Y-90 liver cancer treatment: What's your experience?

Posted by mudshark @mudshark, Dec 8, 2019

I recently was treated with y-90 on a tumor in my liver. I am interested in knowing of others that have had experiences good, or bad, and of long term results. I have had prior resection of the liver to remove a tumor but a new tumor surfaced in a different section. I am hoping the y-90 will prove to be a more permanent solution. Thanks

Interested in more discussions like this? Go to the Liver Cancer Support Group.

@gailvar

How do I get on the email list for this group? I have had Y90 this year and would like to stay connected and get updates. Thx

Jump to this post

Welcome @gailvar. I see from your settings that you are following the Cancer group of which this discussion is a part. To get emails for every post, please see the instructions with helpful pictures in this blog post
- How to Get Emails for Every Post https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/am-i-missing-out-where-did-all-the-emails-go/

May I ask what type of cancer you have? How did the Y90 treatment go for you? How are you doing?

REPLY
@colleenyoung

There hasn't been a post to this particular discussion for a few days. But if you're not getting any emails, then please check your spam folder. Let me know if you find them there.

Jump to this post

How do I get on the email list for this group? I have had Y90 this year and would like to stay connected and get updates. Thx

REPLY
@rezmo

I have bile duct cancer with a 5.2cm growth plus several smaller spots on my liver. I would be interested in hearing about this too.

Jump to this post

I have y90 three times now and to date its killed everything it's shot at. Went for 10 months with no new tumors them another one popped up. I would get y90 every time they would give it to me.

The process is not bad. They will do a "dry run" called mapping using die so they know where to put the radiation beads. About three weeks late they will do the actual shoot with the radiation beads. It zaps my strength and energy and creates a pain in my side that feels like someone stuck a screwdriver in my side (which they control with meds) then about two weeks later I 'm all good. It has a pretty high effective rate and not near as symptomatic as chemo.

I sure would ask an Interventional Radiology doc about it.

Diane

REPLY
@rezmo

I have bile duct cancer with a 5.2cm growth plus several smaller spots on my liver. I would be interested in hearing about this too.

Jump to this post

Hi @rezmo, welcome to the group. Has radioembolization (Y-90) been mentioned as a possible treatment for you? A clinical trial? Is surgery an option for you?

REPLY

I have bile duct cancer with a 5.2cm growth plus several smaller spots on my liver. I would be interested in hearing about this too.

REPLY

Alfonso 22 I pray the y90 you are doing again helps. These are difficult choices we make and pray the treatment works. As always ask many many questions and make your decision. Cancer is a double speak language in that it changes its language when it finds another area and like a chameleon it changes its course. Doctors and scientists must find the paths that cancer undertakes. I read in England they are doing a type of technique that diverts blood flow to liver and the chemo are sent directly to the liver without toxicity to the rest of the body ..and then the blood is redirected again to the liver to continue as before. I think I have written this therapy correctly here. Look it up as I think it is on trial basis…the cure is somewhere in big pharma options but just imagine the loss of monies on toxic chems that they push…we caregivers who have lost a partner or relative must be proactive and oush for government funding to find the cure for the sake of others.
Senator Klobuchar was diagnosed wiTh cancer, as a government elite she got top care and I assumed she would be coming out fighting for more funding. She is in remission and I pray she is doing well however not a word from her position indicating funding from the government to fund new innovative therapies. Truly sad that our letter officials who have access to the finest health care do not fight more for the ordinary citizens who fight cancer everyday.
We have the finest hospitals in the USA and some the most brilliant minds in medicine, and they need more funding to research.
The cure is within reach we must all speak out and fight for more therapies. I pray that God will give me the strength to speak out loud and clear about this.
May you be blest and May The Holy Spirit guide you, bless you and cure you.
Yiannis

REPLY

Today I talked to my Doctor about my Y90 treatment tumor is going down in 3 months a MRI to check progress and some blood test. also Doctor said we can see if there is more options in case I need it or 2nd dosis of Y90. I am not going to do the transplant just accepting this endless battle with cancer, and try to live to my best of quality of life so far doing good no paint or any major problems Thanks God. hope I can live for awhile but again is on Gods plans for me. Thank you for all your help and comments realy help me a lot lets stay kind to each other life is too short.

