Your Tips on How to Get Off to the Best Start with a New Specialist

I’m looking for your best tips.
Starting a relationship with a new specialist can be daunting. You want to get off to a good start and ensure that you establish mutual respect and are able to develop trust. You want to know you’re in good hands. What is their expertise and experience? What research are they doing? Will they listen and consider your input?

How do you get off to the best start with a new provider? What suggestions would you tell a friend who is going to see a new doctor?

@resawaller

It wasn't me that had a bone fracture! I have Chiari malformation, and a cyst on my spine. They want to cut my head open and remove a piece of my SKULL to relieve the pressure on my spinal cord. And they don t know what's causing the nerve damage on my left side! They are hoping the surgery will help! I'm scared to death! And my husband of 30 yrs dnt want me to have the surgery! Thanks for the repely

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@resawaller That does sound very scary! Definitely something that deserves a lot of thought and research.
JK

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@lioness

@jenniferhunter Thanks for the information Jennifer . The Dr. told me the Khyphoplasty as the last suggestion so I took that he wasn't in favor or it. When in 05 I fractured the L2 they wanted to put cement in I talked it over with a lot of people and decided against it for lots of reasons , then when I came here a friend had it and it and it did break of I was so glad I didn't have it . I'm doing what my chiropractor told me about ice,heat and tens unit my back does feel better and I think is healing on its own. I have scheduled an appointment with my pain Dr. He will have the results also. Thanks for your concern

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I am sure every case is different but the Mayo doctors advised my husband against it. The explanation was that it would fuse on its own in time, but the cement would then rub against the next vertebrae, and bone against cement is a losing battle for the bone. This could end up being a domino effect of broken vertebrae.

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@migizii

When there is “news the facility feels the doctor needs to give the patient-being me” I have found my test results never show up on the portals until after they have notified me. If results are normal, they are posted in a timely manner. I’m guessing it maybe most medical facilities policies……I have since concluded it means I’m getting bad news whenever my test results don’t show up after a few days…..although I do get a more thorough answer and it’s usually not as bad as I imagined……so really, in most cases, I don’t understand their premise for keeping the results from us. Our journeys are challenging…take care💞

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@migizil I agree with you . I don't know where my reply went but will say again. It was 5 days before the MRI went to Dr. I did make an appointment with my pain Dr. who will have the results also. Anymore its our patients that are being tried .

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@lioness

@resawaller I'm sorry to hear about your worry and it is . I'm the one that just found out I have a fracture . Once they release the pressure and remove the cyst your nerve damage should be corrected I would think. I would be scared also but if you have faith and trust in your Dr. that is half the battle. How old are you Since you,ve been married for 30yrs I'm thinking in your 50,s Look at the positive if its gone then you,ll be back to your old self. Good luck with what ever you decide.

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Yes I'm 54 today! And I'm very scared to have Chiari surgery! Im looking for someone that has had the same surgery so I can ask how it went! Either encourage me or shy me or shy me away from it ! I've been sick for over 1 yr now and the nerve pain is hell so I dnt know what ealse to do! Thank you and I need prayers!

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@lioness

@becsbuddy and all. I just had a call from a Dr. mine is on vacation. I now have a L4 fracture besides my L2 which was fractured . He said they ususlly treated it symptomatically or a injection of cement . I don't know what I'm going to do . When I had my L2 in 05 I refused the cement but with this fracture down so far I don't know . My MRI was at a free standing one.

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@lioness. When you refer to cement are you talking about a kyphoplasty? If so, I had that in 2004 for a fractured vertebra. It was a miracle initially but about two weeks later I was walking with high heels on and slipped, and wrenched my back to avoid a fall. I think I must have caused the cement to move or something. Even so, it was not much pain, but I do have a visible lump sticking out of my back now. When I was heavier it wasn’t really noticeable but it is now, and it hurts to sit in a hard backed chair.

If I recall correctly my fracture was L2. They just gave me some pain meds (I was in CA, this was at Cedars Sinai) but when I got home my PCP encouraged the kyphoplasty.
JK

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@resawaller

Yes I'm 54 today! And I'm very scared to have Chiari surgery! Im looking for someone that has had the same surgery so I can ask how it went! Either encourage me or shy me or shy me away from it ! I've been sick for over 1 yr now and the nerve pain is hell so I dnt know what ealse to do! Thank you and I need prayers!

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@resawaller I will keep you in my prayers . God is a great healer ,Dr,s and nurses are his hands.

