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Discussions (150)
Sjogren and bronchiectasis.
Pulmonologist claims Sjogren just causes dry mouth. He keeps treating me with rigorous clearance routine that doesn't work. Claims I am medically non-compliant. Anyone have...
Support Group: Autoimmune Diseases
Last active: Sep 9, 2025
Alguien con neuropatia sensitiva ? A raíz de sjogren?
Hola quisiera compartir mi experiencia y leer más testimonios con neuropatia sensitiva a causa de sjogren, me considero joven para tener neuropatia.
Support Group: Autoimmune Diseases
Last active: Mar 17, 2025
Sjogren’s Advocate
https://www.sjogrensadvocate.com/advocate-with-confidence Here is a link to this website and one of her great articles. I have found many of her tips helpful even if you...
Support Group: Autoimmune Diseases
Last active: Feb 21 10:20am
Showering with Sjogren’s
I wonder if anyone had input on how often to shower with Sjogren’s. I know that dry skin often leads some to shower less, and...
Support Group: Autoimmune Diseases
Last active: Dec 31, 2025
Salty tast in my mouth from diagnosed with Sjogren's
I was tested positive for Sjogren in 2019. My condition is very odd, other than dry mouth, I have salty taste in my mouth all...
Support Group: Autoimmune Diseases
Last active: May 29 6:36am
Voice projection problems with Sjogren’s
Any others struggling with voice projection with Sjogrens ? My mother can only speak in a whisper at this point.
Support Group: Autoimmune Diseases
Last active: Aug 2, 2023
is there such a thing as zero negative Sjogren’s?
Can a person test negative for Sjogren’s and still have the disease? my sister has zero negative polyarthralgia and severe dry mouth. I’ve long suspected...
Support Group: Autoimmune Diseases
Last active: Jan 21, 2024
Sjogren’s and Loss of Taste and Smell
I have had stable Sjogren’s for over 30 years (age 64). Over the past year, I have gradually lost my senses of taste and smell....
Support Group: Autoimmune Diseases
Last active: Jun 18, 2023
Sjogren’s Syndrome – Introduce yourself and meet others
I have been diagnosed with this and I'm in pain most days and would like to have discussions.
Support Group: Autoimmune Diseases
Last active: Dec 30, 2024
Sjogren's Question
Does anyone have Small Fiber Neuropathy with Sjogren's? Also trouble walking? I have been ill for the last few years with no answers. I had...
Support Group: Autoimmune Diseases
Last active: Apr 14 4:30pm
Sjogren's Syndrome?
Hello, Man, this aging process....... Thank you for taking time to try to help! I have a positive ANA and run a higher CRP number,...
Support Group: Autoimmune Diseases
Last active: May 1 8:15pm
Myelodysplastic Syndrome and Sjogren's
I have been studying MDS and SS (both of which I have) and am beginning to see an overlap. I would appreciate others input.
Last active: May 24, 2024
Sjogren's and Heart Block?
I've been dealing with kind of a sudden onset bradycardia, HR low 50's to 60, and trying to figure out why its happening. I had...
Support Group: Autoimmune Diseases
Last active: Jul 8, 2016
Tongue issues with Sjogren's or neuropathy?
Has any one experienced a burning or tingling tip of the tongue with Sjogren's or neuropathy?
Support Group: Autoimmune Diseases
Last active: Jul 17, 2022
Earaches and hearing loss with Sjogren's
Have sjougrens, anyone our there suffering with earaches and loss of hearing??4
Support Group: Autoimmune Diseases
Last active: Jul 12, 2025
What would "components of Sjogren's" mean?
So I have had the complaint of chest pain and difficulty breathing whilst on my back or right side or if I am sedentary too...
Support Group: Autoimmune Diseases
Last active: May 25 11:11pm
How to verify Sjogren's diagnosis?
I have a friend with all the classic Sjogren's symptom's and the doctor told her the way to verify the diagnosis is with a lip...
Support Group: Autoimmune Diseases
Last active: Mar 13, 2025
Incontinence+syncope+Sjogren's=Related??
I'm a 47 yr old female diagnosed with Sjogren's 2 yrs ago with my only symptoms contributed to SS being dry mouth & dry eyes....
Support Group: Autoimmune Diseases
Last active: Aug 24, 2024
Jaw numbness: Anyone with Sjogren's experienced this?
I have possible Sjogren's. Has any one experienced under the lower jaw numbness with this disease? I would appreciate any feed back. Thank you.
Support Group: Autoimmune Diseases
Last active: Jul 7, 2022