Why me? (sorry for the childish question)

Posted by tybalt98 @tybalt98, Jul 10 9:07pm

I've always been healthy. I'm 77 yo female; started running in 1980 and continued up until about 4 years ago. I mean serious running, 6 miles 5 days a week until I was about 60. I had a medical hysterectomy at 32 and was on HRT until I was about 65. I can't remember why I stopped. But I'm happily married for 43 years, so I use Premarin Vaginal Cream regularly. I hate when people ask "why?" but I have to ask. Why do I have an osteoporosis diagnosis? My endo wants to put me on Forteo. I'm leary because of all the negative posts on reddit. Does anyone think I caused Osteoporosis by running so many years? I was never anorexic and literally never really sick.
Also, I'm new here; please forgive my ignorance and be kind.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for nycmusic @nycmusic

Reddit is not what we should rely on. Use major reliables like Mayo Clinic, Cleveland Clinic, NIH, etc.

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@nycmusic Any source of information should be further researched IMHO! Reddit has various personal experiences including cautionary tales about people's personal experience that one can then do "real" research on. I agree that one should never take the word of anyone posting on social media without verifying, and it is why I try to always include a reputable reference when I offer information here.

I do not have an osteoporosis example of Reddit being useful but here is a different one from Reddit: there are people discussing their impending above-the-knee amputations after total knee replacement, which was a surprise to me. I have then researched amputations after TKR and it is a complication normally of infection and happens in up to 1 in 200 patients, but maybe much lower. Still, I may use this information to delay my TKR and endure the pain longer before taking a TKR risk. None of the doctor's sites I visited had I yet noticed warnings about amputation as a risk, and the paper below argues that there should be more warnings about it. Hearing words from actual people makes a difference for me.
https://pubmed.ncbi.nlm.nih.gov/33778111/

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Profile picture for petitefitsmartfemale @petitefitsmartfemale

@jeepgrl , Thank you! I added a few weeks ago 500 MG of Vitamin C to my diet too that I forgot to put here and 3 MG of Boron. I am going to try the other items that you mentioned. Thank you! We will try to help each other. I am age 64. I hope my next bone scan is good. I have been doing strength classes also.

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@petitefitsmartfemale Welcome. Strength classes? Really? Can you please name your source. I'll check into Boron. Please keep in touch and let us know about your bone scan. I'm 72. It'll be awhile before I get mine.

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Profile picture for jeepgrl @jeepgrl

@petitefitsmartfemale Welcome. Strength classes? Really? Can you please name your source. I'll check into Boron. Please keep in touch and let us know about your bone scan. I'm 72. It'll be awhile before I get mine.

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@jeepgrl , I have joined Orange Theory Fitness Classes. They have 50 minute strength classes and 2G and 3G classes. 2G for 2 groups, Rower to warmup, then on the floor to get stronger with free weights with a coat and TV Screen showing the workouts and then the treadmill. Three oups are the 3G classes that have 1/3rd rower, 1/3rd weights on the floor and 1/3rd treadmill. The coaches are great, making sure I do the exercises correctly and showed me how to lower my bench since I am less than 5 feet tall. I am getting stronger. Hoping this helps my bones as I am eating a lot more protein and making sure I get enough healthy fats for the fat soluble vitamins. I don't want to have my S-shaped scoliosis spine curve more and I don't want anymore bone loss. I hope I can get out of osteoporosis. I will keep you all updated.

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Profile picture for kfhoz @kfhoz

@nycmusic Any source of information should be further researched IMHO! Reddit has various personal experiences including cautionary tales about people's personal experience that one can then do "real" research on. I agree that one should never take the word of anyone posting on social media without verifying, and it is why I try to always include a reputable reference when I offer information here.

I do not have an osteoporosis example of Reddit being useful but here is a different one from Reddit: there are people discussing their impending above-the-knee amputations after total knee replacement, which was a surprise to me. I have then researched amputations after TKR and it is a complication normally of infection and happens in up to 1 in 200 patients, but maybe much lower. Still, I may use this information to delay my TKR and endure the pain longer before taking a TKR risk. None of the doctor's sites I visited had I yet noticed warnings about amputation as a risk, and the paper below argues that there should be more warnings about it. Hearing words from actual people makes a difference for me.
https://pubmed.ncbi.nlm.nih.gov/33778111/

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@kfhoz hearing others’ experience does help— I like MayoConnect because it is well-monitored and the monitors are excellent…wishing you the best in a difficult situation….you are a brave soul !

