Prostate Cancer Support Group Meeting

Prostate Cancer Support Group Meeting

Wed, Oct 11, 2023
12:00pm to 1:30pm CT

Description

The Prostate Cancer Support Group is an in-person and virtual group for Mayo Clinic patients and their caregivers. The group meets monthly on the 2nd Wednesday of the month from noon to 1:30 pm CT.

Each month guest speakers from the Mayo Clinic oncology team provide education on specific topics related to prostate cancer. Following the presentation and Q & A time, members share information and experiences.

In-person space is limited, but all are welcome to participate via Zoom.

Join Zoom Meeting
https://mc-meet.zoom.us/j/99555673337?pwd=RXoyN3c1MlIxak1zRHRoUWtia0ROdz09

Location

Online & In Person
Charter House (Edwards hall)
211 2nd St NW
Rochester, MN 55901

Contact

Richard Vetter, Ph.D.
Richard Vetter, Ph.D.
Email: rvetter@mayo.edu
Phone: (507) 281-3917
@liangni1

Ps:My brother did not have urinate difficulties. He felt ok.But the PET-CT scan also found 1cm hypermatolic area in his pancreas.He had been a strong man in the past.thank you again for thinking about a person you don’t know .

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We men are all in the same boat when we have prostrate cancer. It is a great fear about the unknown regarding any cancer. When I first found out about my cancer I did not know about MCC. Then it was mentioned to me by Mayo Clinic Jacksonville.

I then learned through MCC I am not alone in my feelings and worries. Every one different, different experience, different level of care, research data, suggestion and their stories. MCC is a great source of information and feedback from others.

The caring about others is human nature. Us men sometimes are unable to deal with things and develop ways to ignore or deny. Everyone will deal with in in different ways and what one thinks is best or does will not be for another.

What I see is that he has a very caring sister. That is so important to have a family member so caring as you are. I do wish him and you the best.

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@jc76

We men are all in the same boat when we have prostrate cancer. It is a great fear about the unknown regarding any cancer. When I first found out about my cancer I did not know about MCC. Then it was mentioned to me by Mayo Clinic Jacksonville.

I then learned through MCC I am not alone in my feelings and worries. Every one different, different experience, different level of care, research data, suggestion and their stories. MCC is a great source of information and feedback from others.

The caring about others is human nature. Us men sometimes are unable to deal with things and develop ways to ignore or deny. Everyone will deal with in in different ways and what one thinks is best or does will not be for another.

What I see is that he has a very caring sister. That is so important to have a family member so caring as you are. I do wish him and you the best.

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Would you please explain what is MCC ? Thanks!

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No problem. If you look at the name of this program and web site we are using to send/receive messages and information that Mayo provides it is called, Mayo Clinic Connect. Thus abbreviate it to MCC.

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How does one know that Prostate cancer is progressing? What are the symptoms? What clues does one have that the end is near?

I have been diagnosed with it and live in a country that does not have specialists.

I also have primary myelofibrosis.

I'm not sure which one will be the end of me.

I am very fit and alert and 74 years old and still working.

Rob A

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Why is this string of comments in the Prostate Cancer Support Group section?

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@liangni1

My brother recently notified by his doctor that his psa is 20 which is 5point higher than last year.His doctor highly suspicious of the prostate cancer.my brother is 80 years old and single.He considers his age and if is cancer will go through painful treatment and stay in nursing home for don’t know how long.He decided not to do biopsy and didn’t want to know if it is cancer.Do anyone know this disease’s treatment .is there any possibility that it can be helped by oral medication?and if it is worth the painful process for a 80 years old man.He doesn’t have any symptoms and lives independently.Any suggestions are appreciated.

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Please tell your brother to consider a biopsy, my psa was a 21 ten years ago, got a biopsy, and then had radiation seed therapy, my psa stayed below a 5, for those 10years, of his psa is at a 20, most likely it's prostate cancer. But ghe good news if he gets the radiation therapy, or now you can get hormone therapy to bring his psa numbers down. But doing nothing isn't the way. The psa numbers don't go down by themselves, we must have some kind of intervention, from modern medicine. I hope this helps, good luck on talking to your brother.

