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Transplant anti-rejection medications. What's your advice?
Weight gain? Hair loss? Headaches? Never missed a beat? What has your experience with transplant medications been? Have you developed a methods to deal with a side-effect? Have your meds changed at all over time? What advice do you have for others in our community that may make their experience better?
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Hi Jane and welcome. Congratulations on your new transplanted organ. I'm sorry to hear that the side effects of Tacrolimus are making you not feel as well as you'd like to be. I'm tagging fellow members @rosemarya @gaylea1 @jerrynord @contentandwell @danab @estrada53 @webiondev @cmael and others into this discussion to offer their tips and experiences.
While we wait for others to join in, you may also be interested in this related discussion:
- Cellcept and Tacrolimus Co-administration https://connect.mayoclinic.org/discussion/cellcept-and-tacrolimus-co-administration/
Jane, have you talked to your transplant team about the side effects you're experiencing?
@nimalw, I suggest that you start a new discussion in the Transplants group (https://connect.mayoclinic.org/group/transplants/) about getting better sleep after transplant. It's a great topic to focus on.
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1 ReactionI am on week 3 post transplant. The Tacrolomus has been hard to deal with. My extremities felt like they were on fire, my feet hands and ears, I was itchy everywhere, I was shaky, my lips were numb and I was so sick to my stomach with diarrhea. They lowered my dose to 2 mega in am and 1 in pm. I still have the on the fire sensation in my feet, but the rest have subsided. I do have to eat something at least 30 minutes before taking my meds otherwise I am sick to my stomach. They just lowered my cellcept to 3 and 3 in am and pm respectively. My hair didn’t fall out and I was taken off prednisone on day 4 post transplant. Still waiting for the swelling to go down. I can see right where they placed the kidney. I hope it does t stay like that long term.
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1 ReactionThank.you am.taking the same . I have been told there is a likely 4th Dose for us Transplant recepiants
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2 ReactionsHad Pfizer third vaccine. No side effects other than sore arm for a couple of days.
Had Pfizer booster. No side effects.
Super .
Hi...I've received 3 covid vaccines shots... no side effects and negative on the antibodies.
Thank you Dear . Mine is due in January
Hi @nimalw. I had a third vaccine which is a little different from the booster. It was the full strength Moderna. My transplant team aggressively encouraged us to get the 3rd shot. I received mine in September. No side effects except a slight headache and a sore arm for 2 days. Good luck! I believe it's worth getting. Let us know.