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Bladder Cancer Support Group

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Cytology: High-grade urothelial carcinoma to atypical sqamous cells
Hello everyone,My wife had cytology tests, cytoscopies and a CT urogram. Carcinoma cells were found in the urine but not yet the source.In particular, three...
Support Group: Bladder Cancer
Last active: Aug 8, 2025
Discussion
Effect of interruption of Gem/Doce maintenance
I want go overseas for a month in June, which would mean missing one of my planned 12 Gem/Doce maintenance treatments. Has anyone interrupted their...
Support Group: Bladder Cancer
Last active: Apr 3 8:15am
Discussion
Scheduled for cystectomy with ileal conduit: What can I expect?
85 yo man, good health, have a T1 high grade urothelial malignancy, not muscle invasive. Had 2 TURBT, no chemo. Scheduled for open cystectomy with...
Support Group: Bladder Cancer
Last active: May 22 9:26am
Discussion
Post-nephroureterectomy for UTUC - now abnormal bladder cells
I was diagnosed with high grade, muscle invasive Upper Tract Urothelial Carcinoma a year ago. After 12 cycles of Gemcitabin/Cisplatin, the right kidney, urether, bladder...
Support Group: Bladder Cancer
Last active: Dec 21, 2025
Discussion
ddMVAC neoadjuvant, has anyone experienced this type of chemotherapy ?
My husband has T2 with mixed histology, mostly urothelial cancer cells, about 40% adrenal cancer cells and 5% trophoblastic. TURBT removed 6cm CIS multifocal tumor...
Support Group: Bladder Cancer
Last active: Jul 14, 2025
Discussion
Bladder cancer spreading and looking for options next steps.
My wife was diagnosed with bladder cancer in early 2025. Due to heart issues and age, surgical procedures were not viable. She completed a full...
Support Group: Bladder Cancer
Last active: Jan 13 3:06pm
Discussion
Encrusted Stent, Low Grade tumour Uterer & Kidney
My Sister was diagnosed in 2020 with High Grade Urothelial with Lamina Propria Invasion and CIS stage pT1 which was removed in Sept 2020, follow...
Support Group: Bladder Cancer
Last active: Aug 15, 2025
Discussion
Small cell carcinoma of the bladder (SCCB): anyone else?
In April 2020, in my 50’s, I had a TURBT performed and the tumor (6cm) removed. Pathology revealed 95% small cell urothelial carcinoma and 5%...
Support Group: Bladder Cancer
Last active: Feb 26, 2024
Discussion
Anyone have recurrence after the initial 6 BCG induction treatments?
I was diagnosed in Feb 2025 with High Grade Papillary Urothelial Carcinoma, stage Ta. It was a large tumor that was found. It took 3...
Support Group: Bladder Cancer
Last active: Oct 19, 2025
Discussion
Looking to connect with people who had Cystectomy & Neobladder
Hi, I am a 63 year old physically fit male. I would like to talk with similar patients who have has cystectomy and neo bladder...
Support Group: Bladder Cancer
Last active: 6 days ago