Prostate Cancer Support Group Meeting

Prostate Cancer Support Group Meeting

Wed, Jan 10, 2024
12:00pm to 1:30pm CT

Description

The Prostate Cancer Support Group is an in-person and virtual group for Mayo Clinic patients and their caregivers. The group meets monthly on the 2nd Wednesday of the month from noon to 1:30 pm CT.

Each month guest speakers from the Mayo Clinic oncology team provide education on specific topics related to prostate cancer. Following the presentation and Q & A time, members share information and experiences.

In-person space is limited, but all are welcome to participate via Zoom.

Join Zoom Meeting
https://mc-meet.zoom.us/j/99555673337?pwd=RXoyN3c1MlIxak1zRHRoUWtia0ROdz09

Location

Online & In Person
Medical Sciences Mann Hall
300 3rd Ave SW
Rochester, MN 55902
View on Google Maps

Contact

Richard Vetter, Ph.D.
Richard Vetter, Ph.D.
Email: rvetter@mayo.edu
Phone: (507) 281-3917
@reets70

My husband had. Prostatectomy 30 years ago and he is still here with me at age 86! It has been a very long battle but worth every day. He is still receiving shots every three months, has had radiation treatments in the past three separate times and now I think he is finally coming to the end of a very long battle. After three years on a chemo drug called enzalutimab, the cancer has returned again. Don’t give up people! The battle is worth it.

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I commend you for standing by your husband all those tough years. I know it wasn't a Joy ride. May God take you through this time in His faithfulness and mercy. May God keep your husband in His bossom in Jesus Christ mighty name. Praying for you. Warmest regards.

REPLY
@bsel1946

Jim - thank you for your comments on HDR; I had only heard of the LDR treatment. It sounds like LDR is an excellent option. We live in Asheville where the newer treatments for PCa are slow to make it to the mountains. We had a very advanced hospital, our only hospital, in our small town that was up for sale and I believe Mayo was being considered; however HCA purchased it so that they could have a healthcare monopoly in WNC. Now, Mission Hospital has zero Cancer Doctors.

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Very sorry to hear what happened to your hospital in Asheville. Your city is unique; I love the art deco downtown!

Are you a prostate cancer patient? If so, have you had scans done, and/or a biopsy?

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James - thank you for your reply. I was diagnosed and have had a PET scan, MRI and biopsy. Fortunately, I found a good radiation oncologist and have completed 41 of the required 45 treatments. Also, with hesitation, I have had a 3 month dose of ADT and I am scheduled to see my urologist in late January where he will want to give me a 6 month treatment of ADT. We love Asheville - and as you said - it is very unique. We have many retired people that moved to Asheville. Unfortunately, Asheville's infrastructure was not designed for the growth that we have seen over the past 10 years; however, that will improve. HCA's purchase of Mission Hospital was probably the biggest mistake of the century. Excellent doctors have left Mission and HCA could care less - their only focus is on profit margins.

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@bsel1946

I too was diagnosed with aggressive prostate cancer six months ago with the same Gleason score as your husbands. My recommended treatment included 45 Intensity-modulated radiation therapy (IMRT) radiation treatments (every weekday for 9 weeks). Before the radiation treatment began the urologist inserted three gold Fiducial markers on the prostate so that the radiation treatment could be precise regarding its target. In addition to the radiation treatment my doctor prescribed two years of hormone treatment (in Europe they recommend 3 years). The doctors did not recommend Brachy therapy. I was told that this was not as effective as IMRT because the radiation seeds can "float" whereby good tissue as well as the cancer cells can be exposed to the radiation. I too did not want to do the hormone therapy and I got several second opinions hoping to find a doctor that would say "hormone therapy was not required". As of this December 24th, I have 9 radiation treatments left and I have completed two months of the hormone therapy. The treatment has some side effects: hot flashes, nausea, diarrhea, loose stool, fatigue, and (the one side effect that no one wants to discuss) the loss of sex drive. The good news - I plan on living more years and to do my best to limit the cancer spreading to other parts of my body. As part of my treatment: I see a clinical therapist once a week that specializes in grief counseling, I joined a prostate cancer men's support group, I see my oncologist once a week, I see a personal trainer at the YMCA twice a week, and I have a very supportive wife; in fact, my wife and I are closer now than ever before. Of all the treatment plans that I have heard of, they MAY include proton therapy, IMRT, Brachy seeds yet hormone therapy has been included in all of them. On my first urology appointment my doctor told me that prostate cancer will not kill you. What he did not tell me was our lives will change. My prayers are with you and your husband.

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Thankyou so much! He may be getting into a study for a pet scan and will find out at the end of the week! What this will do is basically finding out if it has spread outside the prostate. He ha a bone scan and ct scan and they say it is contained but it is not 100 percent! We r hoping he gets the pet scan and if not at least he will be followed very closely!

REPLY
@bsel1946

Jim - thank you for your comments on HDR; I had only heard of the LDR treatment. It sounds like LDR is an excellent option. We live in Asheville where the newer treatments for PCa are slow to make it to the mountains. We had a very advanced hospital, our only hospital, in our small town that was up for sale and I believe Mayo was being considered; however HCA purchased it so that they could have a healthcare monopoly in WNC. Now, Mission Hospital has zero Cancer Doctors.

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I come to Asheville several times/year, great town and area!