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@reets70

I’m compelled to reply. My husband had his prostate removed 30 years ago due to a cancerous biopsy. He is now86, and has had four recurrences of prostate cancer cells, in his pelvis, his femur, his bladder, and now again, he is in the process of a surgical procedure to determine if the mass his doctor found is positive again for prostate cancer. He has every cancer treatment available, and still it recurs. However, at 86 years old, the only downside he has had is being very tired all the time. I think we can live with that at this point. Radiation treatment is probably his next step, once again, but it’s okay, he’ll be happy to go through that.. (no pain, no discomfort). Good luck to you!

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I can truly understand, about recurrences of prostate cancer cells, in 2013, I was diagnosed with prostate cancer, my psa was a 21. So I had a biopsy, and it was prostate cancer. So I chose radiation therapy with seed therapy. For 10 year my psa was down, under a 5, but now it has came back after I had a PET-SCAN, and two spots showed up in my pelvis, in my lymph glands, the spots are a about a half a cm a piece. As a result my psa was a 13. So I opted for hormone therapy, with a shot of Lupron, and the hormone pill Abiraterone at 1000mg a day with 5mg of Prednisone. Within 1 month and a half, my psa has dropped to 0.3. So I'm remaining hopeful that this line of treatment will hold/jeep my psa down, but if I find I have to get more aggressive with radiation/chemotherapy ect... I'm willing. Having prostate cancer is just not a physical battle, it's a mental and aemotional one as well. We as men must continue to fight! Our lives are at stake. I pray anyone reading this will find strength and comfort and courage to continue to press on. This is not a easy battle, but just know your not alone! Exhaust all of your options, and then activate your faith and believe you done all you could do, and after that it not in your hands anymore anyway! Take care my brothers/family. We're in this fight together!!

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@jc76

No problem. If you look at the name of this program and web site we are using to send/receive messages and information that Mayo provides it is called, Mayo Clinic Connect. Thus abbreviate it to MCC.

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Thanks!👍😄

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@al2

Please tell your brother to consider a biopsy, my psa was a 21 ten years ago, got a biopsy, and then had radiation seed therapy, my psa stayed below a 5, for those 10years, of his psa is at a 20, most likely it's prostate cancer. But ghe good news if he gets the radiation therapy, or now you can get hormone therapy to bring his psa numbers down. But doing nothing isn't the way. The psa numbers don't go down by themselves, we must have some kind of intervention, from modern medicine. I hope this helps, good luck on talking to your brother.

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I did send your message to my brother. A lot of thanks to you!🤝🌹Wish you do well !

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@al2

I can truly understand, about recurrences of prostate cancer cells, in 2013, I was diagnosed with prostate cancer, my psa was a 21. So I had a biopsy, and it was prostate cancer. So I chose radiation therapy with seed therapy. For 10 year my psa was down, under a 5, but now it has came back after I had a PET-SCAN, and two spots showed up in my pelvis, in my lymph glands, the spots are a about a half a cm a piece. As a result my psa was a 13. So I opted for hormone therapy, with a shot of Lupron, and the hormone pill Abiraterone at 1000mg a day with 5mg of Prednisone. Within 1 month and a half, my psa has dropped to 0.3. So I'm remaining hopeful that this line of treatment will hold/jeep my psa down, but if I find I have to get more aggressive with radiation/chemotherapy ect... I'm willing. Having prostate cancer is just not a physical battle, it's a mental and aemotional one as well. We as men must continue to fight! Our lives are at stake. I pray anyone reading this will find strength and comfort and courage to continue to press on. This is not a easy battle, but just know your not alone! Exhaust all of your options, and then activate your faith and believe you done all you could do, and after that it not in your hands anymore anyway! Take care my brothers/family. We're in this fight together!!

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Your fight with the tumor is a long one, but you are the winner, I admire your courage and faith.I will keep these words and let my brother read them at the proper time in the near future.I believe it will make him rethink how to fight for his own life.
Thank you very much and wish you keep your health well.

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