Autoimmune Diseases Support Group

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Comments (544)

Thank you for the info and the link, c3p0. I have a new primary care doctor...

https://connect.mayoclinic.org/comment/1228164/

Discussion: Dercum’s Disease: Looking to connect with others

Support Group: Chronic Pain

Posted: Feb 2, 2025

Hi, Have you been diagnosed with an autoimmune disease ? Migraines and anxiety are not the...

https://connect.mayoclinic.org/comment/1227055/

Discussion: Functional medicine

Support Group: Autoimmune Diseases

Posted: Feb 1, 2025

@my44, and all... I love the Mayo portal and use it often! I love being able...

https://connect.mayoclinic.org/comment/1224673/

Discussion: The Patient Portal—Help or Hindrance?

Support Group: Just Want to Talk

Posted: Jan 29, 2025

It doesn't sound like any type of hepatitis in my opinion. I was in the same...

https://connect.mayoclinic.org/comment/1205681/

Discussion: What can cause ANA titre of 1:2560?

Support Group: Autoimmune Diseases

Posted: Jan 7, 2025

Oral lichen planus is often first diagnosed by dentists and dermatologists. Most experienced dermatologists have comanaged...

https://connect.mayoclinic.org/comment/1196874/

Discussion: Oral Lichen Planus: How do you cope with it?

Support Group: Autoimmune Diseases

Posted: Dec 25, 2024

I think one of the reasons PMR is difficult to diagnose is that there are many...

https://connect.mayoclinic.org/comment/1186004/

Discussion: Diagnosed with polymyalgia rheumatica and possibly Hashimoto's

Support Group: Autoimmune Diseases

Posted: Dec 7, 2024

I was diagnosed with ELP 18 months ago. I've had my esophagus stretched twice and also...

https://connect.mayoclinic.org/comment/1093009/

Discussion: Esophageal Lichen Planus

Support Group: Autoimmune Diseases

Posted: Jun 24, 2024

Welcome @smc55, I'm sorry to hear that your rheumatologist blows it off and your cardiologist doesn't...

https://connect.mayoclinic.org/comment/1078767/

Discussion: Sjogren’s Syndrome with heart pain

Support Group: Autoimmune Diseases

Posted: Jun 1, 2024

Hello @twinkie23, I know it must be difficult for you now with your recent symptoms and...

https://connect.mayoclinic.org/comment/1069985/

Discussion: Neuropsychiatric Lupus

Support Group: Autoimmune Diseases

Posted: May 18, 2024

very very sorry for your difficulties. I am been in support groups with many difficult to...

https://connect.mayoclinic.org/comment/1056409/

Discussion: Can anyone assist me with any help in regards to my skin condition

Support Group: Autoimmune Diseases

Posted: Apr 24, 2024

Hi Mima, Sorry to hear the dx of Sjogrens. Welcome to the club. Symptoms are so...

https://connect.mayoclinic.org/comment/73373/

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Jul 10, 2012

I was recently diagnosed with MCTD, Fibromyalgia, Post Traumatic Stress Disorder. and Major Depression, and am...

https://connect.mayoclinic.org/comment/56440/

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Apr 20, 2012

These discussions are most helpful and I am coming to realize how difficult it is to...

https://connect.mayoclinic.org/comment/892031/

Discussion: Widespread Body Pain and High ANA

Support Group: Autoimmune Diseases

Posted: Jul 8, 2023

You are very fortunate if you have access to the best tertiary care centers and university...

https://connect.mayoclinic.org/comment/874052/

Discussion: Tips for Getting a Proper Diagnosis of an Autoimmune Disease

Support Group: Autoimmune Diseases

Posted: Jun 7, 2023

@rose47 I’m so sorry that you have thyroid eye disease. It must be so difficult in...

https://connect.mayoclinic.org/comment/827245/

Discussion: Thyroid Graves Disease: Anyone else?

Support Group: Autoimmune Diseases

Posted: Mar 16, 2023

To @janstar61 I am sorry to hear you had such a bad experience with a provider....

https://connect.mayoclinic.org/comment/825100/

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 12, 2023

@dsisko, @shani, and all...Dsisko, you are surely blessed. I've written my story in a prior message,...

https://connect.mayoclinic.org/comment/821979/

Discussion: Sarcoidosis lesions of granulomas in their vertebrae bone marrow

Support Group: Autoimmune Diseases

Posted: Mar 6, 2023

Hello, I’m so sorry you’re going through this very difficult experience with your son. I can’t...

https://connect.mayoclinic.org/comment/815800/

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: Feb 23, 2023

Rheumatoid arthritis (RA) My husband has recently been diagnosed and having very difficult time. Please I...

https://connect.mayoclinic.org/comment/812275/

Discussion: Husband diagnosed with RA

Support Group: Autoimmune Diseases

Posted: Feb 16, 2023

Hello — I’m all in for a Dercum’s group. It’s so difficult to find anyone who...

https://connect.mayoclinic.org/comment/804601/

Discussion: Dercum’s Disease: Looking to connect with others

Support Group: Chronic Pain

Posted: Jan 31, 2023