REPLY
@parrot53

Yiannis,
I am so sorry for your loss. It is a true testament of your courage as a couple that you fought valiantly to find a cure. In doing so you must have traveled a difficult and bonding road that many do not experience. I hope you find a sliver of solace in that journey and your lives together. Many are never blessed with a love so strong. Wishing that the memories of your good times together help to pull you through this difficult time. With sincere condolences,
Susan

Jump to this post

Susan thank you from the heart for your kind note and it is sincerely appreciated. The loss of your soulmate is one of the most difficult things in life. Love continues for a life time even after life is gone. We who are left must place ourselves in the other’s footsteps to know what their suffering is and was. We live for each other and love each other as we were meant to be. The solace I have found in what was written 3000 years ago about the Tree of Life to which we all go and then return. As my late mom used to say to me that souls that are in love are destined to meet again to continue their journey. Memories that are kept alive by we that remain back makes the departed ones live. Never forget them and you are correct that the journey made in love always ends in love again and again.
My sweetheart left notes all over about his journey with cancer and I am finding them in all places. And I am putting them together for they are an amazing testament of a deep soul thinker and visionary. We are all visionaries and soul thinkers but we must reach down and touch our soul to discover its beauty.
Again thank you for your note and we must all keep in touch with those whose journey with cancer is ongoing to give encouragement and strength.
May Our Creator Bless Everyone

REPLY
@yannis

Sadly I lost my love in January 25 we had done everything y90 lonsurf, chemo etc.
my question is why do they let people suffer when the cure is already here and big pharma continues to reap the dollars from the toxic chemicals used.
I am so sad at losing my soulmate and the other half of my soul.
We found d something to stop covid and yet we are still trying to find a pathway to a cure for cancers. Cancer is a devious enemy and it needs strategic planning in finding the language it speaketh…find the language and the development of a cure is there.
What can I say except I cry for all the souls lost to cancer.
President Biden’s Moonshot program indicates simply it is a shot to the moon and I ask what if that shot misses.
Appropriate it is as I have named it Stargate Cancer cures. For opening the stars to the gates of cure is what all cancer patients wish to have.
Please government officials no more blah blah blah and empty talk…ACTION NOW is needed.
I will be a strong advocate for finding the CURE in my own path of life.
Yiannis

Jump to this post

Yiannis,
I am so sorry for your loss. It is a true testament of your courage as a couple that you fought valiantly to find a cure. In doing so you must have traveled a difficult and bonding road that many do not experience. I hope you find a sliver of solace in that journey and your lives together. Many are never blessed with a love so strong. Wishing that the memories of your good times together help to pull you through this difficult time. With sincere condolences,
Susan

REPLY
@alfonso22

Sorry for your lost yes I see that liver cancer is a lost battle but I had accepted with my cancer also lost my mother to same cancer as mine only hope there is a cure for future people I wish I could help more on finding a cure stay strong ❤️❤️🙏🏻🙏🏻❤️❤️

Jump to this post

Thank you all for your caring and concerns and yes we must fight for the cure to be found now..we have lost too many lives to cancer and more toxic chemicals are being used. The answer is quite simple in that the government needs to fund 1 trillion dollars to end this disease. We all need to write to the monied Congress who are interested in their wealth and forget that cancer is a battle to fight. We must all speak up and write to them and force them to allocate funding for more and more research. The time is now and the fight must begin with all of us survivors to honor the memory of those brave souls who have lost their lives in the battle of cancer.
Yiannis
I will advocate this in as many forums as I can..

REPLY
Please sign in or register to post a reply.