Autoimmune Diseases Support Group

Hi everyone As I have been ill for more than 3.5 years and have already applied for an appointment at Mayo clinic, I would still...

Hi there, I have been struggling to receive a diagnosis for quite some time and my condition is getting worse; I was hoping someone here...

Hi all,I was diagnosed with autoimmune cerebellar ataxia a couple years ago. I have some balance problems, but my biggest problem is difficulty speaking. They...

Hi, I have a lot of difficulty being in th sun. Im not diagnosed yet but my symptoms align with Erythromelalgia. Whatever it is, I...

AIH is difficult to diagnose. but how easy is it to dismiss this as the correct dignosis ?Which tests prove that the issue is in...

Has anyone with CIDP subsequently developed arachnoid cysts on their spinal cord? About one year after being diagnosed with CIDP, I started having terrible back...

I was just diagnosed with Addison disease. I started medicine today. I'm exhausted. I can't push myself through things it's really difficult. Do you know...

This is a general question anybody who has ever faced a difficult diagnosis (autoimmune diseases can all be) and the lack of diagnosis has made...

Hello - looking for any food links regarding Vasculitis - Wegners disease - it's such a new diagnosis - and also very difficult to research...

Perhaps the most difficult disorders are those which offer little hope, such as some forms of Amy. The diagnosis is very difficult, slow, frustrating and...

Hi, I know getting diagnosed with AI is difficult. A couple of people suggested going to a teaching hospital as they are more thorough. Any...

I’ve been several years without a diagnosis… I consistently have an ANA of 1:320 or 1:640 (nuclear homogenous) with worsening symptoms, such as chronic muscle...

Hi. I joined a few groups because I developed several serious health issues from chemo for NHL. That was 20 years ago. The first side...

I was diagnosed with CIDP in 2001. My neurologist says it is no longer active and the weakness I experience with exertion is from nerve...

Hello everybody, my husband was diagnosed with GFAP in February 2025, he spent more than three months in hospital and in March he came back...

Have you ever been told that you have Clippers disease and you’re thinking: “ what? I’ve never heard of such a thing! What on earth”?...

Male. 63 years old; residing in Karachi. Rheumatoid conditions. Had flair of Rheumatoid Arthritis between 2016 and 2021 which has since subsided / remission; followed...

The Autoimmune Organization is holding a free, virtual summit in October. Everyone is invited! The speakers will cover topics such a diagnosis difficulty, fatigue, why...

Getting a diagnosis can be a real challenge indeed! It may be one of the most difficult challenges in your health journey. I received some...

Cardiac Sarcoidosis is a rare / uncommon autoimmune disease which affects the heart, causing Heart & Kidney failure and risk of an untimely V Tach...