Your Tips on How to Get Off to the Best Start with a New Specialist

I’m looking for your best tips.
Starting a relationship with a new specialist can be daunting. You want to get off to a good start and ensure that you establish mutual respect and are able to develop trust. You want to know you’re in good hands. What is their expertise and experience? What research are they doing? Will they listen and consider your input?

How do you get off to the best start with a new provider? What suggestions would you tell a friend who is going to see a new doctor?

@cacoon6

Hello, I know this is an older post but I would love some feedback. I have been disappointed as of late with my lack of healthcare. I was recently dx with some brain issues which are scary enough. I am a Mom of 4 and worked in the medical field all my life (not an RN). But, have been pretty healthy minus a few surgeries in the past. I started to do my research from evidence based websites with my condition and the last neuro I saw seemed to use that against me by saying "You are educated" I never try to act smarter than the MD because I am not. I just want to get better and feel better. Any advice how to connect with my Mayo appointment ahead of time? It isn't until August? Should I send a fax ahead of time saying who I am? I want to get better and get treated…all I have been given locally and not so locally is, here is pain meds and your headache isn't the cause of your brain issues. I want them to know me and see me and I am spending $ and scared I will leave another appointment disappointed and dismissed…

Jump to this post

Hi @cacoon6 – Welcome to Connect. It sounds as if you have got a really scary situation. You are smart to work on getting prepared so you can get the most out of your visit. I can tell you from personal experience that Mayo has a great "patient portal" that allows patients to correspond with their doctors, ask questions, etc. If I were you, I would not FAX. If you have information you want to share, I would use the portal to give the doctor an overview of the information and ask if it would be helpful to have it in advance. They are very attentive to the portal. I do not think you will leave your Mayo appointment feeling dismissed because later, if you think of something you forgot to ask, or end up having a question that arises later, you can just use the portal to ask. I always feel better if I prepare for my appointment by making a list of what I want to ask. Someone earlier suggested ending the list with this question: "Is there anything else you can think of that I need to know and I haven't asked?" Scroll through this thread and you'll find great ideas for questions. Are you preparing a list now?

REPLY

Thank you for your reply! I thought I had a list…when I would start to ask my question within a minute I was told "No, headache is not a symtom of meniangiomas or adenomas or Rathkes Cleft Cysts" then one doctor at Northwestern when I asked about vision when his nurse was telling me I would be referred to a specialist 10 mins before he came in. He came back in the room and said you need to see an optometrist, held his hands over my eyes did a 30 second vision test and laughed after holding up no fingers saying "That was a trick question" He then came back in the room after walking out and said make sure you fill out my patient survey! So maybe I am asking the wrong question? I tried to sign up for the portal but it said I could not be verified…so I am not sure what I did wrong? Thanks, I will read through and see what I can find.

REPLY
@cacoon6

Hello, I know this is an older post but I would love some feedback. I have been disappointed as of late with my lack of healthcare. I was recently dx with some brain issues which are scary enough. I am a Mom of 4 and worked in the medical field all my life (not an RN). But, have been pretty healthy minus a few surgeries in the past. I started to do my research from evidence based websites with my condition and the last neuro I saw seemed to use that against me by saying "You are educated" I never try to act smarter than the MD because I am not. I just want to get better and feel better. Any advice how to connect with my Mayo appointment ahead of time? It isn't until August? Should I send a fax ahead of time saying who I am? I want to get better and get treated…all I have been given locally and not so locally is, here is pain meds and your headache isn't the cause of your brain issues. I want them to know me and see me and I am spending $ and scared I will leave another appointment disappointed and dismissed…

Jump to this post

If you have not read, see my list of items to prepare for appointment.
https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/?pg=1#comment-240765

This web page has a phone number for help with portal:
https://profile.mayoclinic.org/help?applicationId=c77283b6-1f64-4808-a8af-7bbc3c45595b
Even after you get registered for Portal, I think you can only send messages to dr you have already seen.

Prior to appointments at Mayo, I usually get a form to fill out as preparation for appt.

If you have medical records you want to send prior to appt., contact the person who scheduled your appt and ask about sending medical records or introduction letter. If unsure who to call, try calling central appt desk at 507-538-3270 and they can transfer to right appointment desk. If you have received a hard copy confirmation of appointment, there might be phone number on that.

Good luck
Laurie

REPLY
@cacoon6

Thank you for your reply! I thought I had a list…when I would start to ask my question within a minute I was told "No, headache is not a symtom of meniangiomas or adenomas or Rathkes Cleft Cysts" then one doctor at Northwestern when I asked about vision when his nurse was telling me I would be referred to a specialist 10 mins before he came in. He came back in the room and said you need to see an optometrist, held his hands over my eyes did a 30 second vision test and laughed after holding up no fingers saying "That was a trick question" He then came back in the room after walking out and said make sure you fill out my patient survey! So maybe I am asking the wrong question? I tried to sign up for the portal but it said I could not be verified…so I am not sure what I did wrong? Thanks, I will read through and see what I can find.

Jump to this post

Ha! You had my experience(s). I asked a question referencing Dr. Perlmutter, the neurologist on PBS & the Internet who frequently is a guest lecturer at Harvard, and I was told; "Why don't you just go home and die"….no lie!

I was dumbfounded. As a retired psychologist who worked with difficult and dangerous populations over my career, I never thought, much less said; 'Why don't you go home and die…or just go ahead and commit suicide'. I can't even relate to the mindset.

Dr. Mercola had an interesting article today that may explain some of the negative experiences so many people are having with doctors today….

