Your experiences with IBS

Posted by harmonyln @harmonyln, Apr 10, 2019

It would really be helpful for me to hear from others about what they’re going through and how they cope with their IBS issues. I’ve never had this problem and could always pretty much eat what I wanted without any ill effect. Now if I accidentally eat even the smallest amount of gluten or anything with dairy I am sick for 2 to 5 days and I feel totally exhausted the entire time. First starts belching, then painful bloating and cramping and I become constipated. My upper abdomen hurts as if I had been hit with something hard, my gut feels raw inside and often unremitting nausea also sometimes happens. Once the bloating calms back down, out of the blue I experience urgent diarrhea that can come even if I eat even a few bites of “approved” food. (I’ve been on FODMAP since Feb). My appetite has gone away and I’ve lost 19 lbs since I started eliminating foods on the list. The diarrhea can last the entire day and by the time it stops my body is weak, i’m very tired and my abdomen feels tender for the next few days. I’ve become hesitant to eat, although I’m falling woefully short of calories nearly every single day. Food has lost it’s appeal to me and feels more trouble than it’s worth. My social life has been totally impacted by these problems and I pass up on fun activities that have been a part of my life forever. Going out to a restaurant is mostly a nightmare now. My GI dr prescribed Bentyl and Omeprozole, which didn’t help much, and basically sent me on my way telling me that I need to work on reducing my stress levels. I have dealt with major depression and an anxiety disorder for going on 25 years, which is currently well managed with the exception of the anxiety that being this ill can trigger. I’m getting acupuncture twice a week and that does seem to help. The D.O. that is doing this for me also has me on a regime of Digestive Enzymes. He’s also given me a recipe for a “gut healing smoothie” that contains several holistic ingredients, including probiotics with acidophilus/bifidus. I’m currently waiting for these things to come in the mail so I can’t speak to its effectiveness yet. At this point I’m willing to try just about anything to get my life back. I feel that I am constantly complaining to my friends and family when they ask how things are going, The only thing that I can point to as what brought this all on, although my GI dr wouldn’t agree, is that I had two colonoscopies within 6 months (March and August of last year) as a result of numerous polyps, one of which was difficult to fully remove in one session. None were cancerous but all were of the type that will eventually turn into cancer. Because of this she now wants to start doing colonoscopies every 3 years, which I totally dread just it case it triggers my IBS to become worse. If its not related to those procedures and their prep, can and did your IBS just come on suddenly with no warning and nothing particularly prompting it? Do you feel, or have you been told that this illness will be something that you have to live around forever? Have you ever heard of it going into remission and/or going away entirely? I’ve done a lot of reading on this subject but really need to hear from those of you who understand and can relate to what I am talking about. I feel alone in this and am afraid that this is my new normal. Thank you for reading this and for hopefully sharing a bit about your experience with IBS.

@crj

I'm 69 years old and have had IBS with panic attacks my whole adult life. It has stopped me from doing so many things. When I've had to go places; it would make me so anxious. I've been check by quite a few doctors over the years and none of the medicines or suggestions have been full proof.
Twelve years ago I divorced my husband of 35 years and have done very little dating because of the IBS with panic attacks. I've wasted my life because of this awful condition and have been a prisoner. Well…that's my story. Is there any words of advise out there for me? I don't have that many years left and I sure would like to get out there and live.

Jump to this post

I have IBS and found probiotics were useless. Tried several kinds recommended by GI and integrative medicine MD. All probiotics did for me was to produce more gas—just what I don’t need!! Have you seen a registered nutritionist? I am on the Low Fodmap diet which has really helped control my symptoms. Almost never have that”gotta go right now” urge. This diet is VERY restrictive and you need to work with a nutritionist to implement it and see if it works for you. I also saw an integrative medicine doctor. She recommended some supplements which have helped stabilize my weight. I have lost 40 lbs—too much but at least I feel human again. Going out to eat is a real challenge (especially with both IBS and GERD limitations)but I now have found some restaurants that offer a few things I can have. I sure miss my Mexican and Italian favorites, though!
Life Gordon. Good luck to you!

REPLY
@jackiem95

I have IBS and found probiotics were useless. Tried several kinds recommended by GI and integrative medicine MD. All probiotics did for me was to produce more gas—just what I don’t need!! Have you seen a registered nutritionist? I am on the Low Fodmap diet which has really helped control my symptoms. Almost never have that”gotta go right now” urge. This diet is VERY restrictive and you need to work with a nutritionist to implement it and see if it works for you. I also saw an integrative medicine doctor. She recommended some supplements which have helped stabilize my weight. I have lost 40 lbs—too much but at least I feel human again. Going out to eat is a real challenge (especially with both IBS and GERD limitations)but I now have found some restaurants that offer a few things I can have. I sure miss my Mexican and Italian favorites, though!
Life Gordon. Good luck to you!

