IBS challenges

Posted by Barb @amberpep, Aug 8, 2017

Hi .... I don't think there's a group for this, so I thought I'd try you all. I have been prone to IBS with constipation since my divorce 12 years ago - we were married for 40 years and I felt as though I'd been thrown away. My gastro-intestinal doctor suggested Metamucil, which seemed to work. Between then and now I've had 3 moves, one about 4 hours from where I'd lived for 30 years, a TKR and also a revision, am on several psychotropic medications for cyclothymia, and just feel awful. Well, I'm 73 and have had my teeth removed in order to get dentures .... there's been quite a harang with this and it's been over a year since I've been eating soft and pureed foods .... cream of wheat, soups (pureed), pureed spaghetti, if I do eat a piece of fruit it has to be pureed, but I try not to. It's been a long haul. Well, now I'm packing to move to a low-income apartment closer to my girls, and the IBS has become the diahrrhea form ..... OMG, it's awful. I'm afraid to go out. I don't know what to do anymore. I'm new down here and only have an Internist, but with moving that will have to change. I need the name of a good gastro-enterologist at the hospital I will be using. In the meantime, does anyone have any suggestions for me? I'm forced to use pads right now "just in case" ..... I know this is anxiety and tension, but it's got to stop.
Thanks much,
abby

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Profile picture for harmonyln @harmonyln

It would really be helpful for me to hear from others about what they're going through and how they cope with their IBS issues. I've never had this problem and could always pretty much eat what I wanted without any ill effect. Now if I accidentally eat even the smallest amount of gluten or anything with dairy I am sick for 2 to 5 days and I feel totally exhausted the entire time. First starts belching, then painful bloating and cramping and I become constipated. My upper abdomen hurts as if I had been hit with something hard, my gut feels raw inside and often unremitting nausea also sometimes happens. Once the bloating calms back down, out of the blue I experience urgent diarrhea that can come even if I eat even a few bites of "approved" food. (I've been on FODMAP since Feb). My appetite has gone away and I've lost 19 lbs since I started eliminating foods on the list. The diarrhea can last the entire day and by the time it stops my body is weak, i'm very tired and my abdomen feels tender for the next few days. I've become hesitant to eat, although I'm falling woefully short of calories nearly every single day. Food has lost it's appeal to me and feels more trouble than it's worth. My social life has been totally impacted by these problems and I pass up on fun activities that have been a part of my life forever. Going out to a restaurant is mostly a nightmare now. My GI dr prescribed Bentyl and Omeprozole, which didn't help much, and basically sent me on my way telling me that I need to work on reducing my stress levels. I have dealt with major depression and an anxiety disorder for going on 25 years, which is currently well managed with the exception of the anxiety that being this ill can trigger. I'm getting acupuncture twice a week and that does seem to help. The D.O. that is doing this for me also has me on a regime of Digestive Enzymes. He's also given me a recipe for a "gut healing smoothie" that contains several holistic ingredients, including probiotics with acidophilus/bifidus. I'm currently waiting for these things to come in the mail so I can't speak to its effectiveness yet. At this point I'm willing to try just about anything to get my life back. I feel that I am constantly complaining to my friends and family when they ask how things are going, The only thing that I can point to as what brought this all on, although my GI dr wouldn't agree, is that I had two colonoscopies within 6 months (March and August of last year) as a result of numerous polyps, one of which was difficult to fully remove in one session. None were cancerous but all were of the type that will eventually turn into cancer. Because of this she now wants to start doing colonoscopies every 3 years, which I totally dread just it case it triggers my IBS to become worse. If its not related to those procedures and their prep, can and did your IBS just come on suddenly with no warning and nothing particularly prompting it? Do you feel, or have you been told that this illness will be something that you have to live around forever? Have you ever heard of it going into remission and/or going away entirely? I've done a lot of reading on this subject but really need to hear from those of you who understand and can relate to what I am talking about. I feel alone in this and am afraid that this is my new normal. Thank you for reading this and for hopefully sharing a bit about your experience with IBS.