Six in 10 U.S. adults now have chronic health conditions like cancer, heart disease, diabetes and stroke, and 4 in 10 have two or more of these diseases, according to the CDC.1,2
While many of these diseases can be blamed on drinking, smoking or overeating — in other words, "lifestyle" choices, most people don't realize that much of their health care and subsequent wellness depends solely on corporations that value their profits over your well-being –– corporations like insurers, health benefit managers and food and drug makers.
It's a sad fact that prevention of chronic health conditions is not a priority of these organizations –– healthy people do not need medical care, so no money is made by getting or keeping the population healthy.
According to the documentary, "The Big Secret," unethical profiteering on the public's health can be traced back to John D. Rockefeller, (1839–1937) a wealthy U.S. industrialist credited with creating much of our current medical system. Specifically, Rockefeller's foundations along with the Carnegie foundation, revamped medical schools to emphasize the use of drugs made by companies they owned, instead of a less-drug intensive model that had been in use in schools.3
This "drugs first" approach to health care continues today at medical schools and in traditional medical practice, both of which are enmeshed with Big Pharma. The "patent medicines" Rockefeller pushed have simply been replaced by brand name drugs.
The sham of statins
A good example of our current medical system's misplaced preference of drugs over prevention can be seen with statins. Statins have been a blockbuster for Big Pharma since they were first introduced, with4 Lipitor being the best-selling drug in the history of the pharmaceutical industry.5 Today, more than 1 in 4 Americans over age 45 are on a statin.6
Since statins lower cholesterol, it's assumed they lower the risk of heart disease, yet cholesterol levels are only one risk factor in heart disease and, therefore, statins are much less effective than touted. In fact, studies show that less than half of those on statins actually ever reach the cholesterol goals intended.7
The real truth is cholesterol is found in every cell in your body, where it helps to produce cell membranes, hormones (including the sex hormones testosterone, progesterone and estrogen) and bile acids that help you digest fat. It's also important for the production of vitamin D.
Additionally, as experts point out in "The Big Secret," cholesterol serves positive functions in the brain, hormone systems and many other parts of the human body, Moreover, there are negative effects from lowering it too much.
As I have written in my newsletters many times, statins are also associated with many dangerous side effects, from muscle aches and damage to inhibiting the enzyme that produces CoQ10 and ketones, which are crucial nutrients to feed your mitochondria. Statins also inhibit the synthesis of vitamin K2 which protects your arteries from calcification and plaque.
Advertisement

Doctors speak out against statins
Dr. Barbara H. Roberts, author of "The Truth About Statins," served as director of the Women's Cardiac Center at the Miriam Hospital in Providence, Rhode Island, and associate clinical professor of medicine at the Alpert Medical School of Brown University. She also spent two years at the National Heart, Lung and Blood Institute of the National Institutes of Health (NIH), where she was involved in statin clinical trials. This is what she had to say in 2012 about the use of statins in clinical practice:8
"Every week in my practice I see patients with serious side effects to statins, and many did not need to be treated with statins in the first place. These side effects range from debilitating muscle and joint pain to transient global amnesia, neuropathy, cognitive dysfunction, fatigue and muscle weakness.
Most of these symptoms subside or improve when they are taken off statins. There is even growing evidence of a statin link to Lou Gehrig's disease.
There is no question that many doctors have swallowed the Kool-Aid. Big Pharma has consistently exaggerated the benefits of statins and some physicians used scare tactics so that patients are afraid that if they go off the statins, they will have a heart attack immediately.
Yet high cholesterol, which the statins address, is a relatively weak risk factor for developing atherosclerosis. For example, diabetes and smoking are far more potent when it comes to increasing risk."
Rather than statins, simply donating blood reduces the risk of stroke by 70%, says Dr. Jonathan Wright in "The Big Secret." For more information on how this could be true, I encourage you to watch the video accompanying this article — you'll be shocked at how something as simple as a blood donation can work as well as or better than a drug.
Food that doesn't nourish
In 1971, President Richard Nixon's secretary of agriculture, Earl Butz, debuted a dangerous method of farming that continues today, in the form of the use of heavy synthetic fertilizers. With the advent of chemicals to "feed" it, farmland was no longer given a rest but tilled incessantly, resulting in serious mineral depletion.9
As a result studies show that fruits and vegetables today have less nourishing nutrients, thanks to this emphasis on size and quick growth of produce that Butz instituted. Of course, GMOs were to follow. Not surprisingly, Butz served as a board member on agribusiness companies that made the chemicals he promoted.
The drop in nutritional values in crops stems from widely used pesticides and herbicides which kill the bacteria that would otherwise predigest minerals and make them available to crops, says Peter Glidden, a naturopathic doctor featured in "The Big Secret" documentary.
What's worse, glyphosate, the ingredient in the herbicide Roundup, is highly correlated with liver, bile duct and thyroid cancers and stroke. And now, thanks to subpoenaed evidence produced in lawsuits against Roundup's manufacturer Monsanto, it's been proven that Monsanto (now Bayer) buried negative studies and attacked whistleblowers who tried to expose the danger of its popular herbicide.
The farmers are suffering too: Thanks to contracts forced on them by Monsanto and other agribusiness giants like DuPont and Syngenta, farmers can no longer save their seeds for planting or buy unpatented seeds, says farmer Paul Porter.
And, the environment suffers: Despite farmers' best efforts to avoid the harm of glyphosate and the many GMO seeds developed to survive the herbicide, glyphosate "drift" affects farmers who earnestly want to opt out of chemically produced food. Traces of glyphosate are now found everywhere, says the documentary –– in the soil, air, rain and even in most people's urine.
A dangerous sweetener made from corn
Another point "The Big Secret" makes is that the ubiquity of high fructose corn syrup (HFCS), used to sweeten soft drinks and many other processed foods, is also a result of an agriculture secretary's decision-making. John Block, who served from 1981 to 1986 under President Ronald Reagan, abruptly ceased sugar imports when he took office, and boosted the use of HFSC, made from government subsidized corn.
One problem with HFCS, though, is that it's highly correlated with metabolic syndrome –– the type of obesity in which fat is concentrated at the waist, resulting in more health risks than mere obesity –– and nonalcoholic fatty liver disease.
As an example, the documentary highlights a study of residents of a county in Texas where only soft drinks with real sugar were available. With no access to HFCS, these people had significantly less fatty liver disease, obesity and diabetes — highlighting the probable, deleterious effects of HFCS.
Next up on this revealing documentary's list is the U.S. government's campaign against fat, which began in 1980 and resulted in the low-fat craze — a move that got the science practically backward, says Dr. Robert Lustig. In this debacle, fat was blamed for the cardiovascular disease while fructose, the real culprit, was exonerated. "You would never think about giving your kid a beer, but you don't think twice about giving them a Coke. They do the same thing," he asserts.
The soft drink lobby has huge power
I know it's hard to believe that governments would not protect their constituents from harmful food. But, time and again industry wins over any concern government may express for your health. For example, soft drink makers wield a huge amount of economic power. This is how Mother Jones described the conundrum in 2016:10
"Soda companies give big bucks to groups that promote public health — while at the same time lobbying against laws that are trying to do the same.
That's the takeaway from a study [that showed] Coca-Cola and PepsiCo donated hundreds of thousands of dollars to groups like the American Diabetes Association, American Heart Association and Save the Children from 2011-2015. The two companies, represented by American Beverage Association, also spent millions lobbying to defeat legislation aimed at reducing soda consumption across the country.
Coke gave the National Institutes of health nearly $2 million in recent years while also spending $6 million each year from 2011 to 2015 to fight efforts on implementing soda tax in cities like Philadelphia."
The bottom line is, government is literally taking handouts from the very industries that are making you sick! When you consider that the chief agency in charge of your health — the CDC — has been caught in a cozy relationship with Coke, to the point of allowing the beverage giant to influencing research, it makes you wonder just who to trust when it comes to health and wellness.
Real food provides natural weight control
Here's an interesting thought that "The Big Secret" poses: What happens when food still contains all the minerals and nutrients it was meant to have — foods that haven't been depleted by chemical farming and genetic engineering? The answer is people stop eating when they have had enough and do not overeat, Glidden says.
You see, overeating and obesity are a direct result of consumers failing to receive the nourishment they crave. In other words, the body seeks nourishment that is not there and you just continue eating.
This "missing nutrient" effect may be seen, for example, with artificial sweeteners. Research in Trends in Endocrinology & Metabolism suggests that artificially sweetened beverages may paradoxically cause people to gain, not lose, weight.11
"The negative impact of consuming sugar-sweetened beverages on weight and other health outcomes has been increasingly recognized; therefore, many people have turned to high-intensity sweeteners like aspartame, sucralose, and saccharin as a way to reduce the risk of these consequences.
However, accumulating evidence suggests that frequent consumers of these sugar substitutes may also be at increased risk of excessive weight gain, metabolic syndrome, type 2 diabetes, and cardiovascular disease."
Artificial sweeteners also might be addictive unto themselves, according to a 2011 study conducted at the University of Bordeaux in France.12 Researchers found that rats, when they were given a choice between an artificial sweetener and cocaine, always picked the artificial sweetener. In fact, even cocaine-addicted rats chose the artificial sweetener.
Municipal fluoridation imperils public health
For many years I have warned against the dangers of fluoride in drinking water and its widespread use in municipal water systems, so you're probably aware of how industry has overtaken the very water you drink. Fluoride is an endocrine-disrupting chemical13 and linked to the rising prevalence of thyroid disease which, in turn, is linked to obesity, heart disease, depression and other health problems.
Research in Environmental Health also suggests a link between attention deficit hyperactivity disorder (ADHD) in children and adolescents in the United States, which has become epidemic, and exposure to fluoridated water.14
"State prevalence of artificial water fluoridation in 1992 significantly positively predicted state prevalence of ADHD in 2003, 2007 and 2011, even after controlling for socioeconomic status.
A multivariate regression analysis showed that after socioeconomic status was controlled each 1% increase in artificial fluoridation prevalence in 1992 was associated with approximately 67,000 to 131,000 additional ADHD diagnoses from 2003 to 2011.
Overall state water fluoridation prevalence (not distinguishing between fluoridation types) was also significantly positively correlated with state prevalence of ADHD for all but one year examined."
Municipal fluoridation, says "The Big Secret," saves local governments money by disposing of the neurotoxin while sparing the aluminum industry connected with its production, financial responsibility or harm.
There is also evidence that fluoride is an endocrine disruptor that can affect your bones, brain, thyroid, pineal gland and even your blood sugar levels.15 Importantly, it's a known neurotoxin shown to lower IQ in children.16,17 It's just another example of corporations and governments placing their profits over the public's well-being –– many of which are well described in "The Big Secret."
The message is clear: Many medicine practices, as well as popular foods and drugs are designed to make money, not protect public health.

