Prostate Cancer Support Group Meeting

Prostate Cancer Support Group Meeting

Wed, Oct 11, 2023
12:00pm to 1:30pm CT

Description

The Prostate Cancer Support Group is an in-person and virtual group for Mayo Clinic patients and their caregivers. The group meets monthly on the 2nd Wednesday of the month from noon to 1:30 pm CT.

Each month guest speakers from the Mayo Clinic oncology team provide education on specific topics related to prostate cancer. Following the presentation and Q & A time, members share information and experiences.

In-person space is limited, but all are welcome to participate via Zoom.

Join Zoom Meeting
https://mc-meet.zoom.us/j/99555673337?pwd=RXoyN3c1MlIxak1zRHRoUWtia0ROdz09

Location

Online & In Person
Charter House (Edwards hall)
211 2nd St NW
Rochester, MN 55901

Contact

Richard Vetter, Ph.D.
Richard Vetter, Ph.D.
Email: rvetter@mayo.edu
Phone: (507) 281-3917
@jc76

liangnil, I am 76. His PSA was way to high. It should have been addressed when it got above 4.

The first step, at least in my case, was a MRI. The MRI will show suspicious areas or not. There is no pain or discomfort from this test. From that test a decision to do a biopsy or not can be made based on MRI results and your brother's wishes.

A urologist can give your brother as well as radiologist/oncologist the available treatments for prostrate cancer. But is usually based on biopsy results. There are hormonal and medication that can slow/stop the growth of prostrate cancer but can have serious side affects. They could be minor or serious depending on his reaction to them.

Is he in a nursing home now? I am not sure who said painful treatments to him. Radiation treatments are pain free. They affect the cells of all prostrate cells and damage all. The regular cells can repair themselves but cancer cells ability to repair is damage so they cannot. This is the treatment via radiation as cancer cells will die off and not grow/repair themselves. There are also other tests like PSMA, bone, etc. that can tell your doctor and brother whether cancer is limited to prostrate or spread. The treatments are very different if spread to outside of prostrate. There is also a test called Decipher that uses the taken biopsies to determine if low risk, intermediate risk, and high risks of metassing outside of prostrate. That too also can determine type of treatments. I had radiation only and had no pain during any procedure and treatments. I did have some reduced urine flow that went away with time. That is why I asked about any symptoms now.

At his age I think no urologist would recommend surgery. That would be the most invasive and painful symptoms recovery. I guess my suggestion (please remember none of us are urologist, radiologist, oncologist so just suggestions from those who have been treated) would be to have a MRI to see. Is your brother in good shape except for this? If so a different outlook.

There is no real time line for life expectancy. He could live another 10 or more years or less. Most urologist say if prostrate cancer is confined to prostrate you will probably die from something else if you are at an advanced age like his. But is his cancer only in his prostrate? That would most likely change that if it has spread.

Just understand that medication and hormone treatments can have some real side affects versus radiation treatments are usually minor. Does your brother have an prostrate symptoms now other than high PSA? I am not sure but maybe reluctant to discuss with you if he does.

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Thank you jc. Appreciate your insight and your personal experience. Very helpful.

REPLY
@liangni1

My brother recently notified by his doctor that his psa is 20 which is 5point higher than last year.His doctor highly suspicious of the prostate cancer.my brother is 80 years old and single.He considers his age and if is cancer will go through painful treatment and stay in nursing home for don’t know how long.He decided not to do biopsy and didn’t want to know if it is cancer.Do anyone know this disease’s treatment .is there any possibility that it can be helped by oral medication?and if it is worth the painful process for a 80 years old man.He doesn’t have any symptoms and lives independently.Any suggestions are appreciated.

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My last PSA was 25
I'm 88 My new Doctor (Urologist)think I should have a Biopsy
I spoke with my Doctors (Urologist) who have treated me for the past 10 years for Blatter
cancer so far very good They are both aware of my PSA almost doubled in past 10 years
Because of my age they don't advise the Biopsy
What is your opinion
John

REPLY
@jc76

liangnil, I am 76. His PSA was way to high. It should have been addressed when it got above 4.

The first step, at least in my case, was a MRI. The MRI will show suspicious areas or not. There is no pain or discomfort from this test. From that test a decision to do a biopsy or not can be made based on MRI results and your brother's wishes.

