Transplant anti-rejection medications. What's your advice?

Hi JK. How many months or years are you into your new kidney?

@nimalw That's the same as what I do. I have a battery of lab tests done every other month, including my immunosuppressant. I had to get off of tacrolimus because it was making my creatinine go high so I am on sirolimus now and all is well.
JK

Hi JK. He monitors his tac levels every 2 months . It's at 6 now and his creatnine is 1 .

@nimalw The important thing is consistency, either take them with food or without food but be consistent.

You say he constantly monitors his tac levels. Can he do that at home or is it that he gets frequent lab work done for his transplant center as I do every other month? Most people, if they take their immunosuppressants at the same time every day actually are fairly consistent in whether they are taking them within a time range of eating or not.
JK

A freind of mine who is on his 6th after Transplant says he does not fast at all only take them on time!!!! His tac levels are 6 and he constantly monitors them

Yes…baby steps are always a good sign! Reducing prednisone may help your sleeplessness. I have hallucinations on prednisone so fortunately was taken off it soon after my transplant.

I do have sleep issues sometimes due to an autoimmune disease. I take melatonin once or twice a week. Have you tried it? If not, maybe ask your transplant team about it. It comes in various doses, so easy to find a dose that fits one’s body.

Best wishes for healthy sleep!

@nimalw I do the same for fasting, although since I take mine first thing in the morning I'm not concerned about before. I'm surprised that it's only an hour before though because if you eat it takes more than an hour for the food to leave your stomach. I've seen as long as four hours before taking a medication but I think two hours is generally the guideline.

It really does make a difference as proved by when I made the change. A lot of people are unaware of that and they feel that they get the same results no matter how they take it but I think it may simply be that without even thinking about it, on the day of testing, or on the day before, they generally do the same thing as usual so that's why it's consistent. Of course some people may just absorb their medications differently I suppose too.
JK

Hi Jk. Thanks for your reply yes I do my blood works every 2 weeks . I visit my Neph every 2 weeks as well . I was told fast an hour before and after immunosuppressants. I am on 4mg prograff and 2 grams cellcept daily .
Let's see how things progress. Stay safe . 🙏

Thank you Anthea . I need to sort my sleeplessness first but the good news is the prednisone dose was reduced to 7.5mg and 2 other drugs taken off last week . I feel a slight improvement let's see how things go . One day at a time