REPLY
@jager5210

Ha! You had my experience(s). I asked a question referencing Dr. Perlmutter, the neurologist on PBS & the Internet who frequently is a guest lecturer at Harvard, and I was told; "Why don't you just go home and die"….no lie!

I was dumbfounded. As a retired psychologist who worked with difficult and dangerous populations over my career, I never thought, much less said; 'Why don't you go home and die…or just go ahead and commit suicide'. I can't even relate to the mindset.

Dr. Mercola had an interesting article today that may explain some of the negative experiences so many people are having with doctors today….

Six in 10 U.S. adults now have chronic health conditions like cancer, heart disease, diabetes and stroke, and 4 in 10 have two or more of these diseases, according to the CDC.1,2
While many of these diseases can be blamed on drinking, smoking or overeating — in other words, "lifestyle" choices, most people don't realize that much of their health care and subsequent wellness depends solely on corporations that value their profits over your well-being –– corporations like insurers, health benefit managers and food and drug makers.
It's a sad fact that prevention of chronic health conditions is not a priority of these organizations –– healthy people do not need medical care, so no money is made by getting or keeping the population healthy.
According to the documentary, "The Big Secret," unethical profiteering on the public's health can be traced back to John D. Rockefeller, (1839–1937) a wealthy U.S. industrialist credited with creating much of our current medical system. Specifically, Rockefeller's foundations along with the Carnegie foundation, revamped medical schools to emphasize the use of drugs made by companies they owned, instead of a less-drug intensive model that had been in use in schools.3
This "drugs first" approach to health care continues today at medical schools and in traditional medical practice, both of which are enmeshed with Big Pharma. The "patent medicines" Rockefeller pushed have simply been replaced by brand name drugs.
The sham of statins
A good example of our current medical system's misplaced preference of drugs over prevention can be seen with statins. Statins have been a blockbuster for Big Pharma since they were first introduced, with4 Lipitor being the best-selling drug in the history of the pharmaceutical industry.5 Today, more than 1 in 4 Americans over age 45 are on a statin.6
Since statins lower cholesterol, it's assumed they lower the risk of heart disease, yet cholesterol levels are only one risk factor in heart disease and, therefore, statins are much less effective than touted. In fact, studies show that less than half of those on statins actually ever reach the cholesterol goals intended.7
The real truth is cholesterol is found in every cell in your body, where it helps to produce cell membranes, hormones (including the sex hormones testosterone, progesterone and estrogen) and bile acids that help you digest fat. It's also important for the production of vitamin D.
Additionally, as experts point out in "The Big Secret," cholesterol serves positive functions in the brain, hormone systems and many other parts of the human body, Moreover, there are negative effects from lowering it too much.
As I have written in my newsletters many times, statins are also associated with many dangerous side effects, from muscle aches and damage to inhibiting the enzyme that produces CoQ10 and ketones, which are crucial nutrients to feed your mitochondria. Statins also inhibit the synthesis of vitamin K2 which protects your arteries from calcification and plaque.
Advertisement

