Autoimmune Diseases Support Group

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Comments (29)

Welcome, @karingroom. It must have been a blow to be diagnosed with inclusion body myositis (IBM)...

https://connect.mayoclinic.org/comment/947975/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Oct 15, 2023

@nmenonk2022 There is another discussion on inclusion body myositis that you may want to check out....

https://connect.mayoclinic.org/comment/906586/

Discussion: New to this group

Support Group: Autoimmune Diseases

Posted: Aug 2, 2023

Hi @charlie01, I'd like to add my welcome along with @becsbuddy. You'll notice that I moved...

https://connect.mayoclinic.org/comment/683785/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Feb 23, 2022

Hi @abuela4, I wanted to to add my welcome along with Sue's. You will see I...

https://connect.mayoclinic.org/comment/734053/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Aug 4, 2022

@catharbert, Both @wwill and @mklam who posted in this inclusion body myositis discussion are still active...

https://connect.mayoclinic.org/comment/625594/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Aug 12, 2021

My husband has Inclusion Body Myositis. He was misdiagnosed in 2006 with Poly myositis. He only...

https://connect.mayoclinic.org/comment/57725/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Jul 11, 2016

Hi @nmenonk2022 - I thought I would tag you from this existing discussion on Inclusive Body...

https://connect.mayoclinic.org/comment/904627/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Jul 30, 2023

Seeking other people with IBM (inclusion body myositis). The most recent posting to this group is...

https://connect.mayoclinic.org/comment/625552/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Aug 12, 2021

Polymyositis can effect the upper limbs. As well, inclusion body myositis can effect the muscles of...

https://connect.mayoclinic.org/comment/117025/

Discussion: regarding chronic polymyositis treatment

Support Group: Autoimmune Diseases

Posted: Oct 31, 2016

Good morning and welcome to Mayo Connect. When I saw the title of your topic, I...

https://connect.mayoclinic.org/comment/734029/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Aug 4, 2022

A friend of mine was just diagnosed with Inclusion Body Myositis. Her symptoms sound very similar...

https://connect.mayoclinic.org/comment/837899/

Discussion: Dramatic small sensory nerve loss -EDS/autoimmune cause? Need ATLrheum

Support Group: Autoimmune Diseases

Posted: Apr 5, 2023

My wife is doctoring through the Neuropothy Dept. at KU Med. They sent us to Mayo...

https://connect.mayoclinic.org/comment/57732/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Mar 3, 2019

I am 66 yr man. Diagnosed with AS & IBM- (Inclusion Body Myositis)- both muscle related...

https://connect.mayoclinic.org/comment/1241431/

Discussion: Antisynthetase Syndrome: Anyone else?

Support Group: Autoimmune Diseases

Posted: Feb 20 10:53am

Hi @vivd and welcome. You posted perfectly. I'm tagging fellow members @pinkmk @johnnyv46 @buttons @fuzzybadger @kentyunker...

https://connect.mayoclinic.org/comment/331414/

Discussion: Diagnosed with Myositis: Desperate for answers and help

Support Group: Autoimmune Diseases

Posted: Jan 1, 2021

Good morning @charlie01 I’m so sorry you were diagnosed with myositis. Autoimmune disease can be so...

https://connect.mayoclinic.org/comment/683708/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Feb 23, 2022

Hi @dexter651, welcome to Connect. If you feel comfortable, would you mind sharing a bit more...

https://connect.mayoclinic.org/comment/152863/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Jun 4, 2017

@ralphreetz here are some more links that provide information on physical therapy for Myositis: The Role...

https://connect.mayoclinic.org/comment/107468/

Discussion: Autoimmune Diseases and Fatigue

Support Group: Autoimmune Diseases

Posted: Jan 27, 2018

I see you posted 1 year ago. I’ve gotten a temporary diagnosis of inclusion body myositis...

https://connect.mayoclinic.org/comment/1186319/

Discussion: IMD

Support Group: Autoimmune Diseases

Posted: Dec 7, 2024

@duckski44 Welcome to Mayo Clinic Connect! I saw that you pasted similar discussions in other places....

https://connect.mayoclinic.org/comment/1344093/

Discussion: Inclusion body myositis

Support Group: Autoimmune Diseases

Posted: Jul 8 11:36pm

Hello Ralph (@ralphreetz), welcome to Mayo Connect. Thank you so much for sharing your story in...

https://connect.mayoclinic.org/comment/107467/

Discussion: Autoimmune Diseases and Fatigue

Support Group: Autoimmune Diseases

Posted: Jan 27, 2018

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