Why can't I recover,can't swallow, smell or taste

Posted by susankeel316 @susankeel316, 3 days ago

7 yrs after tonsil Carcinoma I still have open wound in my mouth, can't swallow or taste

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Hello @susankeel316 Perplexing statement you used to join our group. Seven years. I think many of us have had some issues for years but an open wound and swallowing issues at this point for a tonsil tumor seems extreme to me. It might be time to have a cancer clinic or doctors to have a look.
Swallowing is more complex than most of us imagine. It only takes one or two out of roughly fifty small muscles to malfunction to cause difficulty. Radiation commonly used in cancer treatment often damages these muscles, particularly in your case aimed at the swallowing center, the tonsil pillar.
As for taste loss this long, I think that is not common as well. I had similar cancer and while not a fun couple of years, most functions returned to normal.
We cannot of course diagnose you as most of us a patients as well. We talk of our experience and collectively can point others in a direction they may not have considered to live better in this fight.
Did you have radiation and chemo or just one? Is there a nearby treatment center you could find to investigate this further?

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Yes I plan on Vanderbilt, this is where I had Radiation

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Profile picture for William Olsen, Volunteer Mentor @hrhwilliam

Hello @susankeel316 Perplexing statement you used to join our group. Seven years. I think many of us have had some issues for years but an open wound and swallowing issues at this point for a tonsil tumor seems extreme to me. It might be time to have a cancer clinic or doctors to have a look.
Swallowing is more complex than most of us imagine. It only takes one or two out of roughly fifty small muscles to malfunction to cause difficulty. Radiation commonly used in cancer treatment often damages these muscles, particularly in your case aimed at the swallowing center, the tonsil pillar.
As for taste loss this long, I think that is not common as well. I had similar cancer and while not a fun couple of years, most functions returned to normal.
We cannot of course diagnose you as most of us a patients as well. We talk of our experience and collectively can point others in a direction they may not have considered to live better in this fight.
Did you have radiation and chemo or just one? Is there a nearby treatment center you could find to investigate this further?

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I had both Chemotherapy and Radiation 7wks intense stage 4 when diagnosed. Ears,Nose and Throat all effected today

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Are you considering a second opinion at Mayo Rochester?

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What is Mayo Rochester 🤔?

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Profile picture for susankeel316 @susankeel316

What is Mayo Rochester 🤔?

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The Mayo Clinic in Rochester, Minnesota.

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Profile picture for sandy8043 @sandy8043

The Mayo Clinic in Rochester, Minnesota.

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I can't afford the trip let alone the treatment

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Profile picture for susankeel316 @susankeel316

I can't afford the trip let alone the treatment

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You have internet. Start there. http://www.mayoclinic.org.
They don’t give up so easily. Why are you?
We are patients, nothing more.

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Profile picture for susankeel316 @susankeel316

I had both Chemotherapy and Radiation 7wks intense stage 4 when diagnosed. Ears,Nose and Throat all effected today

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Your not alone, I had Chemo and Radiation for 7-weeks and my Ears, Eyes, Nose & Throat are all affected also. It is all part of fighting the cancer. God Bless You.

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Profile picture for amadewell @amadewell

Your not alone, I had Chemo and Radiation for 7-weeks and my Ears, Eyes, Nose & Throat are all affected also. It is all part of fighting the cancer. God Bless You.

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How do you cope mentally, I feel like I am losing what's left of my brain? Head feels like an empty bucket, and bone and muscle loss is depressing, lost 100lbs and had skin hanging,

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