Support Groups

Bladder Cancer Support Group

Lock icon Public Support Group
Clear Search
1,238 total results
Discussions (88)
Gemzar vs BCG: How is it decided which you get?
Does anyone know why some drs use BCG and others use Gemzar? I have non invasive BC, intermediate riskThank you
Support Group: Bladder Cancer
Last active: Mar 13 6:22pm
Recurrent tumor after BCG: Was Docetaxel added to Gemcitabine for you?
HelloI have NMI Bladder Cancer High Grade with 2 tumor resections so far. Started BCG induction and had recurrent tumor. I am reviewing options for...
Support Group: Bladder Cancer
Last active: Apr 23 12:12pm
What treatments seem best for spasms after last BCG treatments?
I have had the initial BCG treatments (6) followed by a cycle of three and three more before being cleared of no cancer in the...
Support Group: Bladder Cancer
Last active: Jan 18 12:31am
Anyone have recurrence after the initial 6 BCG induction treatments?
I was diagnosed in Feb 2025 with High Grade Papillary Urothelial Carcinoma, stage Ta. It was a large tumor that was found. It took 3...
Support Group: Bladder Cancer
Last active: Oct 19, 2025
Urinary pain after having prostate seeds and radiation after BCG
Unfortunately 16 years ago I had radiation and seed implants for prostate surgery. Now with bladder cancer and getting BCG treatment I have continual urinary...
Support Group: Bladder Cancer
Last active: Jan 19, 2025
Did anyone stop BCG treatments after severe spasms and urination?
My 6 weeks of BCG were not problematic. But the third week of maintenance was sheer hell—-extreme pain from bladder spasms every ten minutes followed...
Support Group: Bladder Cancer
Last active: Jan 18 5:37pm
After 6 BCG treatments, biopsy is good: What is chance of recurrence?
Have papillarry uothelial carcinoma , high grade, had 6 treatmentsof BCG over 6 weeks, two month later had biopsy, result looks "good", chance of cancer...
Support Group: Bladder Cancer
Last active: Mar 28, 2025
How can I safely dispose urine following BCG with a septic tank?
Hello, I will be receiving BCG treatment shortly. I have a septic system on my property. Question is where can I safely dispose of contaminated...
Support Group: Bladder Cancer
Last active: 5 days ago
What side effects did you have BCG bladder cancer treatment?
Has anyone received BCG bladder treatment, what were your side effects
Support Group: Bladder Cancer
Last active: 5 days ago
BCG treatment done, but cystoscopy found new tumor: What next?
Hello all! After the first 6-week session of BCG treatment, I had a cystoscopy, and new tumors were found. I now have to undergo another...
Support Group: Bladder Cancer
Last active: Nov 19, 2025
Which treatment path to choose? Wait & monitor vs chemo or BCG?
I just had my first tumor removed. Non invasive low grade. Intermediate risk. My doctor wanted to play it safe and scrapped the muscle wall...
Support Group: Bladder Cancer
Last active: Jan 26, 2025
What helps to manage spasms and ureter pain while using BCG?
What have any of you found to be effective in managing the spasms and ureter pain while using BCG applications? I just finished my second...
Support Group: Bladder Cancer
Last active: Jun 7 11:07am
BCG Side Effects: my toughest side effect is lower back pain
I’m currently in my 5th week of BCG treatment. I’m experiencing numerous side effects, which I was expecting, and a few that I wasn’t.Presently my...
Support Group: Bladder Cancer
Last active: Jun 14, 2025
What activities can I do after Bacillus Calmette-Guerin (BCG)?
I want to know if i can mow my lawn with a self propelled lawn mower? I just feel worthless with nothing much to do.
Support Group: Bladder Cancer
Last active: Jun 6, 2023
How many of you are getting the VLAR Labs Vesta test prior to BCG?
I am reading that while BCG is the gold standard for NMIBC it is only 40% effective for the masses. I learned of this testing...
Support Group: Bladder Cancer
Last active: Jun 23 4:06pm
BCG follow up: All in all I am doing well 5 years in.
I had my first six and my follow up three infusions. Yesterday the doctor decided to operate to fully examine my bladder. He did find...
Support Group: Bladder Cancer
Last active: Oct 30, 2025
Anyone had treatment with mitomycin (Zusduri)?
Has anyone had treatment using Mitomycin? Is it similar to BCG? I have non-invasive low grade bladder cancer that hasn't responded to BCG or GemDose.Thank...
Support Group: Bladder Cancer
Last active: 5 days ago
2nd TURBT
My husband NMIBC: T1, high grade papilliary and a CIS tumor. His urologist did not recommend a 2nd TURBT. I found out about it by...
Support Group: Bladder Cancer
Last active: Jul 17 10:41am
Uncontrolled incontinence
I have uncontrolled incontinence as a result of having had six BCG treatments. My urologist told me this will be transitory but it has been...
Support Group: Bladder Cancer
Last active: 9 hours ago