1. < Fibromyalgia
Profile picture for pollyperf

Your legs and fibromyalgia

Posted by pollyperf @pollyperf, Sep 15 11:29am

I have had fibromyalgia for 25+ years. I did take a bad fall last year only hurting head and shoulder. Ever since then I’ve had very painful legs. This week they are so sore, almost unable to walk. Has anyone experienced anything like this?

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Profile picture for pollyperf
pollyperf | @pollyperf | Oct 15 12:12pm
In reply to @joyceannv "I have chronic leg pain. I can’t walk very far before the pain starts. It also..." + (show)
Profile picture for Ivyjer@ivyjer @joyceannv

I have chronic leg pain. I can’t walk very far before the pain starts. It also just starts up when sitting too. I have edema in my lower legs, ankles and feet. Varicose rope-like veins all the way up my right leg. I think the left one is heading the same way as my right leg. I have a lot of pain in my right knee which had reconstructive surgery. My left knee had torn meniscus and torn ACL. The meniscus was repaired but I have a lot of pain there. Also pain behind knee. I take Eliquis to prevent blood clots. Sorry to go on and on but the pain is debilitating.
For Fibro I take Cynbalta and Nortriptyline. I don’t think it’s working. Fatigue is huge. Pain in right arm comes and goes.
I have no answers for you. I don’t have adequate medical care. Does anyone know what works to relieve pain?

Jump to this post

@joyceannv
After 26 years, I don’t take any of meds talked about. I tried almost all and didn’t feel any better, sometimes worse. I take a 1/2 Norco when I can’t handle the pain or want to go somewhere. I have to really want to go and take the Norco VERY sparingly.

REPLY
1 reply
Profile picture for stanforda
stanforda | @stanforda | Oct 15 9:43pm

The last 7 years, my left leg only has felt like its ice cold, but it's not . I have extreme thigh pain, between toes feel like the are wet but are not. I've had MRI of back, ultrasound of leg arteries and nerve conduction test
Drs insist it's fibro. I've never had one sided fibro

REPLY
Profile picture for mollyquilter
mollyquilter | @mollyquilter | Oct 16 7:14pm
In reply to @ranpattiwagner "My legs are the worst regarding pain from Fibromyalgia. Sometimes I can touch the pressure points..." + (show)
Profile picture for ranpattiwagner @ranpattiwagner

My legs are the worst regarding pain from Fibromyalgia. Sometimes I can touch the pressure points in my legs and the pain comes from there. I think that the busier we are the more pain I have, but to just sit is even worse.

Jump to this post

@I know this may not help everyone, but I discovered years ago that my lifelong aching legs were due to too little potassium. I now have a prescription for potassium that I take 3 x day and it has helped that problem. At the age of 82, I now have a Baker's Cyst in the back of my left knee (which also needs to be replaced) and have to use a cane for walking. Molly K

REPLY
1 reply
Profile picture for pamgalli
pamgalli | @pamgalli | Oct 16 7:23pm
In reply to @mollyquilter "@I know this may not help everyone, but I discovered years ago that my lifelong aching..." + (show)
Profile picture for mollyquilter @mollyquilter

@I know this may not help everyone, but I discovered years ago that my lifelong aching legs were due to too little potassium. I now have a prescription for potassium that I take 3 x day and it has helped that problem. At the age of 82, I now have a Baker's Cyst in the back of my left knee (which also needs to be replaced) and have to use a cane for walking. Molly K

Jump to this post

@mollyquilter WHAT IS A BAKERS CYST?

REPLY
1 reply
Profile picture for Raina
Raina | @myo4me | Oct 16 8:30pm
In reply to @pollyperf "@joyceannv After 26 years, I don’t take any of meds talked about. I tried almost all..." + (show)
Profile picture for pollyperf @pollyperf

@joyceannv
After 26 years, I don’t take any of meds talked about. I tried almost all and didn’t feel any better, sometimes worse. I take a 1/2 Norco when I can’t handle the pain or want to go somewhere. I have to really want to go and take the Norco VERY sparingly.

Jump to this post

@pollyperf

I absolutely agree with not taking all of the the suggested meds! They did not make me feel better either. Sad.

REPLY
Profile picture for John, Volunteer Mentor
Mentor
John, Volunteer Mentor | @johnbishop | Oct 17 11:16am
In reply to @pamgalli "@mollyquilter WHAT IS A BAKERS CYST?" + (show)
Profile picture for pamgalli @pamgalli

@mollyquilter WHAT IS A BAKERS CYST?

Jump to this post

Welcome @pamgalli, a Baker's cyst is a fluid-filled growth behind the knee - https://www.mayoclinic.org/diseases-conditions/bakers-cyst/symptoms-causes/syc-20369950.

Do you have fibromyalgia? Are you trying to find some specific information?

REPLY
Profile picture for lriggs333
lriggs333 | @lriggs333 | Oct 20 8:14pm

Yes, my legs hurt all the time.
I’ve been to many specialist and finally got a doctor that believes me.
But, I had to go years without any medical support.
Finally, a doctor told me that this is also the results of long term fibromyalgia.

REPLY
View MoreView Less
Please sign in or register to post a reply.