A urologist can give your brother as well as radiologist/oncologist the available treatments for prostrate cancer. But is usually based on biopsy results. There are hormonal and medication that can slow/stop the growth of prostrate cancer but can have serious side affects. They could be minor or serious depending on his reaction to them.

Is he in a nursing home now? I am not sure who said painful treatments to him. Radiation treatments are pain free. They affect the cells of all prostrate cells and damage all. The regular cells can repair themselves but cancer cells ability to repair is damage so they cannot. This is the treatment via radiation as cancer cells will die off and not grow/repair themselves. There are also other tests like PSMA, bone, etc. that can tell your doctor and brother whether cancer is limited to prostrate or spread. The treatments are very different if spread to outside of prostrate. There is also a test called Decipher that uses the taken biopsies to determine if low risk, intermediate risk, and high risks of metassing outside of prostrate. That too also can determine type of treatments. I had radiation only and had no pain during any procedure and treatments. I did have some reduced urine flow that went away with time. That is why I asked about any symptoms now.

At his age I think no urologist would recommend surgery. That would be the most invasive and painful symptoms recovery. I guess my suggestion (please remember none of us are urologist, radiologist, oncologist so just suggestions from those who have been treated) would be to have a MRI to see. Is your brother in good shape except for this? If so a different outlook.

There is no real time line for life expectancy. He could live another 10 or more years or less. Most urologist say if prostrate cancer is confined to prostrate you will probably die from something else if you are at an advanced age like his. But is his cancer only in his prostrate? That would most likely change that if it has spread.

Just understand that medication and hormone treatments can have some real side affects versus radiation treatments are usually minor. Does your brother have an prostrate symptoms now other than high PSA? I am not sure but maybe reluctant to discuss with you if he does.

Jump to this post

I am very moved for your very thoughtful ,detailed information.My brother did the PET-CT scan .The results were not good. Findings are worrisome for a prostatic neoplasm.He is reluctant to do any further tests and treatment.He is living alone but not in nursing home.My heart is so heavy.I appreciate your warm thoughts and concern for my brother.Hope your treatment goes well and wish you the best!

REPLY
@jc76

liangnil, I am 76. His PSA was way to high. It should have been addressed when it got above 4.

The first step, at least in my case, was a MRI. The MRI will show suspicious areas or not. There is no pain or discomfort from this test. From that test a decision to do a biopsy or not can be made based on MRI results and your brother's wishes.

A urologist can give your brother as well as radiologist/oncologist the available treatments for prostrate cancer. But is usually based on biopsy results. There are hormonal and medication that can slow/stop the growth of prostrate cancer but can have serious side affects. They could be minor or serious depending on his reaction to them.

Is he in a nursing home now? I am not sure who said painful treatments to him. Radiation treatments are pain free. They affect the cells of all prostrate cells and damage all. The regular cells can repair themselves but cancer cells ability to repair is damage so they cannot. This is the treatment via radiation as cancer cells will die off and not grow/repair themselves. There are also other tests like PSMA, bone, etc. that can tell your doctor and brother whether cancer is limited to prostrate or spread. The treatments are very different if spread to outside of prostrate. There is also a test called Decipher that uses the taken biopsies to determine if low risk, intermediate risk, and high risks of metassing outside of prostrate. That too also can determine type of treatments. I had radiation only and had no pain during any procedure and treatments. I did have some reduced urine flow that went away with time. That is why I asked about any symptoms now.

At his age I think no urologist would recommend surgery. That would be the most invasive and painful symptoms recovery. I guess my suggestion (please remember none of us are urologist, radiologist, oncologist so just suggestions from those who have been treated) would be to have a MRI to see. Is your brother in good shape except for this? If so a different outlook.

There is no real time line for life expectancy. He could live another 10 or more years or less. Most urologist say if prostrate cancer is confined to prostrate you will probably die from something else if you are at an advanced age like his. But is his cancer only in his prostrate? That would most likely change that if it has spread.

Just understand that medication and hormone treatments can have some real side affects versus radiation treatments are usually minor. Does your brother have an prostrate symptoms now other than high PSA? I am not sure but maybe reluctant to discuss with you if he does.

Jump to this post

Ps:My brother did not have urinate difficulties. He felt ok.But the PET-CT scan also found 1cm hypermatolic area in his pancreas.He had been a strong man in the past.thank you again for thinking about a person you don’t know .

