third or fourth I have MGUS with many symptoms. Some doctors say it's...

https://connect.mayoclinic.org/comment/864580/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2023

@amyboylan1, for others reading here, I'd also like to insert a link to another discussion you...

https://connect.mayoclinic.org/comment/1179772/

Discussion: Can being over normal BMI weight cause MGUS to progress faster?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

How are you/ have you being treated for MGUS and/or the associated neuropathy?

https://connect.mayoclinic.org/comment/1100959/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

Hi @baselmona, have you also been recently diagnosed with MGUS?

https://connect.mayoclinic.org/comment/1001347/

Discussion: Multiple myeloma: When to treat? When not to treat?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2024

My MGUS was found through routine blood work (August 2022) Quest Lab suggested 2 more tests...

https://connect.mayoclinic.org/comment/863735/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2023

I’ve had MGUS since 2015: long before covid. Subsequently I had two Modernas, then three Moderna...

https://connect.mayoclinic.org/comment/780087/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2022

Sounds like our treatments for MGUS are very similar. I watch the IGM levels increase to...

https://connect.mayoclinic.org/comment/1100292/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

I was diagnosed with MGUS after having severe back pain from a thoracic vertebral compression fracture...

https://connect.mayoclinic.org/comment/1068531/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: May 15, 2024