Jump to this post

hello , sometimes any medicine not just the probiotic may not work with u .. but with someone else they do and i think u know that
so she should Try the probiotic , and u know she is 69 so she need the good bactiria in the gut ..
my Mom and Father they tried the probiotic , they had iBS problem and after 3 month from using it .. they were Happy!

good luck !

REPLY
@crj

I'm 69 years old and have had IBS with panic attacks my whole adult life. It has stopped me from doing so many things. When I've had to go places; it would make me so anxious. I've been check by quite a few doctors over the years and none of the medicines or suggestions have been full proof.
Twelve years ago I divorced my husband of 35 years and have done very little dating because of the IBS with panic attacks. I've wasted my life because of this awful condition and have been a prisoner. Well…that's my story. Is there any words of advise out there for me? I don't have that many years left and I sure would like to get out there and live.

Jump to this post

Hi crj @crj
Have you by any chance tried a gluten free diet? That has worked relatively well for me for about 6 years and it has been quite easy to follow.
Best of luck.

REPLY
@baz10

Hi crj @crj
Have you by any chance tried a gluten free diet? That has worked relatively well for me for about 6 years and it has been quite easy to follow.
Best of luck.

Jump to this post

Thank you! I’ve thought about gluten free but it seems complicated and I do like my regular carbs. I will research gluten free now. Thanks!!!!

REPLY
@jackiem95

I have IBS and found probiotics were useless. Tried several kinds recommended by GI and integrative medicine MD. All probiotics did for me was to produce more gas—just what I don’t need!! Have you seen a registered nutritionist? I am on the Low Fodmap diet which has really helped control my symptoms. Almost never have that”gotta go right now” urge. This diet is VERY restrictive and you need to work with a nutritionist to implement it and see if it works for you. I also saw an integrative medicine doctor. She recommended some supplements which have helped stabilize my weight. I have lost 40 lbs—too much but at least I feel human again. Going out to eat is a real challenge (especially with both IBS and GERD limitations)but I now have found some restaurants that offer a few things I can have. I sure miss my Mexican and Italian favorites, though!
Life Gordon. Good luck to you!

Jump to this post

I have a good probiotic that is refrigerated. I don’t take it on a regular basis because it always seems someone has pushed it in the back of the fridge even though I put it in the same place. So I don’t see this don’t take it. I’ll have to think of a new solution!
Thanks so much!

REPLY
@darweshalassi

Hello , im sorry that u are suffering from this , but i gotta ask , did u try Probiotic 50 Billion ? give it a Try – And also Try to Diet
Hope u will be better soon

Jump to this post

Thank you so much!!!!

REPLY
@jackiem95

I have IBS and found probiotics were useless. Tried several kinds recommended by GI and integrative medicine MD. All probiotics did for me was to produce more gas—just what I don’t need!! Have you seen a registered nutritionist? I am on the Low Fodmap diet which has really helped control my symptoms. Almost never have that”gotta go right now” urge. This diet is VERY restrictive and you need to work with a nutritionist to implement it and see if it works for you. I also saw an integrative medicine doctor. She recommended some supplements which have helped stabilize my weight. I have lost 40 lbs—too much but at least I feel human again. Going out to eat is a real challenge (especially with both IBS and GERD limitations)but I now have found some restaurants that offer a few things I can have. I sure miss my Mexican and Italian favorites, though!
Life Gordon. Good luck to you!

Jump to this post

I’m going to start that Fomap diet really soon. 🥴

REPLY
@crj

I'm 69 years old and have had IBS with panic attacks my whole adult life. It has stopped me from doing so many things. When I've had to go places; it would make me so anxious. I've been check by quite a few doctors over the years and none of the medicines or suggestions have been full proof.
Twelve years ago I divorced my husband of 35 years and have done very little dating because of the IBS with panic attacks. I've wasted my life because of this awful condition and have been a prisoner. Well…that's my story. Is there any words of advise out there for me? I don't have that many years left and I sure would like to get out there and live.

Jump to this post

I recommend that before you begin, you work with a registered nutritionist/dietitician. This is a really restrictive and complex program.

REPLY
@crj

Thank you! I’ve thought about gluten free but it seems complicated and I do like my regular carbs. I will research gluten free now. Thanks!!!!

Jump to this post

For me, gluten free is a part of the Low Fodmap diet–along with other "no eat" foods. I like carbs too but I have learned to work around the gluten restriction. Finding good bread (including things like hamburger buns and bagels) without the additives that are restricted on the Low Fodmap diet, is not easy but I have found some that I can eat. Not great, but better than nothing. There are also some sweets (like cookies) that are OK for me and are actually good. I do make my own sometimes (using modified regular recipes or low fodmap recipes) but my husband is diabetic so I end up eating most of them myself!

REPLY
@jackiem95

For me, gluten free is a part of the Low Fodmap diet–along with other "no eat" foods. I like carbs too but I have learned to work around the gluten restriction. Finding good bread (including things like hamburger buns and bagels) without the additives that are restricted on the Low Fodmap diet, is not easy but I have found some that I can eat. Not great, but better than nothing. There are also some sweets (like cookies) that are OK for me and are actually good. I do make my own sometimes (using modified regular recipes or low fodmap recipes) but my husband is diabetic so I end up eating most of them myself!