Doctors speak out against statins
Dr. Barbara H. Roberts, author of "The Truth About Statins," served as director of the Women's Cardiac Center at the Miriam Hospital in Providence, Rhode Island, and associate clinical professor of medicine at the Alpert Medical School of Brown University. She also spent two years at the National Heart, Lung and Blood Institute of the National Institutes of Health (NIH), where she was involved in statin clinical trials. This is what she had to say in 2012 about the use of statins in clinical practice:8
"Every week in my practice I see patients with serious side effects to statins, and many did not need to be treated with statins in the first place. These side effects range from debilitating muscle and joint pain to transient global amnesia, neuropathy, cognitive dysfunction, fatigue and muscle weakness.
Most of these symptoms subside or improve when they are taken off statins. There is even growing evidence of a statin link to Lou Gehrig's disease.
There is no question that many doctors have swallowed the Kool-Aid. Big Pharma has consistently exaggerated the benefits of statins and some physicians used scare tactics so that patients are afraid that if they go off the statins, they will have a heart attack immediately.
Yet high cholesterol, which the statins address, is a relatively weak risk factor for developing atherosclerosis. For example, diabetes and smoking are far more potent when it comes to increasing risk."
Rather than statins, simply donating blood reduces the risk of stroke by 70%, says Dr. Jonathan Wright in "The Big Secret." For more information on how this could be true, I encourage you to watch the video accompanying this article — you'll be shocked at how something as simple as a blood donation can work as well as or better than a drug.
Food that doesn't nourish
In 1971, President Richard Nixon's secretary of agriculture, Earl Butz, debuted a dangerous method of farming that continues today, in the form of the use of heavy synthetic fertilizers. With the advent of chemicals to "feed" it, farmland was no longer given a rest but tilled incessantly, resulting in serious mineral depletion.9
As a result studies show that fruits and vegetables today have less nourishing nutrients, thanks to this emphasis on size and quick growth of produce that Butz instituted. Of course, GMOs were to follow. Not surprisingly, Butz served as a board member on agribusiness companies that made the chemicals he promoted.
The drop in nutritional values in crops stems from widely used pesticides and herbicides which kill the bacteria that would otherwise predigest minerals and make them available to crops, says Peter Glidden, a naturopathic doctor featured in "The Big Secret" documentary.
What's worse, glyphosate, the ingredient in the herbicide Roundup, is highly correlated with liver, bile duct and thyroid cancers and stroke. And now, thanks to subpoenaed evidence produced in lawsuits against Roundup's manufacturer Monsanto, it's been proven that Monsanto (now Bayer) buried negative studies and attacked whistleblowers who tried to expose the danger of its popular herbicide.
The farmers are suffering too: Thanks to contracts forced on them by Monsanto and other agribusiness giants like DuPont and Syngenta, farmers can no longer save their seeds for planting or buy unpatented seeds, says farmer Paul Porter.
And, the environment suffers: Despite farmers' best efforts to avoid the harm of glyphosate and the many GMO seeds developed to survive the herbicide, glyphosate "drift" affects farmers who earnestly want to opt out of chemically produced food. Traces of glyphosate are now found everywhere, says the documentary –– in the soil, air, rain and even in most people's urine.
A dangerous sweetener made from corn
Another point "The Big Secret" makes is that the ubiquity of high fructose corn syrup (HFCS), used to sweeten soft drinks and many other processed foods, is also a result of an agriculture secretary's decision-making. John Block, who served from 1981 to 1986 under President Ronald Reagan, abruptly ceased sugar imports when he took office, and boosted the use of HFSC, made from government subsidized corn.
One problem with HFCS, though, is that it's highly correlated with metabolic syndrome –– the type of obesity in which fat is concentrated at the waist, resulting in more health risks than mere obesity –– and nonalcoholic fatty liver disease.
As an example, the documentary highlights a study of residents of a county in Texas where only soft drinks with real sugar were available. With no access to HFCS, these people had significantly less fatty liver disease, obesity and diabetes — highlighting the probable, deleterious effects of HFCS.
Next up on this revealing documentary's list is the U.S. government's campaign against fat, which began in 1980 and resulted in the low-fat craze — a move that got the science practically backward, says Dr. Robert Lustig. In this debacle, fat was blamed for the cardiovascular disease while fructose, the real culprit, was exonerated. "You would never think about giving your kid a beer, but you don't think twice about giving them a Coke. They do the same thing," he asserts.
The soft drink lobby has huge power
I know it's hard to believe that governments would not protect their constituents from harmful food. But, time and again industry wins over any concern government may express for your health. For example, soft drink makers wield a huge amount of economic power. This is how Mother Jones described the conundrum in 2016:10
"Soda companies give big bucks to groups that promote public health — while at the same time lobbying against laws that are trying to do the same.
That's the takeaway from a study [that showed] Coca-Cola and PepsiCo donated hundreds of thousands of dollars to groups like the American Diabetes Association, American Heart Association and Save the Children from 2011-2015. The two companies, represented by American Beverage Association, also spent millions lobbying to defeat legislation aimed at reducing soda consumption across the country.
Coke gave the National Institutes of health nearly $2 million in recent years while also spending $6 million each year from 2011 to 2015 to fight efforts on implementing soda tax in cities like Philadelphia."
The bottom line is, government is literally taking handouts from the very industries that are making you sick! When you consider that the chief agency in charge of your health — the CDC — has been caught in a cozy relationship with Coke, to the point of allowing the beverage giant to influencing research, it makes you wonder just who to trust when it comes to health and wellness.
Real food provides natural weight control
Here's an interesting thought that "The Big Secret" poses: What happens when food still contains all the minerals and nutrients it was meant to have — foods that haven't been depleted by chemical farming and genetic engineering? The answer is people stop eating when they have had enough and do not overeat, Glidden says.
You see, overeating and obesity are a direct result of consumers failing to receive the nourishment they crave. In other words, the body seeks nourishment that is not there and you just continue eating.
This "missing nutrient" effect may be seen, for example, with artificial sweeteners. Research in Trends in Endocrinology & Metabolism suggests that artificially sweetened beverages may paradoxically cause people to gain, not lose, weight.11
"The negative impact of consuming sugar-sweetened beverages on weight and other health outcomes has been increasingly recognized; therefore, many people have turned to high-intensity sweeteners like aspartame, sucralose, and saccharin as a way to reduce the risk of these consequences.
However, accumulating evidence suggests that frequent consumers of these sugar substitutes may also be at increased risk of excessive weight gain, metabolic syndrome, type 2 diabetes, and cardiovascular disease."
Artificial sweeteners also might be addictive unto themselves, according to a 2011 study conducted at the University of Bordeaux in France.12 Researchers found that rats, when they were given a choice between an artificial sweetener and cocaine, always picked the artificial sweetener. In fact, even cocaine-addicted rats chose the artificial sweetener.
Municipal fluoridation imperils public health
For many years I have warned against the dangers of fluoride in drinking water and its widespread use in municipal water systems, so you're probably aware of how industry has overtaken the very water you drink. Fluoride is an endocrine-disrupting chemical13 and linked to the rising prevalence of thyroid disease which, in turn, is linked to obesity, heart disease, depression and other health problems.
Research in Environmental Health also suggests a link between attention deficit hyperactivity disorder (ADHD) in children and adolescents in the United States, which has become epidemic, and exposure to fluoridated water.14
"State prevalence of artificial water fluoridation in 1992 significantly positively predicted state prevalence of ADHD in 2003, 2007 and 2011, even after controlling for socioeconomic status.
A multivariate regression analysis showed that after socioeconomic status was controlled each 1% increase in artificial fluoridation prevalence in 1992 was associated with approximately 67,000 to 131,000 additional ADHD diagnoses from 2003 to 2011.
Overall state water fluoridation prevalence (not distinguishing between fluoridation types) was also significantly positively correlated with state prevalence of ADHD for all but one year examined."
Municipal fluoridation, says "The Big Secret," saves local governments money by disposing of the neurotoxin while sparing the aluminum industry connected with its production, financial responsibility or harm.
There is also evidence that fluoride is an endocrine disruptor that can affect your bones, brain, thyroid, pineal gland and even your blood sugar levels.15 Importantly, it's a known neurotoxin shown to lower IQ in children.16,17 It's just another example of corporations and governments placing their profits over the public's well-being –– many of which are well described in "The Big Secret."
The message is clear: Many medicine practices, as well as popular foods and drugs are designed to make money, not protect public health.

