Autoimmune Diseases Support Group

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Comments (273)

I am very grateful to my ENT. Amazingly when they discovered my lupus, I had been...

https://connect.mayoclinic.org/comment/1098902/

Discussion: If you suspect Lupus or MCTD, be sure

Support Group: Autoimmune Diseases

Posted: Jul 4, 2024

I have MCTD (mixed connective tissue disease) and getting a good amount of sleep makes a...

https://connect.mayoclinic.org/comment/611637/

Discussion: Autoimmune Diseases and Fatigue

Support Group: Autoimmune Diseases

Posted: Jun 25, 2021

I was diagnosed about a year ago. Do you have sjogrens due to it? How did...

https://connect.mayoclinic.org/comment/56555/

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Oct 31, 2018

Thank you for your post mctd43years! I got diagnosed in my forties but symptoms appeared in...

https://connect.mayoclinic.org/comment/938633/

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Sep 29, 2023

@boconn89 You’re certainly dealing with a lot of different problems. And i really understand your wish...

https://connect.mayoclinic.org/comment/707288/

Discussion: MCTD, Fibromyalgia, Reynauds

Support Group: Autoimmune Diseases

Posted: May 11, 2022

Welcome to Connect, @jolynn60, You are not alone in experiencing the frustration of having multiple diagnoses...

https://connect.mayoclinic.org/comment/56543/

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Sep 26, 2018

Hi. My diagnosis, MCTD, FIBROMYALGIA. I'm sorry that I don't have answers. But I'm thankful to...

https://connect.mayoclinic.org/comment/884412/

Discussion: MCTD, Fibromyalgia, Reynauds

Support Group: Autoimmune Diseases

Posted: Jun 24, 2023

Hello again, a bit of an update. Along with the fibro, mctd and reynauds, my rheum...

https://connect.mayoclinic.org/comment/707176/

Discussion: MCTD, Fibromyalgia, Reynauds

Support Group: Autoimmune Diseases

Posted: May 11, 2022

Diagnosed with MCTD several years ago after PCP finally ordered those ANA Titer tests etc ....

https://connect.mayoclinic.org/comment/1204002/

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Jan 4 6:46pm

Hi @twinkle23 I was diagnosed with MCTD back in 2002. I used to be in a...

https://connect.mayoclinic.org/comment/954432/

Discussion: Lupus pain

Support Group: Autoimmune Diseases

Posted: Oct 26, 2023

Dear twinkie23, I have had MCTD with SLE for 43 years now. I thoroughly understand where...

https://connect.mayoclinic.org/comment/953082/

Discussion: Lupus pain

Support Group: Autoimmune Diseases

Posted: Oct 24, 2023

Hello I have had Sjogrens Syndrome seems like forever before I got diagnosed now years later...

https://connect.mayoclinic.org/comment/655224/

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 17, 2021

Hi, my heart hurts for you. I'm new here too and thought I'd share a little...

https://connect.mayoclinic.org/comment/886598/

Discussion: MCTD, Fibromyalgia, Reynauds

Support Group: Autoimmune Diseases

Posted: Jun 28, 2023

I was diagnosed with MCTD in 2013 and misdiagnosed with fibro many years earlier. I was...

https://connect.mayoclinic.org/comment/56490/

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Jan 8, 2018

I've had flare ups for years even with the positive Ana tests dr said it was...

https://connect.mayoclinic.org/comment/56478/

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Sep 29, 2017

I'm so sorry you are having to deal with this. I had a rough case of...

https://connect.mayoclinic.org/comment/865370/

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: May 23, 2023

Yes, MCTD is an odd duck. I get respiratory inflammation as well, hard to breathe and...

https://connect.mayoclinic.org/comment/1189807/

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Dec 13, 2024

Sometimes I have to fight with myself to get going, too. I felt it more after...

https://connect.mayoclinic.org/comment/816696/

Discussion: Autoimmune Diseases and Fatigue

Support Group: Autoimmune Diseases

Posted: Feb 24, 2023

I hope this helps. I am a 43 year survivor of MCTD so I have a...

https://connect.mayoclinic.org/comment/935060/

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Sep 23, 2023

Diagnosed with MCTD last year. I guess I don't understand what a flare is because I...

https://connect.mayoclinic.org/comment/737110/

Discussion: Recently diagnosed with autoimmune disease - looking for support

Support Group: Autoimmune Diseases

Posted: Aug 13, 2022

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