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Profile picture for petitefitsmartfemale @petitefitsmartfemale

@jeepgrl , I have joined Orange Theory Fitness Classes. They have 50 minute strength classes and 2G and 3G classes. 2G for 2 groups, Rower to warmup, then on the floor to get stronger with free weights with a coat and TV Screen showing the workouts and then the treadmill. Three oups are the 3G classes that have 1/3rd rower, 1/3rd weights on the floor and 1/3rd treadmill. The coaches are great, making sure I do the exercises correctly and showed me how to lower my bench since I am less than 5 feet tall. I am getting stronger. Hoping this helps my bones as I am eating a lot more protein and making sure I get enough healthy fats for the fat soluble vitamins. I don't want to have my S-shaped scoliosis spine curve more and I don't want anymore bone loss. I hope I can get out of osteoporosis. I will keep you all updated.

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@petitefitsmartfemale Oh. Thanks very much for this but it appears too strenuous for my physical impairments. But, hey, my hats off to you for taking it this far. Sounds like a terrific plan for your physical ailments.

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I can commiserate...68 y.o male. In my opinion, running does NOT cause osteoporosis. The only answers I've received are "genetics", "no secondary cause" and you need to be on medication to reduce your "fracture risk". I fractured my T10 in 2021 after flying through the air on a sled with my granddaughter. I fractured my L3 in 2024 after tripping over my granddaughter's little chair and landing on my butt on our hardwood floor. Had the DEXA scan..."serious osteoporosis". I didn't want to go on daily shots so went the "natural" route for about a year with diet, exercise and supplements. I felt stronger and more steady on my feet. I wasn't very good at being consistent though...mainly because of depression, anxiety and life. DEXA redo after a year had lost another 3% in BMD in lumbar spine, stable elsewhere.

I've thought a lot about the "why". I was diagnosed with low serum Vitamin D at least 15 years ago and took 5000 iu everyday for 12 years. No one told me about the importance of Ca with D but my serum Ca has always been normal. My thinking has been that I must have a malabsorption condition. Is that a why? I also have very high thyroglobulin antibodies and many symptoms of hypothyroidism but TSH is normal so only Hashimoto's. Is that a why? The cause of osteoporosis from a physiology standpoint is apparently an imbalance in the way osteoclasts build and break down bone in response to the parathyroid hormone. So I ask, is there something wrong with my parathyroid? Is that a why? Lastly, I was on statins for several years, at some times above the therapeutic dose...is that a why?

With all that said, is taking Tymlos, for example, really going to strengthen my bones enough so that if I fall I won't fracture anything? 86% spine and 46% non-spine improvement in women but no studies on men. I've been on Tymlos about 3 months...terrible side effects...still not at maximum dose. I'm thinking....maybe I should just not go sledding and watch where I'm going so I don't trip...that should reduce my fracture risk!!!

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Profile picture for jbcat26 @jbcat26

I can commiserate...68 y.o male. In my opinion, running does NOT cause osteoporosis. The only answers I've received are "genetics", "no secondary cause" and you need to be on medication to reduce your "fracture risk". I fractured my T10 in 2021 after flying through the air on a sled with my granddaughter. I fractured my L3 in 2024 after tripping over my granddaughter's little chair and landing on my butt on our hardwood floor. Had the DEXA scan..."serious osteoporosis". I didn't want to go on daily shots so went the "natural" route for about a year with diet, exercise and supplements. I felt stronger and more steady on my feet. I wasn't very good at being consistent though...mainly because of depression, anxiety and life. DEXA redo after a year had lost another 3% in BMD in lumbar spine, stable elsewhere.

I've thought a lot about the "why". I was diagnosed with low serum Vitamin D at least 15 years ago and took 5000 iu everyday for 12 years. No one told me about the importance of Ca with D but my serum Ca has always been normal. My thinking has been that I must have a malabsorption condition. Is that a why? I also have very high thyroglobulin antibodies and many symptoms of hypothyroidism but TSH is normal so only Hashimoto's. Is that a why? The cause of osteoporosis from a physiology standpoint is apparently an imbalance in the way osteoclasts build and break down bone in response to the parathyroid hormone. So I ask, is there something wrong with my parathyroid? Is that a why? Lastly, I was on statins for several years, at some times above the therapeutic dose...is that a why?

With all that said, is taking Tymlos, for example, really going to strengthen my bones enough so that if I fall I won't fracture anything? 86% spine and 46% non-spine improvement in women but no studies on men. I've been on Tymlos about 3 months...terrible side effects...still not at maximum dose. I'm thinking....maybe I should just not go sledding and watch where I'm going so I don't trip...that should reduce my fracture risk!!!

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@jbcat26 I was 64 (male) when diagnosed with osteoporosis. I suffered a compression fracture and I didn't even fall. Don't think you can just handle it with better eating and some vitamins. That won't work. I took Tymlos for nearly two years, and my spine is now -1.7. It was -3.4 when I started. That's a huge, huge difference. Taking Tymlos was the smartest thing I could have done. If the full dose is too much for you, dial it down a couple of clicks and see if that helps.

