Blood Cancers & Disorders: Discussions | Page 10

New subject. I have Polycythemia Vera not sure how long however I noticed my cells were...

https://connect.mayoclinic.org/comment/1126243/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 18 3:12pm

I have had Polycythemia Vera (PV) for 6 years now. No other symptoms before diagnose other...

https://connect.mayoclinic.org/comment/1031426/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 4:29am

Wow that is an extremely high amount to start on but I can only assume it...

https://connect.mayoclinic.org/comment/1065766/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 11 5:31am

@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....

https://connect.mayoclinic.org/comment/719785/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Hello @sap21981 Welcome to Mayo Connect. I’m sure you’re in panic mode right now! Being a...

https://connect.mayoclinic.org/comment/886233/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

mlm0601, I have had little or no effects from taking Hydroxyurea (Hydrea) for 6 years now....

https://connect.mayoclinic.org/comment/1052803/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Apr 18 4:29am

I lived a completely normal confident life before this. I was great. I definitely know that...

https://connect.mayoclinic.org/comment/858897/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023

Hi @seamus1010 I found an article on Healthtap.com with the same question you have…Is it safe...

https://connect.mayoclinic.org/comment/825949/

Discussion: Is it safe to have a tattoo if you have Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Robyn Scherber, MD - Living with an MPN Sept. 12, 2019 - Polycythemia Vera Disease Progression...

https://connect.mayoclinic.org/comment/807931/

Discussion: Possible Polycythemia Tinnitus, Dizziness, Headache, Fatigue

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

rmegg @rmegg while my first phlebotomy help; numbers were 300 down from 700, short time. I...

https://connect.mayoclinic.org/comment/816259/

Discussion: polycythemia vera: Rusfertide in stage 3 research: Any info?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

Hi @robinll. With PV (Polycytmenia Vera) it is generally the red blood count that is elevated,...

https://connect.mayoclinic.org/comment/1144372/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Sep 20 7:36am

@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...

https://connect.mayoclinic.org/comment/231785/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2019

Hi. I also was diagnosed with polycythemia Vera JAK2. 2 years ago. I have never done...

https://connect.mayoclinic.org/comment/1013924/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 11 5:22pm

First time joining a group here used mayo for research but now ...Im recently placed in...

https://connect.mayoclinic.org/comment/879738/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Hello @itsmepeggysue, welcome to Connect. It’s a mixed welcome because I’m happy you found us, though...

https://connect.mayoclinic.org/comment/840508/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Welcome to Connect, @wesm. Polycythemia Vera is a condition where your body is producing too many...

https://connect.mayoclinic.org/comment/1094588/

Discussion: I was diagnosed with Polycythemia vera last Sept. Is pain normal?

Support Group: Blood Cancers & Disorders

Posted: Jun 26 11:40am

Good morning lindagualtieri. I am from Kentucky. I have had Polycythemia Vera (PV) for 6 years...

https://connect.mayoclinic.org/comment/1148497/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 28 6:56am

I don’t have EV, but I can give you first hand knowledge regarding hydroxyurea..I was diagnosed...

https://connect.mayoclinic.org/comment/784473/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2022

Hi @ettap, this post was years ago but curious how things are going now? If I'm...

https://connect.mayoclinic.org/comment/919567/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Hello @cgpak, I can understand your wanting to know about the experience of others with ET....

https://connect.mayoclinic.org/comment/337139/

Discussion: Spleen involvement in ET

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2021

Blood Cancers & Disorders Support Group