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As far as I know, you can put it into tea. Could you handle hot apple cider? That has vitamin C. I put bone broth into my hot apple cider quite a bit. You may be able to find some herbal teas with vitamin C. Maybe go into a health food store and ask about bone broth, and how to use the powder. I know I can't seem to be without it. It normalizes the way my stomach works, for sure. Best of luck!!! Keep me posted! Lori Renee

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Profile picture for lorirenee1 @lorirenee1

As far as I know, you can put it into tea. Could you handle hot apple cider? That has vitamin C. I put bone broth into my hot apple cider quite a bit. You may be able to find some herbal teas with vitamin C. Maybe go into a health food store and ask about bone broth, and how to use the powder. I know I can't seem to be without it. It normalizes the way my stomach works, for sure. Best of luck!!! Keep me posted! Lori Renee

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@lorirenee1 maybe I could just drink bone broth with a vitamin C tablet.
JK

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Profile picture for harmonyln @harmonyln

It would really be helpful for me to hear from others about what they're going through and how they cope with their IBS issues. I've never had this problem and could always pretty much eat what I wanted without any ill effect. Now if I accidentally eat even the smallest amount of gluten or anything with dairy I am sick for 2 to 5 days and I feel totally exhausted the entire time. First starts belching, then painful bloating and cramping and I become constipated. My upper abdomen hurts as if I had been hit with something hard, my gut feels raw inside and often unremitting nausea also sometimes happens. Once the bloating calms back down, out of the blue I experience urgent diarrhea that can come even if I eat even a few bites of "approved" food. (I've been on FODMAP since Feb). My appetite has gone away and I've lost 19 lbs since I started eliminating foods on the list. The diarrhea can last the entire day and by the time it stops my body is weak, i'm very tired and my abdomen feels tender for the next few days. I've become hesitant to eat, although I'm falling woefully short of calories nearly every single day. Food has lost it's appeal to me and feels more trouble than it's worth. My social life has been totally impacted by these problems and I pass up on fun activities that have been a part of my life forever. Going out to a restaurant is mostly a nightmare now. My GI dr prescribed Bentyl and Omeprozole, which didn't help much, and basically sent me on my way telling me that I need to work on reducing my stress levels. I have dealt with major depression and an anxiety disorder for going on 25 years, which is currently well managed with the exception of the anxiety that being this ill can trigger. I'm getting acupuncture twice a week and that does seem to help. The D.O. that is doing this for me also has me on a regime of Digestive Enzymes. He's also given me a recipe for a "gut healing smoothie" that contains several holistic ingredients, including probiotics with acidophilus/bifidus. I'm currently waiting for these things to come in the mail so I can't speak to its effectiveness yet. At this point I'm willing to try just about anything to get my life back. I feel that I am constantly complaining to my friends and family when they ask how things are going, The only thing that I can point to as what brought this all on, although my GI dr wouldn't agree, is that I had two colonoscopies within 6 months (March and August of last year) as a result of numerous polyps, one of which was difficult to fully remove in one session. None were cancerous but all were of the type that will eventually turn into cancer. Because of this she now wants to start doing colonoscopies every 3 years, which I totally dread just it case it triggers my IBS to become worse. If its not related to those procedures and their prep, can and did your IBS just come on suddenly with no warning and nothing particularly prompting it? Do you feel, or have you been told that this illness will be something that you have to live around forever? Have you ever heard of it going into remission and/or going away entirely? I've done a lot of reading on this subject but really need to hear from those of you who understand and can relate to what I am talking about. I feel alone in this and am afraid that this is my new normal. Thank you for reading this and for hopefully sharing a bit about your experience with IBS.

Jump to this post

You could drink bone broth with a vitamin C tablet. That is perfect. Why not? Lori Renee

REPLY
Profile picture for harmonyln @harmonyln

It would really be helpful for me to hear from others about what they're going through and how they cope with their IBS issues. I've never had this problem and could always pretty much eat what I wanted without any ill effect. Now if I accidentally eat even the smallest amount of gluten or anything with dairy I am sick for 2 to 5 days and I feel totally exhausted the entire time. First starts belching, then painful bloating and cramping and I become constipated. My upper abdomen hurts as if I had been hit with something hard, my gut feels raw inside and often unremitting nausea also sometimes happens. Once the bloating calms back down, out of the blue I experience urgent diarrhea that can come even if I eat even a few bites of "approved" food. (I've been on FODMAP since Feb). My appetite has gone away and I've lost 19 lbs since I started eliminating foods on the list. The diarrhea can last the entire day and by the time it stops my body is weak, i'm very tired and my abdomen feels tender for the next few days. I've become hesitant to eat, although I'm falling woefully short of calories nearly every single day. Food has lost it's appeal to me and feels more trouble than it's worth. My social life has been totally impacted by these problems and I pass up on fun activities that have been a part of my life forever. Going out to a restaurant is mostly a nightmare now. My GI dr prescribed Bentyl and Omeprozole, which didn't help much, and basically sent me on my way telling me that I need to work on reducing my stress levels. I have dealt with major depression and an anxiety disorder for going on 25 years, which is currently well managed with the exception of the anxiety that being this ill can trigger. I'm getting acupuncture twice a week and that does seem to help. The D.O. that is doing this for me also has me on a regime of Digestive Enzymes. He's also given me a recipe for a "gut healing smoothie" that contains several holistic ingredients, including probiotics with acidophilus/bifidus. I'm currently waiting for these things to come in the mail so I can't speak to its effectiveness yet. At this point I'm willing to try just about anything to get my life back. I feel that I am constantly complaining to my friends and family when they ask how things are going, The only thing that I can point to as what brought this all on, although my GI dr wouldn't agree, is that I had two colonoscopies within 6 months (March and August of last year) as a result of numerous polyps, one of which was difficult to fully remove in one session. None were cancerous but all were of the type that will eventually turn into cancer. Because of this she now wants to start doing colonoscopies every 3 years, which I totally dread just it case it triggers my IBS to become worse. If its not related to those procedures and their prep, can and did your IBS just come on suddenly with no warning and nothing particularly prompting it? Do you feel, or have you been told that this illness will be something that you have to live around forever? Have you ever heard of it going into remission and/or going away entirely? I've done a lot of reading on this subject but really need to hear from those of you who understand and can relate to what I am talking about. I feel alone in this and am afraid that this is my new normal. Thank you for reading this and for hopefully sharing a bit about your experience with IBS.