Jump to this post

Oh my goodness! That is crazy that a so called professional would say that to you! It makes me so angry and sad for others that also have these types of experience.
I also have thought it might be pharma as all the doctors I have seen have given me more than 2 meds each, (none have worked) so I don't take them. I have children in the house and I don't need things lying around so I have gotten rid of all of them. I don't take anything for any other problems (knock wood) I was taking a supplement and apple cider vinegar tabs, but stopped all because I wasn't sure what was contributing to the headache so just on my maintainance med to avoid a seizure.
I am a vegetarian and we eat as much organic as we can, so I try to be healthy and live a natural lifestyle. I am hoping the Mayo Clinic can see me and not dismiss my concerns. I am willing to have treatment over pills thrown my way and dismissed that headaches are not caused by tumors, Thanks for the intersting read…and I am sorry that you were also treated the way you were.

REPLY
@roch

If you have not read, see my list of items to prepare for appointment.
https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/?pg=1#comment-240765

This web page has a phone number for help with portal:
https://profile.mayoclinic.org/help?applicationId=c77283b6-1f64-4808-a8af-7bbc3c45595b
Even after you get registered for Portal, I think you can only send messages to dr you have already seen.

Prior to appointments at Mayo, I usually get a form to fill out as preparation for appt.

If you have medical records you want to send prior to appt., contact the person who scheduled your appt and ask about sending medical records or introduction letter. If unsure who to call, try calling central appt desk at 507-538-3270 and they can transfer to right appointment desk. If you have received a hard copy confirmation of appointment, there might be phone number on that.

Good luck
Laurie

Jump to this post

@roch Laurie – thank you so much for this helpful advice. You have nailed it. I can't add a thing. Great comment!!

REPLY
@cacoon6

Hello, I know this is an older post but I would love some feedback. I have been disappointed as of late with my lack of healthcare. I was recently dx with some brain issues which are scary enough. I am a Mom of 4 and worked in the medical field all my life (not an RN). But, have been pretty healthy minus a few surgeries in the past. I started to do my research from evidence based websites with my condition and the last neuro I saw seemed to use that against me by saying "You are educated" I never try to act smarter than the MD because I am not. I just want to get better and feel better. Any advice how to connect with my Mayo appointment ahead of time? It isn't until August? Should I send a fax ahead of time saying who I am? I want to get better and get treated…all I have been given locally and not so locally is, here is pain meds and your headache isn't the cause of your brain issues. I want them to know me and see me and I am spending $ and scared I will leave another appointment disappointed and dismissed…

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@cacoon6
It must be very frustrating for you and I can appreciate your sense of urgency. Have you given Mayo permission to gather all your medical records? Have you asked to be put on a waiting list for an earlier appointment? The one thing which you have control over is gathering up all the test results you can put your hands on, and writing up a chronological list of who you've seen and for what; what they prescribed; how you reacted to it; if it helped… that kind of thing. I'm guessing that, it would be most appreciated by whomever your appointment is with, as it will give him/her a bigger picture and in writing without having to spend valuable time questioning you, and you relying on your memory. It's a thought….

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@roch

Great idea to prepare information on how to prepare. I hope you ask some appointment coordinators, nurses and doctors for their input also.

I try to be as prepared for any questions the doctor might ask and have a list of questions for the doctor. The more prepared I am, the more efficient the appointment will be. I would rather have too much information with me then not enough.

Think back to other doctors' appointments, what questions did the nurse or doctor ask. Be prepared to answer those questions again.

I have been a patient of Mayo my entire life, and all my information is online, I still bring the following list to my appointment just in case. Even though information is online, it does take time for a doctor to find. If he wants to look up details, it is nice to have dates of previous tests, etc…

My suggestions:

1. Make sure your appointment is with right specialist. At Mayo the appointment coordinators should be able to help. Just because a friend saw a certain doctor, he/she might not be correct specialist for your condition.
2. Have your referring doctor send all medical records (preferable electronically). In addition, bring a copy with you just in case something gets misplaced. Again, preferable on a disk.
3. In addition, I always have the following with documents with me:
○ List of all medications I take, who prescribed, why I take that medication, how long I have taken that medication.
○ If there are other medications I have taken in recently that I no longer take, it is nice to have that information also. Maybe your previous doctor recommended something and it did not work. You want your new doctor to know this information.
○ Your list should include all prescribed and over the counter medication.
○ You might want to bring all the bottles with you so there is no question about dosages.
○ List of all allergies
○ List of all surgeries, date and location.
○ List of all medical conditions, when diagnosed and are you still being treated for this condition. A specialist is not there to treat all your problems, but something may be related to your current problem.
4. Write down your understanding of current problem and list of symptoms. Be specific.
a. When did symptoms start
b. How are you treating the symptoms
c. Does anything make them worse or better.
d. What tests have been done for current problem, date, location, results
5. Write down your questions related to current problem in order of importance. At end of appointment, look through your list and see if they have been answered.
6. Take notes, the doctor's summary will be available online after your appointment. If he tells you something and you do not know how to spell it, ask him to write it down.

