Adjusting to life with temporal arteritis

I am a 71 yr old female and officially diagnosed with temporal arthertis yesterday. I went to the ER in November with heart attack symptoms. Troponin level elevated but second one came down so was sent home and told to see my doctor. Told him about my other symptoms and was sent to opthalmologist who sent me to surgeon for biopsy. My Dr started me on 60mg and opthalmologist changed to 40mg. Didn't get biopsy done until week before Christmas and results came back negative but unable to rule out temporal arthertis. Prednisone made me very weepy. Opthalmologist called me week after new years and listened to me when I told him I felt great for 2 days then symptoms came back so set me up with rheumatologist who I finally saw yesterday. Also reduced Prednisone to 20mg. I started methotrexate yesterday, 10mg, and was so fatigued today and brain fog. Also folic acid for 90 days. My doctor also sent me to cardiologist due to blood pressure up and down when it normally low. So on lorsartin 25mg. Chemical stress test was good. I have appointment end of March with neurologist due to the memory issues and brain fog I have. Rheumatologist told me could be months or years before I go into remission. He also told me that if you are on high dosage Prednisone for over a week before biopsy results are not to be trusted, but they have found that you won't go blind in the eye of side you had biopsy. So a positive there. I am hoping the fatigue day after weekly dosage of methotrexate will ease. I also have secondary hyperparathyroidism so was already taking 6 tablets citrical. Just finished 2 years of daily injections of teriparitide and will be starting prolia again in March. I am also a retired nurse so was able to advocate for myself. My advice is this you feel something is wrong, don't drop it just because test comes back negative, be vocal and make sure you have a doctor that listens to you. Thank you for reading and letting me be a part of our next journey

GCA is a type of vasculitis and the Vasculitis Foundation website is excellent there are weekly virtual support groups that have excellent moderators. I have attended several meetings and found them very informative and helpful. I have a different type of Vasculitis but many in the support groups have GCA. You just register for the day and time you want and find a group you like. I hope that helps you learn and cope with this! Keep us posted please.