Wife's Diagnosis SCLC: Chemo Next Week-What Should I Do?
Hello, my wife had a biopsy of a lump on her neck on Jan. 31,2025. It was determined she has SCLC, An xray revealed a mass in our right lung. Met with an oncologist and he ordered a PET scan and MRI of the brian. The results came back and no other cancer locations were found, PTL!
A port was put in today and chemo starts next Tuesday. We meet with a radiation doctor Friday. Radiation treatments will start soon. Chemo treatment is carbopatin/etoposide.
Is there anything I can do to better help her with the chemo side effects? Anything I should get prior to treatments? And any other suggestions or comments on our journey?
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@bovic21 sending an abundance of hope.
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1 ReactionAfter three weeks in the hospital and two weeks in rehab my wife is finally home.
She has missed two months of immunotherapy treatments so a body scan was done. A tumor the size of a walnut was found on the side of her heart. An echocardiogram was done and for now her heart is functioning normal.
The plan now is to restart immunotherapy and hope it will reduce and her rid of this tumor.
She's feeling pretty good so hoping and praying this works.
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4 Reactions@bovic21 my mom had several GI complications from lymphoma. one time after emergency bowel surgery she couldn't eat and was losing too much weight. the doctors were worried she wouldn't be able to heal from the surgery without nutrition. so she did TNP for a short time in the hospital until she was able to start eating again. I don't remember the exact length of time, but I think it was around 2 weeks. hugs to you both!
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3 Reactions@bovic21 The radiation on my wivfe's adrenal gland finsihed 8 days ago.
The problem now is the radiation irritated her stomach so much she is not able to drink or eat anything. She has been in ther hospital for 5 days with fluid IVs, but still not eating.
The doctors are now talking about giving her nutritions thru a tube. It is called TNP.
When I goggled TNP I saw that there are some risks involved.
I was wondering if anyone has some history or knowledge of TNP.
Thanks,
Vic Read
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3 ReactionsHi Lisa @lls8000 , thanks for your concern. My wife is doing pretty good, but getting awfully tired of all the doctor appointments and treatments. She has three or four appointments every week. And the infusion treatments are almost a whole day process. In her condition getting ready for those appointments is drain on her energy. Luckily she's hasn't givien up on the fight yet.
The treatment decision on the tumor in her adrenal gland was radiation, five treatments over two weeks. That has started this week. Her brain MRI on Monday showed that the prevouis four tumors that were radiated are gone! That was great news, but two new tumors have showed up, After radiation on the adrenal gland is done then they will radiate those two. The hits just keep coming, haha.
Thanks for asking about me. Some days I feel worn out also, but I do try to walk a couple of miles everyday and that helps keep my energy level up. And I do sneak a nap in every once in a while!
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2 ReactionsHi @bovic21, Just checking in, how is your wife doing? Any decisions on future treatments? How are you holding up?
Naps are strongly encouraged!, for you too. 🙂
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2 ReactionsHello @bovic21,
I’m glad your wife is tolerating her treatments well. It’s good you are finding which foods are tasting okay to her now, such huge life changes for you both … 🤗 hugs.
Great that the tumors are smaller or gone ! One remaining, and it seems her doctors are right on it, making a plan.
I don’t have experience with either treatment, I am thinking positive thoughts, prayers are being sent your way for her new treatment and the brain MRI.
Daisy
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2 ReactionsMy wife has been on Tarlatamab for around six months. She is tolerating the treatments well, with the only side effects being loss of taste and fatige. But we're learning what foods do still taste ok and which do not. And we're retired so there is time for naps!
She had a Pet scan this week that showed the tumors below her neckline are getting either smaller or are gone, except for one. There is one in the left adrenal gland that is showing a slight increase. Her doctors are now deciding if radiation or cryoablation might be needed to additionally treat this one tumor.
Has anyone else had a tumor treated with cryoablation? And if so, how were the results and side effects of that trestment?
Next up is a MRI on the brain in 2 weeks. Praying for good results from that.
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3 ReactionsYes I'm still doing well. Thank you
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2 Reactions@bovic21, Sorry that you and your wife are facing this good news/bad news situation. Unfortunately, it's not uncommon for treatments to help our bodies, but not our brains. The Stereotactic Radiosurgery (SRS) can also be referred to as 'gamma knife'.
@tvichkon, are you still doing well after your gamma knife procedure? (https://connect.mayoclinic.org/comment/1507460/)
https://www.mayoclinic.org/tests-procedures/stereotactic-radiosurgery/about/pac-20384526
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