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Profile picture for William Olsen, Volunteer Mentor @hrhwilliam

Hello @susankeel316 Perplexing statement you used to join our group. Seven years. I think many of us have had some issues for years but an open wound and swallowing issues at this point for a tonsil tumor seems extreme to me. It might be time to have a cancer clinic or doctors to have a look.
Swallowing is more complex than most of us imagine. It only takes one or two out of roughly fifty small muscles to malfunction to cause difficulty. Radiation commonly used in cancer treatment often damages these muscles, particularly in your case aimed at the swallowing center, the tonsil pillar.
As for taste loss this long, I think that is not common as well. I had similar cancer and while not a fun couple of years, most functions returned to normal.
We cannot of course diagnose you as most of us a patients as well. We talk of our experience and collectively can point others in a direction they may not have considered to live better in this fight.
Did you have radiation and chemo or just one? Is there a nearby treatment center you could find to investigate this further?

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Replies to "Hello @susankeel316 Perplexing statement you used to join our group. Seven years. I think many of..."

I had both Chemotherapy and Radiation 7wks intense stage 4 when diagnosed. Ears,Nose and Throat all effected today

I just finished Radiation and Chemotherapy. Initially I had lingual tonsillectomy. After surgery the pet scan recognized still active throat cancer . The surgeon recommended a second surgery. After the pain I went thru with my throat I decided on Treatments. 35 Radiation and 7 Chemotherapy with Hydration twice a week. My weight went from 215 before surgery to 170 after treatments. The radiation of course makes your throat feel like pins and needles and the sores in the back of my mouth . They inserted a feeding tube for nutrition and hydration . I’m in the recovery mode and have to train myself to swallow.

I also lost my taste after the Lingual Surgery hoping it comes back. My hearing also got worse during the treatments. Using the feeding tube I wasn’t hydrating my throat and mouth with water and had nasty dry mouth . That breaks up the flem in more throat .

I was diagnosed with HPV Virus