Transplant anti-rejection medications. What's your advice?

@nimalw, Good morning. I will share my experience of what is the best time for me. When I say best time, it is the time that has worked well for my since my transplant in 2009. 8:00 AM and 8:00 PM with minimal adjustments as needed.
My transplant team said to select a time that I knew I could adhere to. I am not confined to eat with/without food because this has allowed me to consistently take my meds, and my levels are stable with a happy liver/kidney. I do, however, still take my bedtime meds like allergy, BP, at bedtime.

Do you take your meds with food? If decide to try an earlier dose, I suggest you make a gradual adjustment. Do you think an earlier dose might be possible for you?

Rosemary and others can certainly offer insights…I think it best to do what meets your body parameters, within the every 12 hour timeframe. I’ve read that for optimum absorption of Tacrolimus it is best to take on an empty stomach, if it doesn’t bother you.

After experimenting with a couple of times, I’ve found that taking my morning dose at 8:30 and pm at 8:30 works well for me. I’m typically up 5-6 am. I have a half cup coffee and half cup protein shake. Take my meds, then eat breakfast/brunch between 9:30-11, which I do at work.

I try to eat between 5-6, so that I have two hours to digest supper before taking my pills. Since we’re supposed to drink a lot of water with our pills, I’ve found this time works so I’m not having to get up in the night to use the bathroom. So far, no stomach issues.

It’s not an easy thing to juggle with work, family needs, one’s body needs, etc. so, perhaps experiment by starting with taking yours at 10. Then 9:30, etc..

Hi Rosemary. What times of the day are the best to take immunosuppressants? From your Experience. I take at 10.30 am and 10.30pm . I find the late night dose does interfere with the sleep .

@rosemarya Thanks. I heard that might happen but didn’t know it was official. If that’s true I’m eligible now, my third shot was on August 10th.

I may still wait a bit though because we hope to go to Denver to visit my new granddaughter (and her parents 😉), probably in March and since the vaccine’s protectiveness does wane I will want it as strong as possible. Of course we won’t go if we are still in a surge.

I was mildly sick last week and despite testing negative for Covid I can’t help but wonder, I had the exact symptoms. I still have a dry cough.

My granddaughter is growing so fast! I need to see her.
JK

CDC has updated the covid19 schedule for Booster for transplant.
I know that for Pfizer we can now get #4 after 5 months instead of 6 months. Yes, I verified this via my patient portal. So- I had my #3 pfizer Aug 16 and will schedule my #4 for next week!!!

Check your vaccine at CDC or ask your transplant team. Maybe you can get your Booster !

I agree!

Thanks for your input!

Let's hope it's not 4 5 and 6 !!!!!

Yes you are correct Rosemary.
We all have our own Baggage to carry with the transplant. Taking one day at a time is helpful and not getting too anxious about the future

Me too!