Bladder Cancer Support Group

I have mucin producing urothelial adenocarcinoma of the prostatic urethra with Mets. Preparing for round 3 of FOLFOX. Does anyone have any experience or knowledge...

I don't know where to start. I want to help my friend Dale who recently got dx'd w this. I'm a critical care nurse. He...

I am a 73 year old man that was just diagnosed with a very rare high grade urothelial carinoma of the bladder with plasmacytoid variant....

Looking for someone who is/has gone through HGUCC of the renal pelvis willing to share your experience, treatments, etc. Basically similar to high-grade bladder cancer...

Diagnosed with non muscle invasive lowgrade UTUC. Have had three tumors ablated over the course of 1 1/2 years. Time to try Jelmyto?

I've been diagnosed with rare kidney cancer. Urothelial carcinoma with predominant (80%) squamous differentiation of my kidney. Kidney was removed last week. Stage is T3....

In March of 2023, I was diagnosed with urothelial carcinoma, MICU, with metastasis to both lungs. Since then I have been treated with cis/gem; (chemo)...

I have been diagnosed with a low-grade carcinoma tumor in my right ureter. Rather than a lifetime of ablation and uteroscopy treatments, I have opted...

My husband is 63 yrs old and has had blood in his urine since September….it has been on and off. He told me about it...

Hi!Im a female early 60's, who is new to this group. Very grateful to have this group. Challenging to find this support for bladder cancer.My...

Hello everyone,My wife had cytology tests, cytoscopies and a CT urogram. Carcinoma cells were found in the urine but not yet the source.In particular, three...

I want go overseas for a month in June, which would mean missing one of my planned 12 Gem/Doce maintenance treatments. Has anyone interrupted their...

85 yo man, good health, have a T1 high grade urothelial malignancy, not muscle invasive. Had 2 TURBT, no chemo. Scheduled for open cystectomy with...

I was diagnosed with high grade, muscle invasive Upper Tract Urothelial Carcinoma a year ago. After 12 cycles of Gemcitabin/Cisplatin, the right kidney, urether, bladder...

My husband has T2 with mixed histology, mostly urothelial cancer cells, about 40% adrenal cancer cells and 5% trophoblastic. TURBT removed 6cm CIS multifocal tumor...

My wife was diagnosed with bladder cancer in early 2025. Due to heart issues and age, surgical procedures were not viable. She completed a full...

My Sister was diagnosed in 2020 with High Grade Urothelial with Lamina Propria Invasion and CIS stage pT1 which was removed in Sept 2020, follow...

In April 2020, in my 50’s, I had a TURBT performed and the tumor (6cm) removed. Pathology revealed 95% small cell urothelial carcinoma and 5%...

I was diagnosed in Feb 2025 with High Grade Papillary Urothelial Carcinoma, stage Ta. It was a large tumor that was found. It took 3...

Hi, I am a 63 year old physically fit male. I would like to talk with similar patients who have has cystectomy and neo bladder...