By the way, blood calcium levels don't tell the story. You can have normal levels in the blood, but if your body isn't absorbing it properly and directing it to the bones, then you can lose bone density. A 24-hour urine calcium test tells the doctor if you are urinating out a lot of calcium.

As for the cause, the doctors have been unable to give me one. My vitamin D was low, but not crazy low; it was easily fixed with supplements. My hormone levels were acceptable. Thyroid was fine. Statins have nothing to do with it; I've been on rosuvastatin for nearly two years. I suspect it was a combination of a sedentary job, low vitamin D, and not getting nearly enough calcium. Now, I run (been doing that for years), and I go to the gym to do the proper weight-bearing exercises. I also take vitamin D3 and K2, and I make sure I get enough calcium (mostly via milk and food, not pills.)

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I’m 73 and I feel the same way. I think it’s heredity but it can’t ask anyone in my family since they died from other issues. I exercise 1 hr and walk 1/2 hr every day and have been for years. I watch my weight and used to ski. I just don’t know , but you’re not alone. Don’t let the osteoporosis define what you can’t do. I’m still doing what I can because I CAN. IDK what’s in the future but at least for now I’m up. Good luck and do your best. That’s all we can ask.

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Profile picture for jbcat26 @jbcat26

I can commiserate...68 y.o male. In my opinion, running does NOT cause osteoporosis. The only answers I've received are "genetics", "no secondary cause" and you need to be on medication to reduce your "fracture risk". I fractured my T10 in 2021 after flying through the air on a sled with my granddaughter. I fractured my L3 in 2024 after tripping over my granddaughter's little chair and landing on my butt on our hardwood floor. Had the DEXA scan..."serious osteoporosis". I didn't want to go on daily shots so went the "natural" route for about a year with diet, exercise and supplements. I felt stronger and more steady on my feet. I wasn't very good at being consistent though...mainly because of depression, anxiety and life. DEXA redo after a year had lost another 3% in BMD in lumbar spine, stable elsewhere.

I've thought a lot about the "why". I was diagnosed with low serum Vitamin D at least 15 years ago and took 5000 iu everyday for 12 years. No one told me about the importance of Ca with D but my serum Ca has always been normal. My thinking has been that I must have a malabsorption condition. Is that a why? I also have very high thyroglobulin antibodies and many symptoms of hypothyroidism but TSH is normal so only Hashimoto's. Is that a why? The cause of osteoporosis from a physiology standpoint is apparently an imbalance in the way osteoclasts build and break down bone in response to the parathyroid hormone. So I ask, is there something wrong with my parathyroid? Is that a why? Lastly, I was on statins for several years, at some times above the therapeutic dose...is that a why?

With all that said, is taking Tymlos, for example, really going to strengthen my bones enough so that if I fall I won't fracture anything? 86% spine and 46% non-spine improvement in women but no studies on men. I've been on Tymlos about 3 months...terrible side effects...still not at maximum dose. I'm thinking....maybe I should just not go sledding and watch where I'm going so I don't trip...that should reduce my fracture risk!!!

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@jbcat26 I can’t help but to add my opinion as well. I would feel exactly as you do about continuing medication. I am a 73 yo that stopped meds due to reactions for 2 years. Now I am just being as careful as I can and enjoying moments at least without feeling lousy with these meds. What will be will be. Good luck to you as you have been through a lot.

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Profile picture for njx58 @njx58

@jbcat26 I was 64 (male) when diagnosed with osteoporosis. I suffered a compression fracture and I didn't even fall. Don't think you can just handle it with better eating and some vitamins. That won't work. I took Tymlos for nearly two years, and my spine is now -1.7. It was -3.4 when I started. That's a huge, huge difference. Taking Tymlos was the smartest thing I could have done. If the full dose is too much for you, dial it down a couple of clicks and see if that helps.

By the way, blood calcium levels don't tell the story. You can have normal levels in the blood, but if your body isn't absorbing it properly and directing it to the bones, then you can lose bone density. A 24-hour urine calcium test tells the doctor if you are urinating out a lot of calcium.

As for the cause, the doctors have been unable to give me one. My vitamin D was low, but not crazy low; it was easily fixed with supplements. My hormone levels were acceptable. Thyroid was fine. Statins have nothing to do with it; I've been on rosuvastatin for nearly two years. I suspect it was a combination of a sedentary job, low vitamin D, and not getting nearly enough calcium. Now, I run (been doing that for years), and I go to the gym to do the proper weight-bearing exercises. I also take vitamin D3 and K2, and I make sure I get enough calcium (mostly via milk and food, not pills.)

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@njx58 Your improvements from Tymlos are amazing. What follow-up drug therapy are u doing? are you still seeing bmd gains post-tymlos? Bmd is supposed to continue to rise a little the 1st 2 years on reclast ...

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