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Comments (486)
@joaniech2004 I have Myelofibrosis. I had the horrible itching prior to being diagnosed with Myelofibrosis. Unbelievable...
https://connect.mayoclinic.org/comment/1537708/
@twitt1949, I moved your question about MDS and skin itching to this existing discussion where you...
https://connect.mayoclinic.org/comment/1527691/
@mj50 Thank you. Unfortunately, Hyroxyzine had no effect on me, at higher doses as well. VONJO...
https://connect.mayoclinic.org/comment/1528848/
@jerrlin tryCeravie for dry itching skin. It works ☺️
https://connect.mayoclinic.org/comment/1537950/
I've just been diagnosed with MDS. Is skin itching part of MDS?
https://connect.mayoclinic.org/comment/1527273/
@mrb2491 Oh gosh, that itching is so horrible and truly, I’m sorry you’re not finding much...
https://connect.mayoclinic.org/comment/1524134/
Hi @mrb2491 While you’re waiting for a reply from @cindylb I just wanted to welcome you...
https://connect.mayoclinic.org/comment/1523965/
@joaniech2004 It sounds like you and I had similarities in our journey to MF. I'm sorry...
https://connect.mayoclinic.org/comment/1538540/
Here are some related discussions: - PV Itching Not After Bathing https://connect.mayoclinic.org/discussion/pv-itching-not-after-bathing/ - PV: terrible itching...
https://connect.mayoclinic.org/comment/1372593/
Not sure if I'm putting this in the right place. I was officially diagnosed with CTCL...
https://connect.mayoclinic.org/comment/1537558/
I had horrible thorax itching years before being diagnosed with Myelofibrosis. No specialist could determine the...
https://connect.mayoclinic.org/comment/875274/
@hippiemon It sure seems like a fight to get diagnosed. Glad it got sorted out for...
https://connect.mayoclinic.org/comment/1515699/
This type of itching is poorly responsive to antihistamines because the itching is not due to...
https://connect.mayoclinic.org/comment/1429878/
On Revlimid for over 4 years and have had minor rashes or itching skin. I have...
https://connect.mayoclinic.org/comment/1521105/
Yes. I have Myelofibrosis “and” Erdheim Chester Disease, and the first sign - although no doctor...
https://connect.mayoclinic.org/comment/1511367/
@heimbca Yes, that’s Jakafi. Not for everyone. Wasn’t for me. Felt like it was killing me....
https://connect.mayoclinic.org/comment/1503650/
@carolgk I feel for you. Itching is maybe worse than pain.
https://connect.mayoclinic.org/comment/1512015/
Itching and fatigue, very dull headaches.I just started Hydroxy a year ago. Still working with adjusting....
https://connect.mayoclinic.org/comment/1007607/
@carolgk Good morning? Thank you for mentioning Vonjo. I will ask my oncologist about it. I...
https://connect.mayoclinic.org/comment/1537693/
Family member has PV. She has itching too. I read that extra warm showers encourage itching....
https://connect.mayoclinic.org/comment/870729/
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