If your appointment is at Mayo, and you use the internet register for the Mayo Portal. It is great reference to double check appointment information, fill out forms, check results and see doctor notes. Even if you fill out form online, also bring information to appointment. And if use a smart phone, download app.

Hope this helps.
Laurie

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Excellent! May I also add that u should ask about the implications of treatment & qualiy of life!

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@elizm

@cacoon6
It must be very frustrating for you and I can appreciate your sense of urgency. Have you given Mayo permission to gather all your medical records? Have you asked to be put on a waiting list for an earlier appointment? The one thing which you have control over is gathering up all the test results you can put your hands on, and writing up a chronological list of who you've seen and for what; what they prescribed; how you reacted to it; if it helped… that kind of thing. I'm guessing that, it would be most appreciated by whomever your appointment is with, as it will give him/her a bigger picture and in writing without having to spend valuable time questioning you, and you relying on your memory. It's a thought….

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@elizm great suggestions. I will definitely keep these reminders.
JK

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@cacoon6

Hello, I know this is an older post but I would love some feedback. I have been disappointed as of late with my lack of healthcare. I was recently dx with some brain issues which are scary enough. I am a Mom of 4 and worked in the medical field all my life (not an RN). But, have been pretty healthy minus a few surgeries in the past. I started to do my research from evidence based websites with my condition and the last neuro I saw seemed to use that against me by saying "You are educated" I never try to act smarter than the MD because I am not. I just want to get better and feel better. Any advice how to connect with my Mayo appointment ahead of time? It isn't until August? Should I send a fax ahead of time saying who I am? I want to get better and get treated…all I have been given locally and not so locally is, here is pain meds and your headache isn't the cause of your brain issues. I want them to know me and see me and I am spending $ and scared I will leave another appointment disappointed and dismissed…

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Good luck

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@jager5210

Ha! You had my experience(s). I asked a question referencing Dr. Perlmutter, the neurologist on PBS & the Internet who frequently is a guest lecturer at Harvard, and I was told; "Why don't you just go home and die"….no lie!

I was dumbfounded. As a retired psychologist who worked with difficult and dangerous populations over my career, I never thought, much less said; 'Why don't you go home and die…or just go ahead and commit suicide'. I can't even relate to the mindset.

Dr. Mercola had an interesting article today that may explain some of the negative experiences so many people are having with doctors today….

