Y-90 liver cancer treatment: What's your experience?

The answer to the question "Has Y-90 been ordered as a treatment for you?" is no. My wife is the patient - midgut with mets to the liver. She has successfully been on Afinitor for 3+ years and it has successfully halted further spread of liver tumors.

@yannis Welcome to Mayo Connect. All the members on Connect are volunteers and are very willing to answer your questions about their treatment and experiences. I’m going to ask. @mudshark ; @tomewilson ; @digibson if they would join this discussion.
Has Y-90 been ordered as a treatment for you?

Hoping someone with experience at Mayo clinic will be able to address some of the auestions

My spouse was treated on left liver lobe with Y90 treatment and about a month later a celiac plexus block was done. Next week we are doing right liver lobe. Cea increased to 200 the highest it has been. First is this normal? Next we started Lonsurf five days on two days off five on and then a three week off period. Weight loss, not eating much, nausea, and Losse stools.
Oncologists will take minimum time to address these issues. Are we on the right path?

For those of you who have or know of someone with Liver Cancer, here is a link to some information and a video that might provide helpful information for you,
https://connect.mayoclinic.org/blog/podcasts/newsfeed-post/treating-and-preventing-liver-cancer/

Thanks for the well wishes. Have my next CT end of November. Praying the Carsonomas stay away!

I had carsonomas (like little tumors) in my liver that they shot full of the Y90 radiation beads. I wonder if the cancer you have is just spread throughout the liver so there’s nothing to shoot at? I don’t know what the treatment is in that case. I don’t like it that he just shook his head no and didn’t tell you why.

I go to UC Health which is a big medical facility associated with the University of Colorado. They have specials for any health problem. Also go to a cardiologist there who is great. If you can’t get to Mayo I would get second opinions from Stanford. They must have a great oncology unit there.

Good luck with this. Keep going until you get answers. I have an acquaintance that has “untreatable” lung cancer that was given 2 years that has celebrated 3 and going strong. She’s starting into a new research testing drug that has her very hopeful. I do r know more than that because I don’t know her very well. She’s a friend of a friend and on my prayer list.

KEEP AT IT! Blessings, Diane

First of all congrats for all your good news. So where did you get this done (the Y90)? my lung cancer spread to my liver. I asked my oncologist about the Y90. He shook his head no. Do you know why he said I am probabdly now eligable? I see him again next week and will ask again.. I just feel like anything I do will help! I am near Sanford University and will inquie there again about this. And again congrats!!!

Yes I have. He ordered a Guardant360 blood test. I find out results in 3 weeks. He gave me a month off of chemo. So just trying to keep it positive. Thank for your response. It is appreciated. What are they doing for your liver cancer?

Hi Tahoerox. I was just wondering if you have been able to see y our oncologist about treatment yet. Yes i know that look and even felt that way myself when first diagnosed with liver cancer. The more i read the more I realized there is hope and there is treatment. I just hope you get the right one.

Yes Colleen, I am very excited at the news. For now I have to go back every three months to keep an eye on it. In a year and a half my liver has not spun up any additional carcinomas so I’m grateful for that, don’t want any of these three to become active again either.

I really think all the prayers that went up for me was a big factor in the good outcome too.

My last MELD score was 6 so hopefully there is not a lot of damage to the liver which is what spins these little devils up.

Thanks for the good wishes.