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@contentandwell

@lioness. When you refer to cement are you talking about a kyphoplasty? If so, I had that in 2004 for a fractured vertebra. It was a miracle initially but about two weeks later I was walking with high heels on and slipped, and wrenched my back to avoid a fall. I think I must have caused the cement to move or something. Even so, it was not much pain, but I do have a visible lump sticking out of my back now. When I was heavier it wasn’t really noticeable but it is now, and it hurts to sit in a hard backed chair.

If I recall correctly my fracture was L2. They just gave me some pain meds (I was in CA, this was at Cedars Sinai) but when I got home my PCP encouraged the kyphoplasty.
JK

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@contentandwell Yes that is it ,a kyphoplasty. Jennifer sent me a report on it from nih.gov . I know people who had the cement and it dislodged or leaked ,a friend here had it and now it broke of and she to has a lump in her back. That will be the last thing I will do if this doesn't get better on its on with what I'm doing now. I am seeing a pain Dr soon for a pain injection.

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@resawaller

Yes I'm 54 today! And I'm very scared to have Chiari surgery! Im looking for someone that has had the same surgery so I can ask how it went! Either encourage me or shy me or shy me away from it ! I've been sick for over 1 yr now and the nerve pain is hell so I dnt know what ealse to do! Thank you and I need prayers!

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Hi @resawaller, it can help to talk to others who have had Chiari surgery and read their stories. I encourage you to connect with other members talking about Chiari Malformation in the Brain & Nervous System group here https://connect.mayoclinic.org/group/brain-and-nerve-diseases/).

Here are a few active discussions about Chiari that you may wish to read and take part in.
– Chiari Malformation type 1 https://connect.mayoclinic.org/discussion/chiari-malformation-type-1-20782d/
– Chronic pain due to chiari 1 malformation with syringomyelia https://connect.mayoclinic.org/discussion/cronic-pain-2746d4/

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@lioness

@resawaller I will keep you in my prayers . God is a great healer ,Dr,s and nurses are his hands.

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Thank you so much for yr r epely it helps to know I'm not the only one with Chiari! I don't know what to do? Every time it gets close to surgery I cancel, and I'm getting sicker by the day! Anyone out there that has had Chiari surgery?? Please help!

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@lioness

@contentandwell Yes that is it ,a kyphoplasty. Jennifer sent me a report on it from nih.gov . I know people who had the cement and it dislodged or leaked ,a friend here had it and now it broke of and she to has a lump in her back. That will be the last thing I will do if this doesn't get better on its on with what I'm doing now. I am seeing a pain Dr soon for a pain injection.

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@lioness. It really did help but if I had known all of this I may have been less apt to rush into it.
JK

Liked by lioness

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@jodeej

@resawaller I know people that have had that surgery for chiari. It has helped both of them. Of course, the thought of having this surgery is terrifying. But it truly does help.

Blessings,
JoDee

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Thank you so much for yr repely and had helped to know I'm not the only one with this problem! Anyone out there that has had Chiari surgery please talk to me ! And thanks

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@lioness

@contentandwell Yes that is it ,a kyphoplasty. Jennifer sent me a report on it from nih.gov . I know people who had the cement and it dislodged or leaked ,a friend here had it and now it broke of and she to has a lump in her back. That will be the last thing I will do if this doesn't get better on its on with what I'm doing now. I am seeing a pain Dr soon for a pain injection.

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James used lidocaine patches for a bout a year and now just occasionally, it did fuse on its own and he has a little pain but it is pretty well managed. He has had two collapse now from the multiple myeloma.

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@auntieoakley

James used lidocaine patches for a bout a year and now just occasionally, it did fuse on its own and he has a little pain but it is pretty well managed. He has had two collapse now from the multiple myeloma.

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@auntieoakley This is the last thing I will do. So far my back seems to be healing on its on as it is getting better . I use the lidocaine patches and they do help. I'm sorry to hear about your husband . When we are weak that is when He is the strongest in our lives. I just keep the faith and believing

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@resawaller

Thank you so much for yr r epely it helps to know I'm not the only one with Chiari! I don't know what to do? Every time it gets close to surgery I cancel, and I'm getting sicker by the day! Anyone out there that has had Chiari surgery?? Please help!

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@resawaller I'm sorry if I mislead you I don't have Chiari. I worked for 35 yrs as a nurse in the O.R. and other places . If you have pressure on the brain to drain it will help I'm praying for you It is scary any surgery is but there is a lot of good that comes out of it ..

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back and nerve pain after surgery

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