Blood Cancers & Disorders Support Group

@sonieaml The SRSF2 gene us a splicing gene normally associated with MDS. The JAK2 gene is...

https://connect.mayoclinic.org/comment/1551390/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 15 4:14pm

I've just been diagnosed with MDS. Is skin itching part of MDS?

https://connect.mayoclinic.org/comment/1527273/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Mar 15 8:48am

Hi @jps01, you might also find these related discussions helpful: - Myelodysplastic syndromes (MDS): When do...

https://connect.mayoclinic.org/comment/901509/

Discussion: MDS: How to improve my condition in watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2023

Hi @twitt1949 Just popping into the conversation regarding your diagnosis of myelodyplastic syndromes (MDS). Myelodysplastic syndromes...

https://connect.mayoclinic.org/comment/1523979/

Discussion: Anyone experienced constipation or acid reflux taking Hydrea?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 12:22pm

Also medication azacytadine quite common for MDs Either shot in abdomen or iv infusion

https://connect.mayoclinic.org/comment/1556397/

Discussion: MDS and walking.

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

@randman Ok sounds good. Just for my own information, what does the Pet scan tell the...

https://connect.mayoclinic.org/comment/1533470/

Discussion: Can I drive home (3 hours) after a PET scan? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 23 10:15am

I was diagnosed with MDS in 2021 and they changed it to MF in 2025. Just...

https://connect.mayoclinic.org/comment/1550973/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 15 8:32am

@corvairfan and @tyson1221, here are a few additional discussions on MDS that you may also be...

https://connect.mayoclinic.org/comment/811058/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2023

@asarnesejr, here is a listing of all the discussions in the group related to MDS: https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=MDS&index=discussions...

https://connect.mayoclinic.org/comment/1453019/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

I was diagnosed with MDS low to mid-range in October 2023. By April 9th, I had...

https://connect.mayoclinic.org/comment/1554703/

Discussion: MDS and walking.

Support Group: Blood Cancers & Disorders

Posted: 4 days ago

I recieved a diagnosis of MDS from a BMByopsy about 3 yrs ago after my platlets...

https://connect.mayoclinic.org/comment/1557608/

Discussion: MDS and walking.

Support Group: Blood Cancers & Disorders

Posted: 22 hours ago

@gabuckeye99, are you having further testing to confirm the diagnosis of a myelodysplastic syndrome (MDS)? How...

https://connect.mayoclinic.org/comment/1536746/

Discussion: Anyone dealing with MDS?

Support Group: Blood Cancers & Disorders

Posted: Mar 27 3:22pm

Hello @anne8185, welcome to Connect. I am not familiar with VEXAS so as you can see...

https://connect.mayoclinic.org/comment/996534/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Welcome to Connect @suetex There are several members in the forum who also have MDS. I’ve...

https://connect.mayoclinic.org/comment/1014244/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

Hello @donnamae90. Unfortunately, fatigue can be a side effect of MDS if there is a decrease...

https://connect.mayoclinic.org/comment/1192846/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

Hi @marcyjo, Welcome to Mayo Clinic Connect. I’m happy you found us. There are several discussions...

https://connect.mayoclinic.org/comment/801182/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

@twitt1949, I moved your question about MDS and skin itching to this existing discussion where you...

https://connect.mayoclinic.org/comment/1527691/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Mar 15 4:10pm

Hi @nbert and welcome to Connect. It’s nice to have the option for propofol with the...

https://connect.mayoclinic.org/comment/1150075/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2024

Are you seeing a MDS specialist? Anemia with MDS is not caused by an iron deficiency.

https://connect.mayoclinic.org/comment/1001814/

Discussion: Anyone take an iron supplement for low red blood cell count?

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2024

@jeffreykassover1, I moved your question to this existing discussion: - What are your experiences with lenalidomide...

https://connect.mayoclinic.org/comment/1277345/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2025