Autoimmune Diseases Support Group

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Welcome, @aim4nopain. I'm tagging a few members like @richardrr @gonnadoit @spankytwo2 @jackie30 @mel66, who all have...

https://connect.mayoclinic.org/comment/1392418/

Discussion: What symptoms are the worst for you with Behçet's? What helps?

Support Group: Autoimmune Diseases

Posted: Sep 12, 2025

Mine all indicate systemic sclerosis. Some indicate Sjogren's or lupus as well. None of my five...

https://connect.mayoclinic.org/comment/1186344/

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 7, 2024

Hi everyone.Thank you for admitting me I was recently diagnosed with what most likely is Behchets....

https://connect.mayoclinic.org/comment/170540/

Discussion: Behcet's Syndrome: What treatment has worked for you?

Support Group: Autoimmune Diseases

Posted: Sep 30, 2019

my daughter has psoriatic rheumatoid arthritis, BECHETS, CRONES DISEASE, SHOGRANS OF THE EYES. fibre mialga,

https://connect.mayoclinic.org/comment/1449473/

Discussion: Anyone else have multiple autoimmune diseases?

Support Group: Autoimmune Diseases

Posted: Nov 29, 2025

Unfortunately yes. I have Bechet’s disease and my labs are perfectly normal. I was only diagnosed...

https://connect.mayoclinic.org/comment/1504748/

Discussion: Can I have an autoimmune disease with perfect lab results?

Support Group: Autoimmune Diseases

Posted: Feb 13 10:14am

Hello! Yes, Behcet's Disease is possible! I was diagnosed with the condition 16 years ago and...

https://connect.mayoclinic.org/comment/1430694/

Discussion: Is Behcet’s possible?

Support Group: Autoimmune Diseases

Posted: Nov 4, 2025

I have Behect’s as well and just been diagnosed this last year. Mine is the reoccurring...

https://connect.mayoclinic.org/comment/1386568/

Discussion: Need help with oral ulcers

Support Group: Autoimmune Diseases

Posted: Sep 4, 2025

I was diagnosed with Behect’s disease a year ago in May. I felt like I had...

https://connect.mayoclinic.org/comment/1375967/

Discussion: How did you feel when you were first diagnosed?

Support Group: Autoimmune Diseases

Posted: Aug 21, 2025

I have found both Tufts and Lahey to be more thorough and responsive. A 1:80 titer...

https://connect.mayoclinic.org/comment/1180425/

Discussion: Sjogren's likely - how to prepare for rheumatologist

Support Group: Autoimmune Diseases

Posted: Nov 26, 2024

Hello Maria @mel66 -- Welcome to Connect. I did find an article that mentions the treatment...

https://connect.mayoclinic.org/comment/170539/

Discussion: Behcet's Syndrome: What treatment has worked for you?

Support Group: Autoimmune Diseases

Posted: Sep 30, 2019

Hi there - I have Behçet’s Disease, another rare vasculitis Disease. Stopping smoking is a large...

https://connect.mayoclinic.org/comment/269246/

Discussion: Raynaud's with Buerger's Disease and Severe Chronic Fatigue

Support Group: Autoimmune Diseases

Posted: Jul 17, 2019

I definitely feel for your daughter I'm going on 13 years with this my best friend...

https://connect.mayoclinic.org/comment/170528/

Discussion: Behcet's Syndrome: What treatment has worked for you?

Support Group: Autoimmune Diseases

Posted: Mar 13, 2019

My daughter is 58 years old and was finally diagnosed with Bechets at the Mayo Clinic...

https://connect.mayoclinic.org/comment/170523/

Discussion: Behcet's Syndrome: What treatment has worked for you?

Support Group: Autoimmune Diseases

Posted: Oct 1, 2017

Lara there’s a symposium on May 20 that’s accessible on the ABDA website for Behcets. It...

https://connect.mayoclinic.org/comment/1069359/

Discussion: Anyone out there with Behçet's and vasculitis?

Support Group: Autoimmune Diseases

Posted: May 17, 2024

This sounds very similar to what my 18 year old daughter is going through. She has...

https://connect.mayoclinic.org/comment/1064485/

Discussion: Cortisol deficiency, but with weight gain

Support Group: Autoimmune Diseases

Posted: May 8, 2024

I feel for you and know that having a rare disease puts you at a disadvantage...

https://connect.mayoclinic.org/comment/1059033/

Discussion: Anyone out there with Behçet's and vasculitis?

Support Group: Autoimmune Diseases

Posted: Apr 28, 2024

Anemia of inflammation was my first thought. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6536698/#:~:text=Anemia%20of%20inflammation%20(AI)%2C,%2C%20autoimmune%20diseases%2C%20and%20cancer. My labs were messed up more than once...

https://connect.mayoclinic.org/comment/981355/

Discussion: Low WBC and MCTD

Support Group: Autoimmune Diseases

Posted: Dec 15, 2023

Hi @richardrr, welcome. Allow me to tag @spankytwo2 @mrmaid11 @senlw @jackie30 @mel66 @cheerfulheart, who all have...

https://connect.mayoclinic.org/comment/637492/

Discussion: Behcet's disease: Would like to connect with others

Support Group: Autoimmune Diseases

Posted: Sep 21, 2021

Please if anyone has Behcets or Sjogrens, let me know if you had a reaction to...

https://connect.mayoclinic.org/comment/635448/

Discussion: Behcets & Sjogrens and COVID

Support Group: Autoimmune Diseases

Posted: Sep 14, 2021

Hi I would go somewhere and get properly diagnosed. There are lots of symptoms of Behects...

https://connect.mayoclinic.org/comment/1512359/

Discussion: I'm needing help with Behcet's and RA leg issues.

Support Group: Autoimmune Diseases

Posted: Feb 22 7:40pm

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