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Bladder Cancer Support Group

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Post-nephroureterectomy for UTUC - now abnormal bladder cells
I was diagnosed with high grade, muscle invasive Upper Tract Urothelial Carcinoma a year ago. After 12 cycles of Gemcitabin/Cisplatin, the right kidney, urether, bladder...
Support Group: Bladder Cancer
Last active: Dec 21, 2025
Discussion
ddMVAC neoadjuvant, has anyone experienced this type of chemotherapy ?
My husband has T2 with mixed histology, mostly urothelial cancer cells, about 40% adrenal cancer cells and 5% trophoblastic. TURBT removed 6cm CIS multifocal tumor...
Support Group: Bladder Cancer
Last active: Jul 14, 2025
Discussion
Encrusted Stent, Low Grade tumour Uterer & Kidney
My Sister was diagnosed in 2020 with High Grade Urothelial with Lamina Propria Invasion and CIS stage pT1 which was removed in Sept 2020, follow...
Support Group: Bladder Cancer
Last active: Aug 15, 2025
Discussion
Jelmyto in my future
Hello everyone. I was diagnosed with UTUC (upper tract urothelial carcinoma) in 2022. It was staged at low grade non invasive. My first urologist wanted...
Support Group: Bladder Cancer
Last active: 6 days ago
Discussion
Anyone have recurrence after the initial 6 BCG induction treatments?
I was diagnosed in Feb 2025 with High Grade Papillary Urothelial Carcinoma, stage Ta. It was a large tumor that was found. It took 3...
Support Group: Bladder Cancer
Last active: Oct 19, 2025
Discussion
Anyone dealing with recurring UTIs and bladder cancer? Concerned
I have bladder cancer that has not spread to muscle. I'm 77, diabetic with one kidney already lost due to urothelial cancer, and scarring in...
Support Group: Bladder Cancer
Last active: Mar 2 6:48am
Discussion
Small cell carcinoma of the bladder (SCCB): anyone else?
In April 2020, in my 50’s, I had a TURBT performed and the tumor (6cm) removed. Pathology revealed 95% small cell urothelial carcinoma and 5%...
Support Group: Bladder Cancer
Last active: Feb 26, 2024
Discussion
Looking to connect with people who had Cystectomy & Neobladder
Hi, I am a 63 year old physically fit male. I would like to talk with similar patients who have has cystectomy and neo bladder...
Support Group: Bladder Cancer
Last active: Jul 30, 2024
Discussion
Stage IV UTUC / EV-Pembro / Nephroureterectomy: Advice For Caregivers?
Hi everyone,My otherwise vibrant and independent 80 year old mother was recently diagnosed with Stage IV (cTX, cN2, cM0) urothelial carcinoma of the left renal...
Support Group: Bladder Cancer
Last active: Jul 10, 2025
Discussion
After 6 BCG treatments, biopsy is good: What is chance of recurrence?
Have papillarry uothelial carcinoma , high grade, had 6 treatmentsof BCG over 6 weeks, two month later had biopsy, result looks "good", chance of cancer...
Support Group: Bladder Cancer
Last active: Mar 28, 2025