Jump to this post

Have you ever been tested for delayed gastric emptying? For years they told me I had IBS. I did everything I could for IBS and never got better. Finally a Dr tested me for delayed gastric emptying and found out food was sitting in my stomach for an average of 4 hours which is way too long. Basically food was fermenting in my gut causing the bloating, gas, diarrhea, and pain. Then I'd be constipated for a few days instead of diarrhea but then it reverses. I had surgery for the delayed gastric emptying and all has been good. IBS is a diagnosis they give when they can't figure anything else out. Good luck to you.

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Profile picture for claytamos @claytamos

Have you ever been tested for delayed gastric emptying? For years they told me I had IBS. I did everything I could for IBS and never got better. Finally a Dr tested me for delayed gastric emptying and found out food was sitting in my stomach for an average of 4 hours which is way too long. Basically food was fermenting in my gut causing the bloating, gas, diarrhea, and pain. Then I'd be constipated for a few days instead of diarrhea but then it reverses. I had surgery for the delayed gastric emptying and all has been good. IBS is a diagnosis they give when they can't figure anything else out. Good luck to you.

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Thank you for your reply and suggestion, I’ve never heard of delayed gastric emptying. I will definitely look into it and see if I think it matches my symptoms enough that I should request having the test done. I completely agree with you that a diagnosis of IBS is something that drs recommend (at least mine did) as an across the board diagnosis that is given without considering other issues that might be the base cause of problems. So far my Naturopath seems to be guiding me more effectively than my g.i. dr did. One thing that’s really beneficial is that I see him twice a week for digestive focused acupuncture and so he is always totally current on what’s going on with me and can tweak supplement recommendations based on how my system is functioning. I’m glad to hear about your success once you finally received the proper diagnosis!

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Profile picture for harmonyln @harmonyln

It would really be helpful for me to hear from others about what they're going through and how they cope with their IBS issues. I've never had this problem and could always pretty much eat what I wanted without any ill effect. Now if I accidentally eat even the smallest amount of gluten or anything with dairy I am sick for 2 to 5 days and I feel totally exhausted the entire time. First starts belching, then painful bloating and cramping and I become constipated. My upper abdomen hurts as if I had been hit with something hard, my gut feels raw inside and often unremitting nausea also sometimes happens. Once the bloating calms back down, out of the blue I experience urgent diarrhea that can come even if I eat even a few bites of "approved" food. (I've been on FODMAP since Feb). My appetite has gone away and I've lost 19 lbs since I started eliminating foods on the list. The diarrhea can last the entire day and by the time it stops my body is weak, i'm very tired and my abdomen feels tender for the next few days. I've become hesitant to eat, although I'm falling woefully short of calories nearly every single day. Food has lost it's appeal to me and feels more trouble than it's worth. My social life has been totally impacted by these problems and I pass up on fun activities that have been a part of my life forever. Going out to a restaurant is mostly a nightmare now. My GI dr prescribed Bentyl and Omeprozole, which didn't help much, and basically sent me on my way telling me that I need to work on reducing my stress levels. I have dealt with major depression and an anxiety disorder for going on 25 years, which is currently well managed with the exception of the anxiety that being this ill can trigger. I'm getting acupuncture twice a week and that does seem to help. The D.O. that is doing this for me also has me on a regime of Digestive Enzymes. He's also given me a recipe for a "gut healing smoothie" that contains several holistic ingredients, including probiotics with acidophilus/bifidus. I'm currently waiting for these things to come in the mail so I can't speak to its effectiveness yet. At this point I'm willing to try just about anything to get my life back. I feel that I am constantly complaining to my friends and family when they ask how things are going, The only thing that I can point to as what brought this all on, although my GI dr wouldn't agree, is that I had two colonoscopies within 6 months (March and August of last year) as a result of numerous polyps, one of which was difficult to fully remove in one session. None were cancerous but all were of the type that will eventually turn into cancer. Because of this she now wants to start doing colonoscopies every 3 years, which I totally dread just it case it triggers my IBS to become worse. If its not related to those procedures and their prep, can and did your IBS just come on suddenly with no warning and nothing particularly prompting it? Do you feel, or have you been told that this illness will be something that you have to live around forever? Have you ever heard of it going into remission and/or going away entirely? I've done a lot of reading on this subject but really need to hear from those of you who understand and can relate to what I am talking about. I feel alone in this and am afraid that this is my new normal. Thank you for reading this and for hopefully sharing a bit about your experience with IBS.

