Would like more info on dysgeusia that has lasted almost three months

Posted by bamtongue1942 @bamtongue1942, Jul 21 7:00pm

I have had an increasingly bitter (not metallic) taste in my mouth for almost 3 months. Dentists, GI, Infectious Disease, Primary Care, ENT have no clue what is causing it. Blood work normal, digestive, including stool specimen normal, no apparent dental issues. Negative for salivary gland blockage and thrush. No abscess, drainage or bleeding. Able to differentiate sweet, salt, bitter, but food tastes terrible and the temptation to eat is great in order to eradicate the bitter taste. History of superb dental hygiene, Age 83 female.

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Your post catches my attention because I’ve experienced changes in taste in three very different situations over the years. One followed an infection, another occurred after taking an oral medication for toenail fungus that temporarily took away my sense of taste almost completely, and now I have a different pattern where my taste seems to fluctuate. It has made me realize that dysgeusia can have many different causes rather than being a diagnosis by itself.

I’m hoping some members who have also experienced changes in taste can share what they learned. @earcho25, @mpg51 and @spruceriver I thought of your discussions about your sense of taste and wondered if you would be willing to share your experiences. Did you eventually learn what was causing it, and did your taste return?

@bamtongue1942, as you think back to when this first began almost three months ago, do you remember anything that changed around that time? For example, an illness, a new medication or supplement, a dental procedure, other senses like smell, or any other health change that now seems worth mentioning?

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Profile picture for Janell, Volunteer Mentor @jlharsh

Your post catches my attention because I’ve experienced changes in taste in three very different situations over the years. One followed an infection, another occurred after taking an oral medication for toenail fungus that temporarily took away my sense of taste almost completely, and now I have a different pattern where my taste seems to fluctuate. It has made me realize that dysgeusia can have many different causes rather than being a diagnosis by itself.

I’m hoping some members who have also experienced changes in taste can share what they learned. @earcho25, @mpg51 and @spruceriver I thought of your discussions about your sense of taste and wondered if you would be willing to share your experiences. Did you eventually learn what was causing it, and did your taste return?

@bamtongue1942, as you think back to when this first began almost three months ago, do you remember anything that changed around that time? For example, an illness, a new medication or supplement, a dental procedure, other senses like smell, or any other health change that now seems worth mentioning?

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@jlharsh I am happy to share my experiences as the dysgeusia continues to plague me. It is distinctly a bitter taste that has not affected my sense of smell. Let me know what information you would like and I will reply. Please give me some assurance this information will be kept confidential and on a need-to-know basis. Additionally, is there a likelihood that any of the clinicians at Mayo will have access to this in case there is further interest in the case. Thank you.

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Profile picture for bamtongue1942 @bamtongue1942

@jlharsh I am happy to share my experiences as the dysgeusia continues to plague me. It is distinctly a bitter taste that has not affected my sense of smell. Let me know what information you would like and I will reply. Please give me some assurance this information will be kept confidential and on a need-to-know basis. Additionally, is there a likelihood that any of the clinicians at Mayo will have access to this in case there is further interest in the case. Thank you.

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@bamtongue1942, thank you for asking. Since you mentioned wanting assurance about confidentiality, I’d encourage you to review Connect’s Community Guidelines so you understand how the community works. https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/

Connect is a public, moderated community where members share their health experiences and learn from one another. Anything you choose to post is visible to others who visit the discussion, so it’s best not to share information you consider private or identifying.

Connect is designed for members to learn from one another’s experiences rather than to obtain clinical review of an individual case. If your goal is for Mayo Clinic clinicians to review your specific medical history and test results, the best way to do that would be to request an appointment so they can evaluate your case directly. You can contact them here http://mayocl.in/1mtmR63

Please only share what you’re comfortable making public. If you’d like to share more about your experience with the persistent bitter taste, I’m sure many members would appreciate hearing your story.

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I would like to hear from others who have similar experiences first. Thank you.

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