Working with insurance companies to obtain IVIG treatment
My neurologist has recommended IVIG treatment to treat my Small Fiber Neuropathy and associated dysautonomia. The challenge I'm having is my insurance company is denying treatment as IVIG isn't FDA approved to treat Small Fiber Neuropathy; thus, it's categorized as experimental treatment and not a covered treatment. My neurologist has submitted multiple appeals to know effect. Does anyone know if is there anything else I can do? Would lobbying politicians or calling my state health department help? Are there trials I can enroll in? Thanks for your support. It is maddening that there's a treatment that shows so much promise to treat Small Fiber Neuropathy yet insurance companies still deny coverage.