Autoimmune Diseases Support Group

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Comments (544)

I'm sorry that procedure isn't available to you. Since my problem manifests itself in so many...

https://connect.mayoclinic.org/comment/1312915/

Discussion: Help me diagnose

Support Group: Chronic Pain

Posted: May 25, 2025

Rheumatoid related ailments can have so many manifestations difficult to diagnose. At times hit and trial...

https://connect.mayoclinic.org/comment/1307315/

Discussion: Non Specific Myopathy

Support Group: Autoimmune Diseases

Posted: May 18, 2025

Hi friends I have a long OLP story to tell you perhaps it will help someone....

https://connect.mayoclinic.org/comment/1304381/

Discussion: Erosive oral lichen planus

Support Group: Autoimmune Diseases

Posted: May 14, 2025

I have had to eliminate two meds as possible causes for orthostatic hypotension. Thought it might...

https://connect.mayoclinic.org/comment/1255569/

Discussion: Dysautonomia is ruining my life, no help from doctors

Support Group: Autoimmune Diseases

Posted: Mar 11, 2025

Thank you for the info and the link, c3p0. I have a new primary care doctor...

https://connect.mayoclinic.org/comment/1228164/

Discussion: Dercum’s Disease: Looking to connect with others

Support Group: Chronic Pain

Posted: Feb 2, 2025

Hi, Have you been diagnosed with an autoimmune disease ? Migraines and anxiety are not the...

https://connect.mayoclinic.org/comment/1227055/

Discussion: Functional medicine

Support Group: Autoimmune Diseases

Posted: Feb 1, 2025

@my44, and all... I love the Mayo portal and use it often! I love being able...

https://connect.mayoclinic.org/comment/1224673/

Discussion: The Patient Portal—Help or Hindrance?

Support Group: Just Want to Talk

Posted: Jan 29, 2025

It doesn't sound like any type of hepatitis in my opinion. I was in the same...

https://connect.mayoclinic.org/comment/1205681/

Discussion: What can cause ANA titre of 1:2560?

Support Group: Autoimmune Diseases

Posted: Jan 7, 2025

Oral lichen planus is often first diagnosed by dentists and dermatologists. Most experienced dermatologists have comanaged...

https://connect.mayoclinic.org/comment/1196874/

Discussion: Oral Lichen Planus: How do you cope with it?

Support Group: Autoimmune Diseases

Posted: Dec 25, 2024

I think one of the reasons PMR is difficult to diagnose is that there are many...

https://connect.mayoclinic.org/comment/1186004/

Discussion: Diagnosed with polymyalgia rheumatica and possibly Hashimoto's

Support Group: Autoimmune Diseases

Posted: Dec 7, 2024

I was diagnosed with ELP 18 months ago. I've had my esophagus stretched twice and also...

https://connect.mayoclinic.org/comment/1093009/

Discussion: Esophageal Lichen Planus

Support Group: Autoimmune Diseases

Posted: Jun 24, 2024

Hello @horselover7216, welcome to Connect. I know it must be extremely difficult to deal with all...

https://connect.mayoclinic.org/comment/282128/

Discussion: Autoimmune mystery

Support Group: Autoimmune Diseases

Posted: Jan 11, 2020

Hi @choover22, Welcome to Connect. There is another discussion where your post will receive more visibility....

https://connect.mayoclinic.org/comment/225319/

Discussion: Autoimmune? Undiagnosed and don’t know where to go next

Support Group: Autoimmune Diseases

Posted: Dec 17, 2019

I also had a difficult time getting diagnosed @tanap1 . I’m glad you’re seeing an neurologist...

https://connect.mayoclinic.org/comment/280211/

Discussion: Autoimmune encephalopathy anyone?

Support Group: Autoimmune Diseases

Posted: Oct 27, 2019

Erythromelalgia is a rare disorder and it's difficult to get a diagnosis.. My feet turn bright...

https://connect.mayoclinic.org/comment/213693/

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Jul 4, 2019

Hello @nancgdav, welcome to Connect. I know it must be difficult when you aren't able to...

https://connect.mayoclinic.org/comment/187904/

Discussion: Thyroid? Or something else? Constant internal shakiness

Support Group: Diabetes & Endocrine System

Posted: Mar 22, 2019

Hi, carpe-bean, although I am primarily a lung and heart patient, a High Resolution CT Scan...

https://connect.mayoclinic.org/comment/167810/

Discussion: What can cause ANA titre of 1:2560?

Support Group: Autoimmune Diseases

Posted: Mar 17, 2019

Hi, this is Flor. It's so interesting to read your statements regarding Myositis in general, and...

https://connect.mayoclinic.org/comment/57733/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Mar 3, 2019

I have been reading many of the posts and feel able today to post my story....

https://connect.mayoclinic.org/comment/225224/

Discussion: Autoimmune? Undiagnosed and don’t know where to go next

Support Group: Autoimmune Diseases

Posted: Nov 22, 2018

Hi @beanie300, welcome to Connect. I am sorry that you are going through so much at...

https://connect.mayoclinic.org/comment/225213/

Discussion: Autoimmune? Undiagnosed and don’t know where to go next

Support Group: Autoimmune Diseases

Posted: Nov 7, 2018