Six in 10 U.S. adults now have chronic health conditions like cancer, heart disease, diabetes and stroke, and 4 in 10 have two or more of these diseases, according to the CDC.1,2
While many of these diseases can be blamed on drinking, smoking or overeating — in other words, "lifestyle" choices, most people don't realize that much of their health care and subsequent wellness depends solely on corporations that value their profits over your well-being –– corporations like insurers, health benefit managers and food and drug makers.
It's a sad fact that prevention of chronic health conditions is not a priority of these organizations –– healthy people do not need medical care, so no money is made by getting or keeping the population healthy.
According to the documentary, "The Big Secret," unethical profiteering on the public's health can be traced back to John D. Rockefeller, (1839–1937) a wealthy U.S. industrialist credited with creating much of our current medical system. Specifically, Rockefeller's foundations along with the Carnegie foundation, revamped medical schools to emphasize the use of drugs made by companies they owned, instead of a less-drug intensive model that had been in use in schools.3
This "drugs first" approach to health care continues today at medical schools and in traditional medical practice, both of which are enmeshed with Big Pharma. The "patent medicines" Rockefeller pushed have simply been replaced by brand name drugs.
The sham of statins
A good example of our current medical system's misplaced preference of drugs over prevention can be seen with statins. Statins have been a blockbuster for Big Pharma since they were first introduced, with4 Lipitor being the best-selling drug in the history of the pharmaceutical industry.5 Today, more than 1 in 4 Americans over age 45 are on a statin.6
Since statins lower cholesterol, it's assumed they lower the risk of heart disease, yet cholesterol levels are only one risk factor in heart disease and, therefore, statins are much less effective than touted. In fact, studies show that less than half of those on statins actually ever reach the cholesterol goals intended.7
The real truth is cholesterol is found in every cell in your body, where it helps to produce cell membranes, hormones (including the sex hormones testosterone, progesterone and estrogen) and bile acids that help you digest fat. It's also important for the production of vitamin D.
Additionally, as experts point out in "The Big Secret," cholesterol serves positive functions in the brain, hormone systems and many other parts of the human body, Moreover, there are negative effects from lowering it too much.
As I have written in my newsletters many times, statins are also associated with many dangerous side effects, from muscle aches and damage to inhibiting the enzyme that produces CoQ10 and ketones, which are crucial nutrients to feed your mitochondria. Statins also inhibit the synthesis of vitamin K2 which protects your arteries from calcification and plaque.
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Doctors speak out against statins
Dr. Barbara H. Roberts, author of "The Truth About Statins," served as director of the Women's Cardiac Center at the Miriam Hospital in Providence, Rhode Island, and associate clinical professor of medicine at the Alpert Medical School of Brown University. She also spent two years at the National Heart, Lung and Blood Institute of the National Institutes of Health (NIH), where she was involved in statin clinical trials. This is what she had to say in 2012 about the use of statins in clinical practice:8
"Every week in my practice I see patients with serious side effects to statins, and many did not need to be treated with statins in the first place. These side effects range from debilitating muscle and joint pain to transient global amnesia, neuropathy, cognitive dysfunction, fatigue and muscle weakness.
Most of these symptoms subside or improve when they are taken off statins. There is even growing evidence of a statin link to Lou Gehrig's disease.
There is no question that many doctors have swallowed the Kool-Aid. Big Pharma has consistently exaggerated the benefits of statins and some physicians used scare tactics so that patients are afraid that if they go off the statins, they will have a heart attack immediately.
Yet high cholesterol, which the statins address, is a relatively weak risk factor for developing atherosclerosis. For example, diabetes and smoking are far more potent when it comes to increasing risk."
Rather than statins, simply donating blood reduces the risk of stroke by 70%, says Dr. Jonathan Wright in "The Big Secret." For more information on how this could be true, I encourage you to watch the video accompanying this article — you'll be shocked at how something as simple as a blood donation can work as well as or better than a drug.
Food that doesn't nourish
In 1971, President Richard Nixon's secretary of agriculture, Earl Butz, debuted a dangerous method of farming that continues today, in the form of the use of heavy synthetic fertilizers. With the advent of chemicals to "feed" it, farmland was no longer given a rest but tilled incessantly, resulting in serious mineral depletion.9
As a result studies show that fruits and vegetables today have less nourishing nutrients, thanks to this emphasis on size and quick growth of produce that Butz instituted. Of course, GMOs were to follow. Not surprisingly, Butz served as a board member on agribusiness companies that made the chemicals he promoted.
The drop in nutritional values in crops stems from widely used pesticides and herbicides which kill the bacteria that would otherwise predigest minerals and make them available to crops, says Peter Glidden, a naturopathic doctor featured in "The Big Secret" documentary.
What's worse, glyphosate, the ingredient in the herbicide Roundup, is highly correlated with liver, bile duct and thyroid cancers and stroke. And now, thanks to subpoenaed evidence produced in lawsuits against Roundup's manufacturer Monsanto, it's been proven that Monsanto (now Bayer) buried negative studies and attacked whistleblowers who tried to expose the danger of its popular herbicide.
The farmers are suffering too: Thanks to contracts forced on them by Monsanto and other agribusiness giants like DuPont and Syngenta, farmers can no longer save their seeds for planting or buy unpatented seeds, says farmer Paul Porter.
And, the environment suffers: Despite farmers' best efforts to avoid the harm of glyphosate and the many GMO seeds developed to survive the herbicide, glyphosate "drift" affects farmers who earnestly want to opt out of chemically produced food. Traces of glyphosate are now found everywhere, says the documentary –– in the soil, air, rain and even in most people's urine.
A dangerous sweetener made from corn
Another point "The Big Secret" makes is that the ubiquity of high fructose corn syrup (HFCS), used to sweeten soft drinks and many other processed foods, is also a result of an agriculture secretary's decision-making. John Block, who served from 1981 to 1986 under President Ronald Reagan, abruptly ceased sugar imports when he took office, and boosted the use of HFSC, made from government subsidized corn.
One problem with HFCS, though, is that it's highly correlated with metabolic syndrome –– the type of obesity in which fat is concentrated at the waist, resulting in more health risks than mere obesity –– and nonalcoholic fatty liver disease.
As an example, the documentary highlights a study of residents of a county in Texas where only soft drinks with real sugar were available. With no access to HFCS, these people had significantly less fatty liver disease, obesity and diabetes — highlighting the probable, deleterious effects of HFCS.
Next up on this revealing documentary's list is the U.S. government's campaign against fat, which began in 1980 and resulted in the low-fat craze — a move that got the science practically backward, says Dr. Robert Lustig. In this debacle, fat was blamed for the cardiovascular disease while fructose, the real culprit, was exonerated. "You would never think about giving your kid a beer, but you don't think twice about giving them a Coke. They do the same thing," he asserts.
The soft drink lobby has huge power
I know it's hard to believe that governments would not protect their constituents from harmful food. But, time and again industry wins over any concern government may express for your health. For example, soft drink makers wield a huge amount of economic power. This is how Mother Jones described the conundrum in 2016:10
"Soda companies give big bucks to groups that promote public health — while at the same time lobbying against laws that are trying to do the same.
That's the takeaway from a study [that showed] Coca-Cola and PepsiCo donated hundreds of thousands of dollars to groups like the American Diabetes Association, American Heart Association and Save the Children from 2011-2015. The two companies, represented by American Beverage Association, also spent millions lobbying to defeat legislation aimed at reducing soda consumption across the country.
Coke gave the National Institutes of health nearly $2 million in recent years while also spending $6 million each year from 2011 to 2015 to fight efforts on implementing soda tax in cities like Philadelphia."
The bottom line is, government is literally taking handouts from the very industries that are making you sick! When you consider that the chief agency in charge of your health — the CDC — has been caught in a cozy relationship with Coke, to the point of allowing the beverage giant to influencing research, it makes you wonder just who to trust when it comes to health and wellness.
Real food provides natural weight control
Here's an interesting thought that "The Big Secret" poses: What happens when food still contains all the minerals and nutrients it was meant to have — foods that haven't been depleted by chemical farming and genetic engineering? The answer is people stop eating when they have had enough and do not overeat, Glidden says.
You see, overeating and obesity are a direct result of consumers failing to receive the nourishment they crave. In other words, the body seeks nourishment that is not there and you just continue eating.
This "missing nutrient" effect may be seen, for example, with artificial sweeteners. Research in Trends in Endocrinology & Metabolism suggests that artificially sweetened beverages may paradoxically cause people to gain, not lose, weight.11
"The negative impact of consuming sugar-sweetened beverages on weight and other health outcomes has been increasingly recognized; therefore, many people have turned to high-intensity sweeteners like aspartame, sucralose, and saccharin as a way to reduce the risk of these consequences.
However, accumulating evidence suggests that frequent consumers of these sugar substitutes may also be at increased risk of excessive weight gain, metabolic syndrome, type 2 diabetes, and cardiovascular disease."
Artificial sweeteners also might be addictive unto themselves, according to a 2011 study conducted at the University of Bordeaux in France.12 Researchers found that rats, when they were given a choice between an artificial sweetener and cocaine, always picked the artificial sweetener. In fact, even cocaine-addicted rats chose the artificial sweetener.
Municipal fluoridation imperils public health
For many years I have warned against the dangers of fluoride in drinking water and its widespread use in municipal water systems, so you're probably aware of how industry has overtaken the very water you drink. Fluoride is an endocrine-disrupting chemical13 and linked to the rising prevalence of thyroid disease which, in turn, is linked to obesity, heart disease, depression and other health problems.
Research in Environmental Health also suggests a link between attention deficit hyperactivity disorder (ADHD) in children and adolescents in the United States, which has become epidemic, and exposure to fluoridated water.14
"State prevalence of artificial water fluoridation in 1992 significantly positively predicted state prevalence of ADHD in 2003, 2007 and 2011, even after controlling for socioeconomic status.
A multivariate regression analysis showed that after socioeconomic status was controlled each 1% increase in artificial fluoridation prevalence in 1992 was associated with approximately 67,000 to 131,000 additional ADHD diagnoses from 2003 to 2011.
Overall state water fluoridation prevalence (not distinguishing between fluoridation types) was also significantly positively correlated with state prevalence of ADHD for all but one year examined."
Municipal fluoridation, says "The Big Secret," saves local governments money by disposing of the neurotoxin while sparing the aluminum industry connected with its production, financial responsibility or harm.
There is also evidence that fluoride is an endocrine disruptor that can affect your bones, brain, thyroid, pineal gland and even your blood sugar levels.15 Importantly, it's a known neurotoxin shown to lower IQ in children.16,17 It's just another example of corporations and governments placing their profits over the public's well-being –– many of which are well described in "The Big Secret."
The message is clear: Many medicine practices, as well as popular foods and drugs are designed to make money, not protect public health.