REPLY

My husband has decided not to do anything about his issue. PSA went from 12 to 18.3 in on year. His father had prostate cancer. My husband will not see a urologist and will not talk about it with his primary doctor. He has heard friends giving their grievances about side effects of removal, medication and others. He is not willing to go through that. He is 59. I can’t talk about it, he refuses. I’ve tried pleading. He has 3 children and they all know. No one has been able to convince him. I’m lost.

REPLY
@liangni1

Thank you very much. Your feedback is very helpful and an informative. I will tell my brother.

Jump to this post

I’m compelled to reply. My husband had his prostate removed 30 years ago due to a cancerous biopsy. He is now86, and has had four recurrences of prostate cancer cells, in his pelvis, his femur, his bladder, and now again, he is in the process of a surgical procedure to determine if the mass his doctor found is positive again for prostate cancer. He has every cancer treatment available, and still it recurs. However, at 86 years old, the only downside he has had is being very tired all the time. I think we can live with that at this point. Radiation treatment is probably his next step, once again, but it’s okay, he’ll be happy to go through that.. (no pain, no discomfort). Good luck to you!

REPLY
@jstout827

My last PSA was 25
I'm 88 My new Doctor (Urologist)think I should have a Biopsy
I spoke with my Doctors (Urologist) who have treated me for the past 10 years for Blatter
cancer so far very good They are both aware of my PSA almost doubled in past 10 years
Because of my age they don't advise the Biopsy
What is your opinion
John

Jump to this post

If I was in that condition,I wouldn’t want to have a biopsy .
Thank you and hope you do well and live long life.

REPLY
@robing009

My husband has decided not to do anything about his issue. PSA went from 12 to 18.3 in on year. His father had prostate cancer. My husband will not see a urologist and will not talk about it with his primary doctor. He has heard friends giving their grievances about side effects of removal, medication and others. He is not willing to go through that. He is 59. I can’t talk about it, he refuses. I’ve tried pleading. He has 3 children and they all know. No one has been able to convince him. I’m lost.

Jump to this post

In that case,your husband is much younger.If he go through the necessary tests and treatments he may live a lots more years.Now a day there are choices other than surgery. I did some reading and found radiation therapy is very effective for prostate cancer and ultrasound therapy is not painful and could prolong life.My brother thinks he is 80, and he doesn’t want to go through a treatment (maybe a Series of ).
I know your feeling I am the same.As my brother’s younger sister, my heart is heavy.What I can do is pray and give you a hug.

REPLY
@reets70

I’m compelled to reply. My husband had his prostate removed 30 years ago due to a cancerous biopsy. He is now86, and has had four recurrences of prostate cancer cells, in his pelvis, his femur, his bladder, and now again, he is in the process of a surgical procedure to determine if the mass his doctor found is positive again for prostate cancer. He has every cancer treatment available, and still it recurs. However, at 86 years old, the only downside he has had is being very tired all the time. I think we can live with that at this point. Radiation treatment is probably his next step, once again, but it’s okay, he’ll be happy to go through that.. (no pain, no discomfort). Good luck to you!

Jump to this post

Thank you for your reply .You have a very brave husband . I am happy for his life prolonged so many years and also Feel sympathy for his suffering. Your supporters must give him the strength to fight this battle.
Hope your husband and you do well.

REPLY
@robing009

My husband has decided not to do anything about his issue. PSA went from 12 to 18.3 in on year. His father had prostate cancer. My husband will not see a urologist and will not talk about it with his primary doctor. He has heard friends giving their grievances about side effects of removal, medication and others. He is not willing to go through that. He is 59. I can’t talk about it, he refuses. I’ve tried pleading. He has 3 children and they all know. No one has been able to convince him. I’m lost.

Jump to this post

I am 67 and chose Proton therapy. I have 2 points to share. The first point is; I had a choice and your husband does as well. His first choice is to die slowly and likely painfully. That is a scientific fact and exactly what my first doctor told when I asked what would happen if I did nothing. That motivated my to become knowledgeable and find the very specific choice that I was ignorant about. Thus the ignorance was cured with some effort in learning on my part. Ignorance can be cured by knowledge. Finally my second point; Men can stare the risk of death in the face and ignore the risk. That is our nature. Many fine men also need a shock that prompt thoughts. Tell him (don’t ask) to write his obituary and then hang it on the fridge giving him the option of revising it as he sees fit. Good luck and God bless.

REPLY
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