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Discussions (150)
Anyone have multiple pulmonary embolisms and autoimmune conditions?
I have giant cell arthritis and Sjogren syndrome since February I have had five pulmonary embolisms two of them have been while I was on...
Sjogren's likely - how to prepare for rheumatologist
Hello, I'm a 57-year-old woman who's new to this group and just recently tested positive (78) for Salivary Protein 1 (SP1) Igg antibodies and (27)...
Pending Sjogren's Diagnosis and Doctor Worries
Hi all! I've been hunting for a community to talk about my autoimmune journey with, and I am so thankful this place exists. I'm a...
Sjogren's, Lupus....Open Heart Surgery
Does anyone have any experience with how their Sjogren's and or Lupus diseases reacted to Open Heart Surgery? I don't know what to expect, keep...
Late Stage Primary Sjogren's Syndrome
I have advanced autoimmune disease , particularly Sjogren’s syndrome (about 30 years) Most doctors have never seen anyone like me, so most of the ones...
Sjögren's Syndrome, Infusion
I start on Oct 28. I get IVIG 2 weeks later,I have horrible burning in my legs, legs are very cold!!! My Rheumatologist, it has...
Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's
Hello, I have a Neurologist, I'm looking for a Rumatologist is there any criteria? I saw 2 but they said they did not have to...
Body odor without sweat -- Sjogren's Syndrome?
Hello all. I have been suffering for some chronic health issues since June and am being evaluated for a variety of possible conditions, including Sjogren's...
Information Sojgren's Syndrome
I have Sojgren's Syndrome and Small Fiber Neuropathy. My question, I understand S.F.N about the pain and where it goes but Sojgren's understand the dry...
Sjogren's and small fiber neuropathy: Seeing a rheumatologist
WHEN I GOT OUT OF THE CAR TO GO INTO THE HOSPITAL FOR A PROCEDURE I COULD HARDLY WALK ALL OF A SUDDEN?? MY HUSBAND...
Does anyone have seronegative Sjogren's disease?
Does anyone have seronegative Sojourns?If so what did you have to go through to get it diagnosed? I live in Dallas Texas and they want...
Are there any Sjogren's sufferers that also have LUTS?
I have Sjogren's Disease and am experiencing frequent symptoms of UTIs. I would like to hear from others who have similar experiences.
H. Pylori Infection, Sjogren's and Hashimoto's together
Who are experiencing with H. Pylori Infection, Sjogren's and Hashimoto's together?
Sjogren's, Hashimoto's and Thyroid Dysfunction: Got questions
I was diagnosed with both of these autoimmune diseases last year. Due to thyroid dysfunction. Or the thyroid dysfunction was due to the auto immune...
RM states I don't have Sjogren's
I had my first visit the a RM Monday. Today the nurse called and said my blood work was OK and the xrays didn't show...
Treating SJOGREN'S: Anyone used Low Dose Naltrexone?
Has anyone used LDN to treat SJOGRENS? I am fearful of using prescribed PLAQUENIL because it gave me severe migraines,
Sjogren's with burning nose, thick mucus and headache symptoms
My symptoms include burning nose, thick mucus, no nose drainage, post nasal drip, and sinus headache. Burning nose and sinus headache symptoms get worse while...
Has anyone used the oral medication for dry mouth (Sjogren's)?
https://connect.mayoclinic.org/discussion/has-anyone-used-the-oral-medication-for-dry-mouthsjogrens/
I have Sjogrens and autoimmune issues. My mouth is getting more dry than ever. Night time is the WORSE. I have tried everything in the...
Possible Sjogrens Disease
I have had an undiagnosed illness for over 2 years.No Doctor can figure it out.I have many symptoms,but two major ones are extremely dry eyes...
Sjogrens and Lung issues
I have Sjogrens and I am having lung problems. Getting a CT scan tomorrow, I have questions about ILD… anyone here with Sjogrens and ILD?
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