Jump to this post

I am recently been diagnosed with UC. I have been told it is my companion from now on. I can go into remission, but this as of yet is not the case. I too have lost weight dramatically. I have not put it back on yet either. I have not had the food reactions you describe though. I began the food list recently and found out that I really don't know what is or isn't fiber... long story short - Special K is fiber !!!! Today has been rough with the cramping and pain. Oddly enough, right now milk helps this... I read to avoid it though. I guess we all are a bit different. At least Dr. said I can get the abdominal Aortic Aneurism taken care of while ensuring this UC crap.

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Profile picture for jesse55 @jesse55

I am recently been diagnosed with UC. I have been told it is my companion from now on. I can go into remission, but this as of yet is not the case. I too have lost weight dramatically. I have not put it back on yet either. I have not had the food reactions you describe though. I began the food list recently and found out that I really don't know what is or isn't fiber... long story short - Special K is fiber !!!! Today has been rough with the cramping and pain. Oddly enough, right now milk helps this... I read to avoid it though. I guess we all are a bit different. At least Dr. said I can get the abdominal Aortic Aneurism taken care of while ensuring this UC crap.

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I was told I had UC a long time ago. I went to a different doctor after not getting any relief from the medications. Thank God I did because it turned out that doctor was wrong.

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In the ever changing world of IBS (which for me started with diarrhea, then shifted to alternating diarrhea/constipation and now to at least being mostly consistent and under control (for which I am thankful!), I now have really soft stools. It is a major mess to clean myself up and actually am never really clean back there. Plus the hemorrhoids have flared up. Doctor tells me to take Metamucil with my protein powder drink but that just gives me major gas problems. Has anyone else been able to firm up their BMs successfully?

REPLY
Profile picture for jackiem95 @jackiem95

In the ever changing world of IBS (which for me started with diarrhea, then shifted to alternating diarrhea/constipation and now to at least being mostly consistent and under control (for which I am thankful!), I now have really soft stools. It is a major mess to clean myself up and actually am never really clean back there. Plus the hemorrhoids have flared up. Doctor tells me to take Metamucil with my protein powder drink but that just gives me major gas problems. Has anyone else been able to firm up their BMs successfully?

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@jackiem95 I went through the exact thing, not often constipation, just the soft, messy stools. After trying basically everything with no success I suddenly noticed that the problem was worse on days when I ate much dairy — non-aged cheese, yogurt, etc. I cut back on those foods and the problem is as close to being solved as it will ever be I think. My stools are still soft but manageable now most of the time. I do occasionally have a problem when I have not eaten anything with lactose, bit it’s not a daily thing.
So, I guess I am now lactose intolerant. I hate that. I have other dietary restrictions but this is by far the worst. I now use provolone as a substitute for mozzarella in pasta dishes and pizza and have discovered that it really elevates the taste of those things. I don’t think it would work well in a caprese salad though.
I have found real dairy lactose free yogurt, cream cheese, and half and half in Whole Foods.
Try cutting out foods with lactose, you may be surprised. Good luck with it. If you discover anything else please let me know, I am still struggling too.
JK

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Profile picture for jackiem95 @jackiem95

In the ever changing world of IBS (which for me started with diarrhea, then shifted to alternating diarrhea/constipation and now to at least being mostly consistent and under control (for which I am thankful!), I now have really soft stools. It is a major mess to clean myself up and actually am never really clean back there. Plus the hemorrhoids have flared up. Doctor tells me to take Metamucil with my protein powder drink but that just gives me major gas problems. Has anyone else been able to firm up their BMs successfully?

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Thanks, JK. Actually on my Low FODMAP Diet for IBS I have already eliminated lactose—along with gluten, fructose, etc. etc.

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