FYI, there is a cancer center near Greenville SC (think the name is Gibbs Cancer Center) that offers CyberKnife (aka SBRT), Brachytherapy and EBRT.

There is also a Proton radiation therapy center in Knoxville TN, a couple of hours west on I-40.

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@bsel1946

I too was diagnosed with aggressive prostate cancer six months ago with the same Gleason score as your husbands. My recommended treatment included 45 Intensity-modulated radiation therapy (IMRT) radiation treatments (every weekday for 9 weeks). Before the radiation treatment began the urologist inserted three gold Fiducial markers on the prostate so that the radiation treatment could be precise regarding its target. In addition to the radiation treatment my doctor prescribed two years of hormone treatment (in Europe they recommend 3 years). The doctors did not recommend Brachy therapy. I was told that this was not as effective as IMRT because the radiation seeds can "float" whereby good tissue as well as the cancer cells can be exposed to the radiation. I too did not want to do the hormone therapy and I got several second opinions hoping to find a doctor that would say "hormone therapy was not required". As of this December 24th, I have 9 radiation treatments left and I have completed two months of the hormone therapy. The treatment has some side effects: hot flashes, nausea, diarrhea, loose stool, fatigue, and (the one side effect that no one wants to discuss) the loss of sex drive. The good news - I plan on living more years and to do my best to limit the cancer spreading to other parts of my body. As part of my treatment: I see a clinical therapist once a week that specializes in grief counseling, I joined a prostate cancer men's support group, I see my oncologist once a week, I see a personal trainer at the YMCA twice a week, and I have a very supportive wife; in fact, my wife and I are closer now than ever before. Of all the treatment plans that I have heard of, they MAY include proton therapy, IMRT, Brachy seeds yet hormone therapy has been included in all of them. On my first urology appointment my doctor told me that prostate cancer will not kill you. What he did not tell me was our lives will change. My prayers are with you and your husband.

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Question for you if you don't mind: is the counselor you see weekly part of a team at the cancer center where you're being treated, or independent? Just curious, as I found a fantastic psychologist when I developed BCR after RP. But she is independent of the center where I'm being treated/managed.

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@russ777

Question for you if you don't mind: is the counselor you see weekly part of a team at the cancer center where you're being treated, or independent? Just curious, as I found a fantastic psychologist when I developed BCR after RP. But she is independent of the center where I'm being treated/managed.

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No problem with your question. The counselor is independent of the team at the cancer center. The psychologist is very good and she accepts Medicare, which is unusual; yet, could not find a good psychologist that was part of any cancer center.

REPLY
@bsel1946

I too was diagnosed with aggressive prostate cancer six months ago with the same Gleason score as your husbands. My recommended treatment included 45 Intensity-modulated radiation therapy (IMRT) radiation treatments (every weekday for 9 weeks). Before the radiation treatment began the urologist inserted three gold Fiducial markers on the prostate so that the radiation treatment could be precise regarding its target. In addition to the radiation treatment my doctor prescribed two years of hormone treatment (in Europe they recommend 3 years). The doctors did not recommend Brachy therapy. I was told that this was not as effective as IMRT because the radiation seeds can "float" whereby good tissue as well as the cancer cells can be exposed to the radiation. I too did not want to do the hormone therapy and I got several second opinions hoping to find a doctor that would say "hormone therapy was not required". As of this December 24th, I have 9 radiation treatments left and I have completed two months of the hormone therapy. The treatment has some side effects: hot flashes, nausea, diarrhea, loose stool, fatigue, and (the one side effect that no one wants to discuss) the loss of sex drive. The good news - I plan on living more years and to do my best to limit the cancer spreading to other parts of my body. As part of my treatment: I see a clinical therapist once a week that specializes in grief counseling, I joined a prostate cancer men's support group, I see my oncologist once a week, I see a personal trainer at the YMCA twice a week, and I have a very supportive wife; in fact, my wife and I are closer now than ever before. Of all the treatment plans that I have heard of, they MAY include proton therapy, IMRT, Brachy seeds yet hormone therapy has been included in all of them. On my first urology appointment my doctor told me that prostate cancer will not kill you. What he did not tell me was our lives will change. My prayers are with you and your husband.

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Guess the urologist neglected to tell you that 35,000 die from prostate cancer every year.
Treatment saves lives. Don't understand his statement. Best wishes

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My husband had prostate cancer for about 8 years. They did Active Surveillance, PSA testing, DRE, ultrasounds, biopsies, and an MRI. He finally got tired of dealing with it all, so he told his Dr. he was ready for treatment. First they did radiation to the prostate 4.5 weeks x 5 days = 23 treatments. He did have a testosterone suppression shot prior to radiation. A month after radiation, an ultrasound showed that he was not emptying his bladder. So, they decided to do the TURP. His PSA had gone down to normal. He has had horrible (for him) side effects from all of this. The worst is his depression. He keeps saying, "I never should have done the treatments". He has urine leaks and he needs to wear a pad. He still is up 4-5 times a night to urinate. His surgery was at the end of August. I try to be a supportive wife. I'm not sure if this is the correct message board for my comments/question. He has not done a support group, but I have encouraged him to talk to a therapist, which he has been doing virtually. If you have any suggestions or information that would be useful to us, I would appreciate it.

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I am trying to get the Zoom meeting and it is not responding, anyone else?

REPLY
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