Jump to this post

I signed up today because two nights ago I thought I had a severe iBS attack, fifty minutes later I was emptied and bleeding and the bleeding didn’t stop. Went to the ER and cat scan said I had an inflamed large intestine (the whole intestine) and I’m in a lot of discomfort. He said I have colitis. Two antibiotics and waiting to see my doctor to find out what to expect and what I can do to not ever have an attack again.

Get Outlook for iOS
________________________________

REPLY
@crj

I'm 69 years old and have had IBS with panic attacks my whole adult life. It has stopped me from doing so many things. When I've had to go places; it would make me so anxious. I've been check by quite a few doctors over the years and none of the medicines or suggestions have been full proof.
Twelve years ago I divorced my husband of 35 years and have done very little dating because of the IBS with panic attacks. I've wasted my life because of this awful condition and have been a prisoner. Well…that's my story. Is there any words of advise out there for me? I don't have that many years left and I sure would like to get out there and live.

Jump to this post

I second the idea of a low FODMAP diet. The two biggest FODMAPs are apples and garlic. You can still have garlic by making a garlic oil, something you can learn to do by looking online. This is a medical diet so you have to see a nutritionist twice, once to learn about how to research if you have it and then to meet with the nutritionist to talk about it. Your research is to systematically change your diet, one piece at a time, according to the schedule given to you by the nutritionist. I recently went on a camping trip and had a huge amount of garlic in the meal cooked by another person. Didn’t know it until I ran to the bathroom. I now have an appointment with a Gastroenterologist at Mayo. You may be okay with garlic, something else may be your problem. If you are interested in looking into this diet, get an appointment with a nutritionist and Do Not Change Your Diet until you see the nutritionist. I hope you find the thing that helps you. Sometimes it is several things that help you.

REPLY
@mpeters

I second the idea of a low FODMAP diet. The two biggest FODMAPs are apples and garlic. You can still have garlic by making a garlic oil, something you can learn to do by looking online. This is a medical diet so you have to see a nutritionist twice, once to learn about how to research if you have it and then to meet with the nutritionist to talk about it. Your research is to systematically change your diet, one piece at a time, according to the schedule given to you by the nutritionist. I recently went on a camping trip and had a huge amount of garlic in the meal cooked by another person. Didn’t know it until I ran to the bathroom. I now have an appointment with a Gastroenterologist at Mayo. You may be okay with garlic, something else may be your problem. If you are interested in looking into this diet, get an appointment with a nutritionist and Do Not Change Your Diet until you see the nutritionist. I hope you find the thing that helps you. Sometimes it is several things that help you.

Jump to this post

My gastroenterologist recommended the low fodmap diet two years ago and of course I didn’t follow it very well. It keeps coming up so I better heed the advice. Thank you.

Get Outlook for iOS
________________________________

REPLY
@crj

I'm 69 years old and have had IBS with panic attacks my whole adult life. It has stopped me from doing so many things. When I've had to go places; it would make me so anxious. I've been check by quite a few doctors over the years and none of the medicines or suggestions have been full proof.
Twelve years ago I divorced my husband of 35 years and have done very little dating because of the IBS with panic attacks. I've wasted my life because of this awful condition and have been a prisoner. Well…that's my story. Is there any words of advise out there for me? I don't have that many years left and I sure would like to get out there and live.

Jump to this post

I thought I had IBS for 64years because all the G.I. Drs. said so . I saw one that tested me for sucrose intolerance (table sugar ) . Now I know I have sugar and starch intolerance. Worth doing a simple breath test for this. Good luck.

REPLY
@maureenf

My gastroenterologist recommended the low fodmap diet two years ago and of course I didn’t follow it very well. It keeps coming up so I better heed the advice. Thank you.

Get Outlook for iOS
________________________________

Jump to this post

This doesn’t help you immediately, but in the UK you can use an app to scan foods at the grocery store to help you find low FODMAP foods. Maybe if enough of us organize we can get that to happen here.

REPLY
@crj

I'm 69 years old and have had IBS with panic attacks my whole adult life. It has stopped me from doing so many things. When I've had to go places; it would make me so anxious. I've been check by quite a few doctors over the years and none of the medicines or suggestions have been full proof.
Twelve years ago I divorced my husband of 35 years and have done very little dating because of the IBS with panic attacks. I've wasted my life because of this awful condition and have been a prisoner. Well…that's my story. Is there any words of advise out there for me? I don't have that many years left and I sure would like to get out there and live.

Jump to this post

I have a disease called Adrenaleukodystrophy and was also diagnosed with IBS.I feel like a prisoner in my home,never knowing when I will have a accident. I am embarresed when I have no control. I live on Bentyl and Imodium. And stress compounds everything. If anyone has a solution. I hope you get well.

REPLY
Please login or register to post a reply.