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My PCP has advised for me to begin taking a statin. My cholesterol is 210 ( I am 76 yrs old and have been working out my entire adult life). I had a brain tumor removed from my optic nerve 12/18 and then a subdural bilateral bleed requiring a craniotomy and burr hole on 2/22/19. On 3/13/19 had to have another emergency surgery for a bleed requiring another craniotomy and burr hole. This bleed also caused a midline shift. All of the above put me at a higher risk for a stroke therefor the recommendation of a statin. I am not convinced that this is necessary and am very interested in your information. If you have any other information that may help me decide I would be very interested.

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Hi! I feel your neurologist’s attitude and how you were treated totally unacceptable!! I am SO glad you have an appointment at the Mayo and SO glad you have joined Mayo Connect!!! I strongly believe that if anyone will help you it will be a doctor there. I have RARELY met anyone who has not had a good experience and I have talked to many over the years with all kinds of issues. I would certainly suggest that you call the neurology department at the Mayo now about your future appointment If you are being seen in Rochester MN the number is (507) 284-1005. They suggest that you call everyday or so to see if there is a cancellation. When I was diagnosed last year with PD(have you had a diagnosis yet to determine your condition?) my appointment was a month out. I called daily for a few days and got in a week later. I LOVE my neurologist!!!! He treats me with respect and concern and never makes me feel like I am out of line talking about all of the things I have found out about PD by searching the web. I was certainly shocked and frightened when I was diagnosed, but I am now on Levedopa Carbidopa. My symptoms are pretty much under control and I feel quite good. There is certainly help out there for you. My thoughts and prayers go out to you.

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@cacoon6

Hello, I know this is an older post but I would love some feedback. I have been disappointed as of late with my lack of healthcare. I was recently dx with some brain issues which are scary enough. I am a Mom of 4 and worked in the medical field all my life (not an RN). But, have been pretty healthy minus a few surgeries in the past. I started to do my research from evidence based websites with my condition and the last neuro I saw seemed to use that against me by saying "You are educated" I never try to act smarter than the MD because I am not. I just want to get better and feel better. Any advice how to connect with my Mayo appointment ahead of time? It isn't until August? Should I send a fax ahead of time saying who I am? I want to get better and get treated…all I have been given locally and not so locally is, here is pain meds and your headache isn't the cause of your brain issues. I want them to know me and see me and I am spending $ and scared I will leave another appointment disappointed and dismissed…

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I recently changed my lung treatment from a pulmonologist I had been seeing at Northwestern to one at University of Chicago. This is what I learned about medical records and first appointments:

1. Doctors can access your test results on line through an Epic program. If you have a number of tests wrt the relevant condition, I recommend taking a list of the test dates to save the doctor time spent scrolling through multiple test results.

2. Doctor's notes are not available online so you need to obtain them. Frankly if I had seen my former pulmonologist"s notes re my many appointments with her, I would have left her practice long ago. She wrote that most of every appointment was spent on counseling. That"s how she saw my questions re why she was ordering frequent ct scans although the radiologist reported there may be an infection but no sputum tests and whether a newer drug was better for me than the ones I was taking. Sigh.

I used to take my questions on paper but now I have a notes app on my phone. I sometimes stop in the waiting room on the way out and write the answers before I forget what s/he said.

3. While ct scan reports are available online the actual ct scan needs to be put on a disc. Specialists like to go over the actual scan and will put your disc contents into your records for future reference.

4. I hope this doesn't sound crass but doctors are only paid for the time with you. Any fax or letter will most likely be weeded out by his nurse or assistant. The doctor knows you are there because you want help with your medical condition – a condition he or she is very interested in hence the years of specialty training.

That"s all I can think of right now. Hope it helps and good luck on your appointment.

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@susan62

Hi! I feel your neurologist’s attitude and how you were treated totally unacceptable!! I am SO glad you have an appointment at the Mayo and SO glad you have joined Mayo Connect!!! I strongly believe that if anyone will help you it will be a doctor there. I have RARELY met anyone who has not had a good experience and I have talked to many over the years with all kinds of issues. I would certainly suggest that you call the neurology department at the Mayo now about your future appointment If you are being seen in Rochester MN the number is (507) 284-1005. They suggest that you call everyday or so to see if there is a cancellation. When I was diagnosed last year with PD(have you had a diagnosis yet to determine your condition?) my appointment was a month out. I called daily for a few days and got in a week later. I LOVE my neurologist!!!! He treats me with respect and concern and never makes me feel like I am out of line talking about all of the things I have found out about PD by searching the web. I was certainly shocked and frightened when I was diagnosed, but I am now on Levedopa Carbidopa. My symptoms are pretty much under control and I feel quite good. There is certainly help out there for you. My thoughts and prayers go out to you.

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@susan8 I lived outside of Manchester, NH and go to the Boston area for most of my medical care. People up here think that the care in the big city hospitals is uncaring and impersonal but I find just the opposite to be true. My primary Boston hospital is Mass General but I have also had care at doctors associated with Brigham and Women's and Mount Auburn in Cambridge. The doctors I have seen are far more attentive than the doctors here are. Such an irony. I adore Mass General.
JK

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@susan62

Hi! I feel your neurologist’s attitude and how you were treated totally unacceptable!! I am SO glad you have an appointment at the Mayo and SO glad you have joined Mayo Connect!!! I strongly believe that if anyone will help you it will be a doctor there. I have RARELY met anyone who has not had a good experience and I have talked to many over the years with all kinds of issues. I would certainly suggest that you call the neurology department at the Mayo now about your future appointment If you are being seen in Rochester MN the number is (507) 284-1005. They suggest that you call everyday or so to see if there is a cancellation. When I was diagnosed last year with PD(have you had a diagnosis yet to determine your condition?) my appointment was a month out. I called daily for a few days and got in a week later. I LOVE my neurologist!!!! He treats me with respect and concern and never makes me feel like I am out of line talking about all of the things I have found out about PD by searching the web. I was certainly shocked and frightened when I was diagnosed, but I am now on Levedopa Carbidopa. My symptoms are pretty much under control and I feel quite good. There is certainly help out there for you. My thoughts and prayers go out to you.

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Thank you, he has been on carbidopa levodopa for 6 months, aricept for 6 months and amantadine for 3 weeks.
He has lost 30 lbs. since December when first diagnosed so was taken off of aricept, that can cause weight loss. He got the shakes from carbidopa levodopa and amantadine.
I am retiring early to stay home with him. Perhaps it will help?

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